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How do you support your mental health while managing your A1AT?

It’s often not talked about how much chronic illnesses like A1AT can impact your mental and emotional well-being. We know how challenging it can be to balance your condition along with your other responsibilities, while also finding time to take care of your mental health. Having a rare disease can lead to feelings of isolation, depression, and anxiety as well.

But you don’t have to go through this alone. Maybe you’ve found a support group, or perhaps you’ve started taking medication or practicing mindfulness techniques. Whatever you do to support your mental health, share in the comments below. ⬇️

#RareDisease #A1TA #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

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Take our Mighty survey on Alzheimer’s disease!

Are you a caregiver to someone with Alzheimer’s? Do you have a caregiver in the family instead? Are you diagnosed with Alzheimer’s yourself?

This survey is being conducted by The Mighty on behalf of a pharmaceutical partner who is developing a story about caregiving for patients with Alzheimer’s. We are looking for perspectives from caregivers themselves as well as patients and other loved ones. We will begin by asking you for some background information followed by questions about your experiences being cared for as a person with Alzheimer’s or with caregiving.

✏️ Take the survey here: survey.alchemer.com/s3/7533484/Caregiver-Survey

⏰ P.S. This survey will take about 5 minutes to complete and can only be taken once. Those who qualify and fully complete the survey will have a chance to be entered into a raffle for 1 of 4 Amazon gift cards in the amount of $25 USD!

#AlzheimersDisease #Dementia #Caregiving #Parenting #MentalHealth #CheckInWithMe #ParkinsonsDisease

Caregiver Survey

Caregiver Survey.
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Swallowing and speech problems are common with MS — How to manage them?

Swallowing is something that's so automatic, we take it for granted. Until something changes. Dr. Marissa Barrera joins me to discuss common MS-related speech & swallowing issues -- and what you can do to improve them.

twitter.com/RealTalkMS_jon/status/1688211074464493568

#SwallowingProblems #speech #MightyTogether #MultipleSclerosis #Disability #ChronicIllness #newlydiagnosed #Caregiving #Fatigue

Jon Strum on X

https://t.co/b4RCjfDnuY Swallowing is something that's so automatic, we take it for granted. Until something changes. Dr. Marissa Barrera joins me to discuss common MS-related speech & swallowing issues -- and what you can do to improve them. On RealTalk MS #MultipleSclerosis
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How can others show up for you on a bad health day?

We’ve probably all heard this (or a similar) well-meaning question at least once along our health journey: “How can I help?” While there may be many times you want someone to just do — instead of asking you what they should do — it can also be incredibly helpful to tell (or show) someone in your life how they can best show up for you.

Not only will it help you on a bad health day, but it has the power to improve your overall relationships with your loved ones. So, if someone asks, how can others show up for you on a bad health day?

#MightyMinute #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #Trauma #Fibromyalgia #Cancer #Caregiving #CheckInWithMe

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What is the most rewarding part about being a caregiver?

Being a caregiver can be a challenging but rewarding responsibility. Caregivers play a huge role in the health and wellness of not only their own families and jobs, but also in greater society. We are grateful to have such compassionate and empathetic people in our Mighty community! 💐

What do you find to be the most rewarding part about being a caregiver?

💜 P.S. If your knee-jerk reaction to this prompt was "nothing," here’s a Mighty story about combating compassion fatigue that might be helpful: themighty.com/topic/general-parenting/combat-compassion-fati...

#Caregiving #Caregiver #MentalHealth #Depression #Anxiety #CheckInWithMe #Fibromyalgia #Migraine #AlzheimersDisease #Cancer #MultipleSclerosis #Disability #ChronicPain #ChronicIllness #RareDisease

How Parents and Caregivers Can Combat Compassion Fatigue

"These strategies work best when done regularly."
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What is the most rewarding part about being a caregiver?

Being a caregiver can be a challenging but rewarding responsibility. Caregivers play a huge role in the health and wellness of not only their own families and jobs, but also in greater society. We are grateful to have such compassionate and empathetic people in our Mighty community! 💐

What do you find to be the most rewarding part about being a caregiver?

💜 P.S. If your knee-jerk reaction to this prompt was "nothing," here’s a Mighty story about combating compassion fatigue that might be helpful: themighty.com/topic/general-parenting/combat-compassion-fati...

#Caregiving #Caregiver #MentalHealth #Depression #Anxiety #CheckInWithMe #Fibromyalgia #Migraine #AlzheimersDisease #Cancer #MultipleSclerosis #Disability #ChronicPain #ChronicIllness #RareDisease

How Parents and Caregivers Can Combat Compassion Fatigue

"These strategies work best when done regularly."
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What do you wish you had more of this week?

Take what you need, Mighty fam!

🔋 Energy

⏰ Time

💖 Support

💃 Fun

📱 Connection

😴 Rest

📣 Encouragement

☀️ Good weather

✌️ Peace

🧘 Pain-free moments

⚖️ Stability

🙌 Motivation

📚 Distraction

💪 Strength

🤞 Patience

🍀 Luck

#RareDisease #A1TA #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

(edited)
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