newlydiagnosed

Feed
Create a new post for topic
Join the Conversation on
1.9K people
0 stories
491 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 2d
See full photo

How many family caregivers do you know? It's National Family Caregivers Month

63 million are family caregivers in the U.S., and 5.0.0.4 million (8% of population) in the U.K.

Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners

#caregiving #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability

(edited)

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
Most common user reactions 3 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 4d
See full photo

I Am Mighty — Self-advocacy win = My doctors are getting a new bone density scanner accessible to me and ALL patients.

My medical group could not safely get me and other patients onto the DEXA bone scan machine, so last year I got no test. This year they wanted to send me on a 70-mile trip to the closest accessible machine. I spoke up for two years, and this year doctor backed me up, and since then I've followed up with phone calls and emails to a few administrators.

Today I received an email: They're funding an accessible bone scan machine for next year.

Groovy! I'm celebrating with a box of Cap'n Crunch Peanut Butter Crunch.

#selfadvocacy #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Most common user reactionsMost common user reactionsMost common user reactions 7 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 6d
See full photo

Veterans and Active-Duty Support Group, Nov. 20, 5 PM CT

Including vets and service members living with MS, family, friends and carepartners.

On the Third Thursday of every month.

Contacts: Deanna Deschenes, veteran.ms.group@gmail.com, 910-508-8805. Ashley Lee, ashley.lee4518@gmail.com, 517-499-6400.

Do you have any vets in your life to thank today?

#Military #Veterans #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Most common user reactions 3 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 6d
See full photo

Veterans and Active-Duty Support Group, Nov. 20, 5 PM CT

Including vets and service members living with MS, family, friends and carepartners.

On the Third Thursday of every month.

Contacts: Deanna Deschenes, veteran.ms.group@gmail.com, 910-508-8805. Ashley Lee, ashley.lee4518@gmail.com, 517-499-6400.

Do you have any vets in your life to thank today?

#Military #Veterans #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Most common user reactions 2 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1w
See full photo

Black MS Experience Summit, Nov. 12 -- Aging Well With MS: Financial Planning & Social Connections

1-4 p.m. ET – Educational Session + Conversation

featuring Anita McPherson, MS Navigator, Natl MS Society – Financial Planning; and Ricky Maxwell, Support Group Leader – Social Connections.

events.zoom.us/ev/AsDHTn9R21HoRK8BdoO1AAkL0eSwz6-8c5xdHLGGQN...

#BlackMSExperience #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Black MS Experience Summit
Most common user reactionsMost common user reactions 6 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1w
See full photo

Veterans with MS: Afghanistan, Iraq, family caregiving,, multiple sclerosis — Tracey has faced adversity

She's dealt with real lows, but with education, support and mentorship, she now works with a congressperson while speaking out and mentoring other veterans and those with MS.

Do you have a special veteran in your life? Remember to celebrate them this Nov. 11.

Here are veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support...

#veteran #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

(edited)

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
Most common user reactions 3 reactions • 1 comment
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1w
See full photo
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 2w
See full photo

"Halloween is for everybody.”

To Gina Schuh, 40, a Mesa, Arizona real estate investor and a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. “I think [the costumes] are my claim to fame."

Many of us who use mobility aids have struggled at times with others’ staring. There’s something joyous then about costuming you and your cane/chair together and encouraging even more staring but on your terms. This is me. This is my chair/cane. Also, my costume’s better than yours.

Check out the hilarious pics in the article and comments.

They Came from Planet Wheelchair! How Costuming Your Wheelch...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

They Came from Planet Wheelchair! How Costuming Your Wheelchair Adds to the Halloween Fun

Making costumes that work with a wheelchair takes creativity and commitment, but for those who go all in at Halloween, the experience also offers something unexpected: empowerment.
Most common user reactions 10 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 3w

"The point is: stop measuring your worth by what you used to do. Fatigue management isn't about hustling harder — it's about surviving smarter.

"Some days you'll feel semi-functional, and other days you'll be a human houseplant. Either way, you're doing just fine. Be gentle on yourself.:

I didn't even read this entire article yet, but that bit above is right on. We are on a marathon, not a sprint. Symptom management is not precise, but we learn as we go on.

Sorry that work has kept me away a lot lately, but I'll be back soon. Have a good weekend, all.

Sick and Tired of Being Sick and Tired: MS Fatigue

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Sick and Tired of Being Sick and Tired: MS Fatigue

MS fatigue isn’t “just being tired.” It’s neurological chaos that drains your battery faster than caffeine can load it. Spoiler: naps don’t fix this.
Most common user reactionsMost common user reactionsMost common user reactions 6 reactions
Share this post Share
Save
Post
Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 3w
See full photo

This is one I'd share with my 'younger self' (and he probably wouldn't read it)

Some really valuable MS life-skills. Things like self-advocacy and "staying active" took me years to learn.

www.healthcentral.com/condition/multiple-sclerosis/tips-for-...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Most common user reactions 5 reactions
Share this post Share
Save