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How Has Your Health Changed Your Perspective In A Way Others May Not Understand

If 1000 people with your same condition where in the same room as you , I bet you would be the only one with your perspective on life “

The man at our churches end of summer party responded to me in what felt like a half disgusted , and in another way half impressed form of bewilderment .

He is the type you can tell life had not handed a kind hand to .. and in process he has hardened with the pains he has had to endure
( kind of how the same water that softens a potatoe hardens an egg )

I smiled and said to him

“ Not exactly, I’ve had the opportunity to work along side and get to know many with conditions like mine ,
Or worse .. and the perspective on life with severe illness .. it’s kind of a mixed bag “

And he could just not wrap around his head around how im so happy .. but a 28 year old , with failing health .

I tried to explain how even though im lacking in the physical health department .. I I feel like I can have joy because God has blessed in so many ways .

With a chuckle and a smile he told me he was Jewish 😂❤️.

He could not wrap his head around how I see the world .

And I could not wrap my head around how he sees the world .

Maybe God knew I needed this conversation when it seemed like all I was doing today was marinating in the frustrations of my current situation .

I even came out to our Church cook out knowing I didn’t physically feel good enough to be there , and cursing out the constant drizzle of rain .

But as it rained , 2 rainbows formed

And through my conversation with this man . The rainbows just seemed to get brighter .

As I left the party , feeling a new perspective on how to face my current dilemmas .

I couldn’t help but say a silent prayer to God thanking him for the rain in my life .

So I know just how important rainbows are . 🌈

How has your health changed your perspective in a way others may not understand? #RareDisease #CommonVariableImmuneDeficiency #MastCellActivationDisorder #Epilepsy #LungDisease #MentalHealth #MixedConnectiveTissueDiseaseMCTD #Glaucoma #Gastroparesis #chronicmigraine

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I gotta order new glasses

But my glaucoma specialist wants me to wait until after I see the neuro opthalmologist. I got my prescription written down and I've been checking out frames online. My insurance doesn't cover the frames at my opthalmologist office so I gotta look elsewhere. I was gonna order a pair online but my mom said if I can get my insurance to cover a pair I should do that instead. I'll see about what I do next month.

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Opthalmologist appointment today

I'm seeing my glaucoma specialist today. My eyes are not behaving. I've been having double vision quite a bit. My eye pressure is too high. I don't know what that means in regards to glaucoma. But I'm gonna find out today.

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Today has been a shit show

The company that was scheduled to pick me up for my appointment cancelled my ride so I had to call the main hub for my transportation to order a Lyft. That was annoying but manageable. What wasn't manageable was my doctor not doing his job. He decided to tell me to see a different doctor that I have seen in the past. He was concerned about my eye pressure being just a little high. So I have to go see the glaucoma specialist in January. I don't have glaucoma. I might have astigmatism and I have atrophy in both of my optic nerves.

I was supposed to call my insurance for a ride home so I did. And I couldn't reach a human being. I was on hold for over 15 minutes. I ended up just ordering my own Lyft out of my own pocket. I was so angry and frustrated with the transportation company. I still am but I had therapy today at 3pm.

I had a panic attack when I got home. It was the same as the last few times. I took a shower and I felt a little bit better. I'm trying to figure out what is triggering my panic attacks but so far I don't know.

We talked about my feelings about my experience. We also talked about the panic attack. He made a suggestion for eating at the kitchen table from now on. I've been eating and smoking on my couch and bed. I'm gonna try to be more mindful of what I do. I gotta get the panic attacks under control.

He asked me why I haven't been using the table and I said I haven't had a table for over 8 years and I don't know how to start using it now. We talked about how to do it and it seems like it would be easier to do than I thought. But time will tell.

#CheckInWithMe

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Possible MS patient?

Hi, my name is Mandy I am 34, and a kindergarten teacher. I have been having crazy random symptoms or things happening to me for the last few years and nobody seems to be able to explain it. I've been overlooked based on my age many times. I got a pacemaker at 30 for SSS, hypothyroidism, alpha-gal syndrome, lyme disease, flushing (that derm determined is rosacea), blepharospams where my eyes won't open in the morning and as of yesterday I have been diagnosed with glaucoma and thinning of my RNFL. My optometrist wants me to have a doctor screen for MS as a possible cause for my varying symptoms. My last dr... wouldn't take me seriously and when some lab was 1 point in the green, would call it normal and dismiss me without helping me continue to find out what was going on. It has been very stressful and caused a lot of anxiety and doubt in myself. I just wondered what other peoples journeys have been and what kinds of symptoms you have. I wrote out two pages of random symptoms I've been having and feel kind of crazy. Any support, or insight is so appreciated.

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I'm new here!

Hi, my name is MooseyMandy. I'm here because my optometrist said my rnfl was thinning progressively, I am 34 and just diagnosed with glaucoma. He wants me to get checked for MS. I would like to see or hear about other peoples experiences, symptoms and process through this kind of diagnosis.

#MightyTogether

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October is Blindness Awareness Month

Did you know keeping up with your eye exams can help prevent blindness? When detected early, diseases such as glaucoma and macular degeneration can be treated and the progression can be slowed down or even stopped before irreversible blindness occurs. #Blindness #Glaucoma #Disability #MightyTogether

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Does your mental health affect your vision?

People with existing mental health conditions are more likely to develop vision issues. People with bipolar disorder or schizophrenia are more likely to develop glaucoma later in life. People with major depressive disorder have a greater risk for glaucoma and dry-eye syndrome and age-related macular degeneration. #MentalHealth #Anxiety #Depression #BorderlinePersonalityDisorder #BipolarDisorder #Schizophrenia

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I'm new here!

Hi, my name is Carol51. I'm here because

I was diagnosed with fibromyalgia (finally) about 20 years ago, though I’m pretty I’ve had it since childhood. I also have medullary sponge kidney (my body is constantly forming kidney stones), degenerative disc disease, glaucoma and osteo pirosis and osteo arthritis.

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Uveitis

Hey, nice to see an ankspond community- we're a special bag of bugs alright, lol.
I've had AS since childhood but was diagnosed with hysteria. eventually I put them straight. have had diagnosis since.my 2 girls have early onset AS.
I have complications with iritis, uveitis, vitreitis, is there anyone else dealing with losing their sight? I am struggling. the health system here is biased, broken&beyond a joke. all eye pressure drops have preservative. I'm supposed to take 17 topical applications a day of various atm. waiting for surgery for pressure.I'm allergic to all the pressure med preservatives. I have developed glaucoma in rt eye, which is also a mess from wrong lense in 2009 surgery. my eyes struggle from regular flares & meds.sore, dry, irritated. looking for natural relief tips? and anyone who also has eye AS as complication?would love to have a mutual b*tching sesh lol!

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