mastcellactivation

Hi everyone I have an appt with an allergist in a few weeks, my geneticist said I could have some characteristics of MCAS but left it at that and then an internal med doctor put a referal to see them under allergies . I have no idea what to expect or do or say. I've been compiling all the pictures I've taken of reactions I've had. What else do I need to do ? #HEDS #hypermobileehlers-DanlosSyndrome(hEDS)

Hello all!
I'm both new and not so new at this whole chronic illness thing. I've lived with EDS, POTS, and mast cell activation my whole life, but was diagnosed about 6 weeks ago. Informally of course, because the docs don't want to miss anything the "easy" answers could be masking.

So now I'm learning how to live with the pain and understand what it is telling me instead of ignoring it. And that my threshold is insane! What I'm really struggling to understand is how it took 40 years of wierdness for doctors to try to figure out what was wrong/different?