myotonic dystrophy type 1

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Kiki19
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@kiki19
2y
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Kiki19
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@kiki19
MightyTogether 2y

I'm new here!

Hi, my name is Kiki19. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether

#Anxiety

#Depression

#MyotonicDystrophyType1

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elkrong
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@elkrong
RareDisease 5y

How many of you have a rare disease that so many of your friends can't remember the name of? #MyotonicMuscularDystrophy#MyotonicDystrophyType1

#RareDisease

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Leslie Krongold, Ed.D.
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Myotonic Muscular Dystrophy
8y

What You Don't See in My Life With Myotonic Dystrophy

Many of us with myotonic dystrophy type 1 (DM1) have a look. I didn’t have the look when I was first diagnosed in my mid-30s, but over the last 18 years I’ve lost facial muscle tone as well as a lot of weight. Because of my foot drop, my gait is affected. I move slower than my unaffected peers. [...]
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