newlydiagnosed

Chronic illness made me tough. But there's one friend breakup that still messes with my head, 20+ years later.

"Losing friends during illness is a painful and often unexpected experience. When you're struggling with chronic illness, disability, or long-term recovery, the people you once counted on may disappear. But why do friends abandon you when you're sick? Is it discomfort, avoidance, or something deeper?"

Why Friends Abandon You During Illness | Chronic Illness & Friendship

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Rory's sells frozen treats for pickup and ships Giant Chocolate Chip Cookies nationwide. Kandel shared her challenges and her love of baking on Christina Applegate's and Jamie-Lynn Sigler's podcast. Since then, people have been reaching out to her with their own MS stories and she feels “much less alone” in her battle with the disease.

“I had the decision to make whether I was going to hide or be open (about MS),” she said. “I worried about how it was going to affect my business, and all it’s done is create a sense of support I never could have imagined I would have."

Excerpts and story from The Press Democrat (Sonoma), photo Emma K Creative, Local baker appears on celebrity podcast to talk about living with MS

MeSsy podcast with Rory Kandel, podcasts.apple.com/us/podcast/the-beauty-of-the-invisible-di...

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

#MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

But diagnosis times are generally decreasing and treatments getting more effective.

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Here's a quick overview video from the MS Society showing some of the questions they're uncovering: Who gets affected by it? Plus ways to manage life with #MultipleSclerosis: probiotics/gut biome, diet, & more.

www.youtube.com/watch

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

One study of 32 people with #MultipleSclerosis found that the number of falls decreased nearly fourfold after participants performed therapist-led exercise sessions for seven weeks. The hourlong sessions included balance exercises that targeted core stability, multitasking, and sensory strategies. #Disability #newlydiagnosed #chronicillness

www.mymsteam.com/resources/ways-to-prevent-falls-with-ms-and...

This website has been helpful to me for understanding and building back balance and core strength. The guy is either a trainer or therapist who explains physical issues that come up a lot in MS. Then he shows exercises to help those areas, many very simple to do. (Like doing them under a blanket! Which sounds goofy, but those of us with MS are nodding right now at what a good idea it is.)

Sometimes my wife and I watch together. One thing that completely convinced us he knows his stuff was when he did a certain walk to demonstrate one of his points - and she & I looked at one another in disbelief: It was exactly how I used to get around with my cane!

Here's the YouTube channel with a lot of free vids. I'm not a subscriber:

www.youtube.com/c/TheMSGym

#multiplesclerosis #Exercise #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support

Excellent page on info and symptom management — www.nationalmssociety.org/for-professionals/for-healthcare-p...

#MultipleSclerosis #OpticNeuritis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

#MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Folks in the military get MS at higher rates than the rest of the public. The Multiple Sclerosis Research Program (MSRP) is the only federal funding for MS research and provides help to this military population — supporting the 70,000 US vets with MS.

The proposed funding in the Congressional Resolution cuts back the MSRP. Call your congressman through the Capitol Switchboard at (202) 224-3121 and tell them to restore funding.

Or join the MS Activist Network and make a difference on a number of MS-related issues. www.nationalmssociety.org/how-you-can-help/get-involved/advo...

The photo is of my great friend and person with MS, Dave Perez, lookin' sharp in 1986.

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving