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    When was your last "normal" day?

    Living with a chronic health condition can mean redefining and reflecting on your ideas of normalcy. From those days where your symptoms seem overbearing, to the days where you're feeling "good" and ready to tackle what the days brings, normal can be relative, flexible, or even a distant memory.

    When do you feel like your last "normal" day was?

    📚 If you need something to read today, check out Syrena Clark's story here:
    themighty.com/topic/schizoaffective-disorder/looking-back-li...

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

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    ICYMI: For parents / caregivers of not-so-little zebras

    While this story is focused on raising a child with EDS as he enters into his teenage years, the caregiving dilemmas are similar across all rare diseases.
    themighty.com/topic/ehlers-danlos-syndrome/parenting-adolesc...

    #Caregiving #ParentingAChildWithAGeneticCondition #EhlersDanlosSyndrome #Parenting

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    Write down your current mental, emotional, and physical needs.

    It’s a loaded question, we know, but what do you need right now? Here’s a way to break it down so it feels a little more approachable:

    🧠 What do you need mentally? (examples: less on your to-do list, a break)

    💛 What do you need emotionally? (examples: forgiveness, patience, understanding, to be loved)

    🫁 What do you need physically? (examples: rest, energy, a low-pain day, a diagnosis)

    #RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #SkeletalDysplasia #ChronicPain

    4 reactions 3 comments
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    Happy 1st day of Spring!! 🌹🌸🌻🌼

    Take care of you! You're important, special and worthy! 😉👍
    #PTSD
    #Anxiety
    #Aging
    #Caregiving
    #menopause

    38 reactions 5 comments
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    Saturday, MS strengthening exercises & yoga poses to improve your walking

    40 min. session with Dr. Gretchen Hawley and her my mother, a registered yoga teacher🧘🏼‍♀️ and with training through @mssociety.

    doctorgretchenhawley.com/walkthisway

    #MSAwarenessWeek #thisisms #MultipleSclerosis #ChronicIllness #Depression #newlydiagnosed #MightyTogether #Disabilities #Caregiving #Disability #Support

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    How has your health impacted your ability to trust others?

    There are two sides to the health-trust dynamic: when your diagnoses give you no choice but to trust people, or when you diagnoses give you every single reason to be skeptical of others.

    We’re curious where you land. Is it a case by case basis? Have you learned who your true people are? Have you actually become a more trusting person through it all?

    #RareDisease #Achondroplasia #SkeletalDysplasia #Dwarfism #ChronicPain #Parenting #Caregiving

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    What’s something you have to consistently rely on others for?

    When you live with a disability or have a chronic health condition, sometimes it’s necessary to ask for help. Whether it’s to assist with chores or other everyday activities or errands, relying on others is how the task gets done and thats totally OK, we definitely can relate 🙋.

    What do you have to rely on others for? How does that make you feel?

    P.S. There’s no shame at all in asking for the help you need.

    ❤️ If you’re looking for something Mighty to read on the topic, check out Larissa Martin’s experiences here:
    themighty.com/topic/cerebral-palsy/personal-care-needs-bathr...

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

    59 reactions 35 comments