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DIAGNOSIS DAY #EhlersDanlosSyndrome #ChronicIllnessEDS #hypermobileehlers-DanlosSyndrome(hEDS)

Not sure if that should say happy but today is one year since getting diagnosed with hEDS and I'm not sure how I'm supposed to feel about it . It has been a crazy year went from thinking everything was normal because that's what drs told me to finding out I have a defective body. Adding in meds that I never wanted to have to take, a surgery plus healing complications still 4 months out, discussion for another surgery, questioning everything I feel, did I always feel like this and ignore it or am I over thinking it. And extra diagnosis along the way. Answers are nice but sometimes I want to go back and pretend everything is OK. Sorry for the rant :) #EhlersDanlosSyndrome #Anxiety #POTS #allergy #HypermobileTypeEDS #MastCellActivationDisorder

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What do I do #allergy #EhlersDanlosSyndrome #Anxiety

What do you do when you dr visit summary is wrong? I saw an Dr on Monday and the visit notes list that a test wasn't done because I was on antihistamines, but I wasn't taking the because I was told to stop them a week before the appt which I did and to top it off that wasn't even discussed in my appt. Then the is the other vital section where ot talks about lung sounds and abdominal pain and those extra things again none of which was discussed during the appointment. What do you do I'm about to print out the report and attack it with a highlighter for all the things that were wrong or not discussed and gake it to him at my next appt. I talked to a nurse today about some of it and he said he would look into it and kept apologizing.could it have been because a nurse was taking ghe notes and just let it auto fill with the normal no problems on the lines if he didn't add any issues in? I'm really mad about this #ChronicIllnessEDS #allergy

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First allergist appointment #mastcellactivation #allergy #ChronicIllnessEDS

Hi everyone I have an appt with an allergist in a few weeks, my geneticist said I could have some characteristics of MCAS but left it at that and then an internal med doctor put a referal to see them under allergies . I have no idea what to expect or do or say. I've been compiling all the pictures I've taken of reactions I've had. What else do I need to do ? #HEDS #hypermobileehlers-DanlosSyndrome(hEDS)

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What To Do Before Allergy Testing | is a renowned website that assists you in what to do before allergy testing. An allergy test is an exam performed by a trained allergy specialist to determine whether your body has an allergic reaction to a known substance. For further details, please get in touch with us.

#allergy #FoodAllergies #Allergies

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Are you Lactose Intolerant? Have you ever had a unique situation Where, When & How?

It's weird how when you have a mental illness like autism or bpd, adhd you are in most cases allergic to certain foods including cow's milk. My situation happened to me at school while in the lunchroom when I was in the 10th Grade. No one knew what happened, so I walked fast like Mr. Bean to the principal's office to call my mom to pick me up. And don't you hate when everyone is trying to stop and talk to you during an emergency situation. The funny thing is that milk never bothered me until that day. Now in days I drink Oat Milk! #allergy #BPD #ADHD #MentalIllness

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Side effects

I was considering using the nasal spray past the 2 weeks but then a side effect that happened before happened again so I didn’t bother. Woke up a few times last night though, and struggled to sleep. Doctors appointment next week.

Today my eyes have been causing the issues though. Things were alright up until nighttime, when they are in a lot of pain.

I ironically bought new eye drops today, which have so far proven to be next to useless. Gave me less than half an hour of partial relief. Did two “doses” in 2 hours, and ended up using my old ones which were much better but still not 100% effective, so I know my eyes are worse than normal.

I got different eye drops from the last ones because they were slightly cheaper and had a longer usage on them (6 months vs 3 months), but I wish I had just got the normal ones.

I wonder if the sudden increase in pain is a side effect of the increase in my medication, or perhaps a delayed side effect to the decongestants I was on (I searched online for reasons why it may be worse in hopes of having some sort of idea).

The thing that does suck is that because my eyes burn when using eye drops with preservatives in, my selection of eye drops is narrowly reduced and all are expensive! So my hope of trying to essentially half the cost was costly and I can’t decide whether to keep trying with them or just buying some more again.

Oh in other news, I’ve been in pain with my ear again and it has the same sensation as it did just before my ear infection so I’m a bit “uhhh” about that, just hoping it’s the cold/bug I’m coming down with (yes, despite wearing a mask all the time I still managed to get one apparnetly so I feel a little rough).

Just another day in my life though. How is everyone else?

#ChronicPain #eyepain #allergy #Allergies #SideEffects #Pain #Memes #Meme

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Medication allergy and #Autism

Just ended up with a second medication I’m allergic to in under a week. Is there anything worse than being an itchy mess when you have touch sensory issues?!?
#Autism #allergy #itchy

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#allergy #Asthma , Opinions?

I wasn't sure whether to place this here or in the forum related to asthma so I tagged it in both.So, I live in a household of smokers, specifically marijuana. When they smoke, often I can feel my chest tighten/pressure, I cough, my eye will either dry or water, sneeze at times and get a headache and/or migraine. (Obviously I am going to speak to the doctor the next chance I get but I wanted some opinions) Does this sound like an allergy? Am I developing asthma? Could it be both?


Allergy testing

I had an ENT Dr appt today. Was told to go back Jan 8th for allergy testing. I have no idea what that consists of entirely. I am already nervous. I am also worried because I am going to have to stop some of my psych meds, including the ones that help make me sleep. #allergy


why is it this way? #Depression #PTSD #SleepDisorders #sciatica #allergy

I am in my early 30s. Married for coming to 8 years. My husband pop the question when I am in the most difficult stage of my life. Went I am seeing a psychiatrist and still getting used and trying out all the medications and trying to see which medication suits me best. I had a change of psychiatrist 5 years ago and I got to say this doctor is much better than the previous, he encourages me and listens to what I rant to him everytime I sees him. At times I do pity my doctor. 😔 I am job hunting now as I am being asked to leave my previous job due to the company is closing down. I am so traumised by it. I am making so much money for the company (as I am their Business Development Manager). I am hitting 2-3 times their target they have set for me. And... just a word from my boss that they cant afford the increment of rent anymore so that have to shut the business. I am so upset. I cried and cried after I was told about it. As this is the 2nd time it had happened to me. I cried late at night and in the shower, when my husband is not by my side. I dont want him to get all worry about me.

Staying home all day doest help me at all on somedays I got to admit. Though I have pets at home and they do keep me accompany, but I just want to get back to work. I tried sending in resumes and I did not get any respond back.

I am asking myself, if I ever land on a full time job, can I wake up on time? Can I take the long travelling hours?

My lower back and knee is giving me problems ever now and then. I am feeling ao frustated about it. And whenever I am in deep thoughts, my migraine will be back to huant me.

PTSD sucks and I am a childhood abuse surviver I would say. Flashbacks will happen when I am sleeping and I will always wake up not feeling rested at all.

I cut off contacts with my family as I know they are not good for my mental health ( it took me a lot of courage to do so ) I got no one now, except my husband.

I kept telling him that I am job hunting and he keeps telling me to go easy and stop giving myself those invisible pressure.

I hate the feeling of him supporting me. I just want to be on my own 2 feet.

At times, I really feel like ending my life. Everything seems so numb and such a pain for me.

I seldom leave my house. Only when my husband is with me. If not I will be at home doing some household chores (if I had the energy for the day )

Somehow, I miss the old me, when I could do everything on my own. The independent me.

depression sucks the energy out of me. anxiety is really killing me. sleep disorder is driving me mad. PTSD is driving me nuts.