msawareness

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MS Advocacy

I just submitted my first story proposal for The Mighty - all about Advocacy in honor of MS Awareness Month. What a perfect affirmation to uplift that leap of faith in sharing my voice. #MultipleSclerosis #msawareness

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MS Awareness Week!

It’s MS Awareness Week and we’re proud to be a part of the movement that will someday cure MS! No matter your connection to MS, you have a story – create your own #mymsmoment and share to help spread awareness. More #msawareness means more understanding for people with MS. Share your MSMoment in the comments or create one for the National MS Society website to share.

www.nationalmssociety.org/MS-Awareness/MS-Moment-Gallery

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It’s MS Awareness Week and I’m proud to be a part of the movement that will someday cure MS! No matter your connection to MS, you have a story – create your own #mymsmoment and share to help spread awareness. More #msawareness means more understanding for people with MS. Thank you Viatris for sponsoring the My MS Moment creator tool. ntlms.org/MSAwareness

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Fixing My Crown #helmetbaby #fixingmycrown #cranialtherapy #msawareness

Hello Mighty Community!

I’ve been living with MS for 6 years now, and just published my very first book! It’s a children’s book inspired by my daughter’s cranial therapy journey, but I also used this as an opportunity to spread MS awareness.

I’m reaching out to tell you this because it’s people like you that encouraged me to embrace my MS and show the world it won’t slow me down!!

My book is called Fixing My Crown and it’s about my daughters cranial therapy journey. When she was diagnosed with plagiocephaly I searched for a childrens book like this one, with no luck. So I created my own! I’m really hoping to reach other helmet families, and pray that it helps them feel not so alone in this unique journey.

Here is the link to my book baby page if you want to check it out - store.bookbaby.com/book/fixing-my-crown

The book will also be available on Amazon and B&N in a few short weeks.

Thank you so much!

Fixing My Crown

Read along as Charlotte goes through her cranial therapy journey. This book walks through the process of getting a helmet and common situations for helmet babies and families. Although the journey may be challenging at times, this book helps bring a bit of humor and comfort to those going through their own helmet journey!
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