Parkinson's Disease

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My 2025 in review: Health Edition

General health appointments: 5

Specialist appointments: 12 (rhuemotology, ophthalmology, podiatry, endocrinology)

Allergy: 20 appointments, 76 allergy shots

Infusion: 13 appointments, 32.5 hours sitting in the infusion center

Imaging/testing (not labs): 2 MRIs, 2 1-week long heart monitors, 1 stress test, 1 tilt table test, 1 heart ultrasound

Mobility aids: 2 mobility aids added to my daily routine

- - - - -

Pre syncope episodes: 3

Vertigo episodes: 5

Anxiety Attacks: 2

I’m proud of myself for speaking up to my doctors about a symptom I’ve experienced my whole life but no one has ever looked into. I’m proud of all the ground techniques I’ve learned this year. I’m happy I found 2 apps that help me with mental health and health record keeping. I’m also very proud of my mom who started her chronic health journey with Parkinson’s this year. She is going to speech classes and sharing information with us (family). Her new diagnosis is frustrating and exhausting but she’s learning and still doing things she loves. 2026, please be gentle to us.

#Uveitis #Glaucoma #ParkinsonsDisease #MentalHealth #Anxiety #ChronicPain #Presyncope #NeurocardiogenicSyncope #AutoimmuneDiseases

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I'm new here!

Hi, my name is lovingcaregiver. I'm here because my sister has been diagnosed with parkinsons, and my friend's son has down syndrome and multiple sclerosis.
I appreciate this community exists.

#MightyTogether

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Feeling down because of my health

I’m having a rough time friends. My psychiatrist is weaning me off my mood stabilizer because it is causing Tardive Dyskinesia, a potentially permanent movement disorder (similar to Parkinsons). Lots of antipsychotic meds cause this disorder. I’m having some withdrawal symptoms.

I’ve also been having terrible nerve pain in my back for 4 months that causes hip pain, too. Lots of mobility issues. I feel so old, but I’m not. I have good doctors, but it’s taking so long to get answers and lots of trial & error.

I’m having trouble getting through each day & have started to cry more. Is anyone dealing with health issues and having recovery? Looking for some hope.

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I'm new here!

Hi, my name is SuzyD. I'm here because I have terrible thoughts that appear. I was recently diagnosed with Parkinsons Disease

#MightyTogether

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Does anyone here have Parkinson's

I had deep brain stimulation last September. Then I developed a sore on the side of my head. When some of the electrodes show through they had to come back and do surgery again to take a little bit of the electrodes out. Thank god the surgeon found the right electrodes the 1st time. I would really like to have someone with DBS talk to me. I can talk to people on facebook but I like being able to talk on the mighty because I have I can talk to people on facebook but I like being able to talk on the mighty because I have fibromyalgia and depression

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