Caregiving

Living with a chronic health condition can mean redefining and reflecting on your ideas of normalcy. From those days where your symptoms seem overbearing, to the days where you're feeling "good" and ready to tackle what the days brings, normal can be relative, flexible, or even a distant memory.

When do you feel like your last "normal" day was?

📚 If you need something to read today, check out Syrena Clark's story here:
themighty.com/topic/schizoaffective-disorder/looking-back-li...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

While this story is focused on raising a child with EDS as he enters into his teenage years, the caregiving dilemmas are similar across all rare diseases.
themighty.com/topic/ehlers-danlos-syndrome/parenting-adolesc...

#Caregiving #ParentingAChildWithAGeneticCondition #EhlersDanlosSyndrome #Parenting

It’s a loaded question, we know, but what do you need right now? Here’s a way to break it down so it feels a little more approachable:

🧠 What do you need mentally? (examples: less on your to-do list, a break)

💛 What do you need emotionally? (examples: forgiveness, patience, understanding, to be loved)

🫁 What do you need physically? (examples: rest, energy, a low-pain day, a diagnosis)

#RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #SkeletalDysplasia #ChronicPain

#MultipleSclerosis #ChronicIllness #Depression #newlydiagnosed #MightyTogether #Disabilities #Caregiving #Disability #Support

Take care of you! You're important, special and worthy! 😉👍
#PTSD
#Anxiety
#Aging
#Caregiving
#menopause

#msawarenessweek #Depression #newlydiagnosed #MightyTogether #Disabilities #Caregiving #Disability #Support

There are two sides to the health-trust dynamic: when your diagnoses give you no choice but to trust people, or when you diagnoses give you every single reason to be skeptical of others.

We’re curious where you land. Is it a case by case basis? Have you learned who your true people are? Have you actually become a more trusting person through it all?

#RareDisease #Achondroplasia #SkeletalDysplasia #Dwarfism #ChronicPain #Parenting #Caregiving

When you live with a disability or have a chronic health condition, sometimes it’s necessary to ask for help. Whether it’s to assist with chores or other everyday activities or errands, relying on others is how the task gets done and thats totally OK, we definitely can relate 🙋.

What do you have to rely on others for? How does that make you feel?

P.S. There’s no shame at all in asking for the help you need.

❤️ If you’re looking for something Mighty to read on the topic, check out Larissa Martin’s experiences here:
themighty.com/topic/cerebral-palsy/personal-care-needs-bathr...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe