myotonic dystrophy type 1

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    Kiki19
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    @kiki19
    April 2, 2022
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    Kiki19
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    @kiki19
    April 2, 2022

    I'm new here!

    Hi, my name is Kiki19. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether

    #Anxiety

    #Depression

    #MyotonicDystrophyType1

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    elkrong
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    @elkrong
    January 29, 2019

    How many of you have a rare disease that so many of your friends can't remember the name of? #MyotonicMuscularDystrophy#MyotonicDystrophyType1

    #RareDisease

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    Leslie Krongold, Ed.D.
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    Myotonic Muscular Dystrophy
    July 12, 2016

    What You Don't See in My Life With Myotonic Dystrophy

    Many of us with myotonic dystrophy type 1 (DM1) have a look. I didn’t have the look when I was first diagnosed in my mid-30s, but over the last 18 years I’ve lost facial muscle tone as well as a lot of weight. Because of my foot drop, my gait is affected. I move slower than my unaffected peers. [...]
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