Glaucoma

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    I'm new here!

    Hi, my name is 2680. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether

    #Glaucoma

    Post

    Getting a lens put in your eye

    When I was in elementary I had cataract surgery done on both eyes. During this time the doctors knew if a lens was put back in my eyes cataracts would start to grow again. Now, 10+ years down the line I’m wondering has anyone had a lens put in years after not having one? I’m just looking to see if it has been done has it been done successfully? #question #Surgery #EyeSurgery #Glaucoma

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    #MentalHealth and #ChronicIllness

    Doesn’t My 4 year old niece take the most flattering pictures of me 🤣👌🏻❤️.

    I’ve said it before , and I’ll say it again .
    Starting counciling was one of the best choices I have ever made .
    I don’t struggle with chronic depression or chronic anxiety .

    But . Physical illness, does not just affect you physically .
    It affects every aspect of your life ,
    It affects your relationships with people , your perspective on your self , and how you interact with the world .

    I was honestly nervous to do my counciling appointment today .

    ( because well Lately in my life I’m just nervous . All the Dang time 🤣😅)

    And I thought I completely and utterly FAILED the assignment he gave me .
    But talking to him I did exactly what he wanted me to do .

    Funny enough a lot of today was spent talking about perfectionism .

    He doesn’t know things just thought of how I have personally grown FINALLY making my mental health a priority.

    Finally not just throwing traumas in my life to the side with a laugh .
    But ACTUALLY having to deal with them .

    And .. well I’m still an absolute train wreck of a human 🤣 .

    But I’ve come so dang far .

    And it hasn’t been easy .

    I mean I tell you all ALOT.
    But not every battle is shared on social media .

    And I’m naturally more of a private person by nature .

    But it has been WORK , and continues to be work to improve some of the things I struggle with.

    But the work has been worth it .

    I’m SO grateful that I have really good medical insurance that makes this possible.

    And I honestly wish in America we took #MentalHealth more seriously.

    Because it truly does impact everything.
    It’s just important as physical health ❤️.

    If you have the opportunity to do counciling while you are battling illness .

    I highly recommend it .

    #smileon🐷 #mightytogether #ChronicIllness #MentalHealth #mentalhealthmatters #counciling #autoimmunedisease #cvid #uctd #glaucoma #gp #lungdisease

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    When is it ok to give up?

    TW: depression, trauma, terminal illness *super long vent, sorry*

    I feel like this #Cancer is taking everything away from me, what little I had left. Prior to diagnosis in April, I had to quit my job for health reasons and filed for disability (medically approved now but for the cancer but still no final word from them). I was struggling with #CPTSD , #MajorDepressiveDisorder , #ObsessiveCompulsiveDisorder , #Fibromyalgia , #PsoriaticArthritis , #Asthma , #sjogrens , #SevereAllergies , #Bursitis , #PolycysticOvarySyndrome , #DiabetesType2 and a bunch of other complications from all of these things plus a few more diagnosed illnesses. All whilst trying to get a divorce (still trying to get it).

    So in April I go to the ER thinking Covid. Nope. Lungs both full of fluid from #CongestiveHeartFailure . Apparently I had a heart attack and didn’t notice as I was told a lot of chronic pain patients don’t because we’re used to random severe pain. Also they found a grapefruit sized tumor on my liver, stage 4 #BileDuctCancer in my #liver and it had spread to some lymph nodes on my abdomen. I have no medical insurance.

    So now here we are in July and I’ve been in chemo since May. I’ve had a few minor surgeries/procedures and I have to have my port removed/replaced which is why I’ve been in pain there since May.

    Now it turns out on top of mouth problems, fatigue, low white blood cells as side effect to my #Chemotherapy , I have been diagnosed with #ChemotherapyinducedPeripheralNeuropathy which has been the most painful experience of my life. They said it was a severe case.

    They also think either a #cateract or #Glaucoma in my left eye which is why my eye hurts and I can barely see. Either could leave me blind. I’m an artist by trade, I’ve won awards for my cakes and every one of my hobbies is art/craft/visual. Now I can’t tolerate any amount of light without it being painful and I can’t do anything with my hands without being in major pain from the neuropathy. I can’t enjoy anything or do anything for myself, already fell down the stairs last week because of my vision/neuropathy combo.

    Also, I’ve had to get 2 Neupogen (helps bone marrow make white blood cells) shots this weekend and like every other week. The bone pain makes my body shake uncontrollably and nothing will help it.

    All this has led to me being a walking pharmaceutical cocktail and the side effects are brutal. I picked up a new med today, tonight my little medicine bag overflowed and I broke down. I just turned 40 in May. I have more meds than years on this earth. I have a terminal illness that makes me ineligible for the heart transplant that I need but im technically not dying according to my oncologist.

    So at what point is it ok to say I’ve done enough, I’m tired and I give up, I want out? Daily living is torture and there’s no joy.

    Thank you if you made it this far!

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    Intro to a newbie

    Hi, I am new to the group and new to sharing my experiences, even though I was first diagnosed with depression at 18. Thirty two years later I am just finding the courage to speak to others, comment on posts, feel that I have a right to speak out. If I can help anyone with my own experience I would be over the moon. A brief overview of my diagnosis is first disabled in 2005 following a failed surgery for 2 prolapsed discs. I have degenerative disc disease, osteoarthritis, chronic pain, recurring depressive mood disorder with elements of PTSD, severe anxiety, glaucoma from a condition called plateau iris syndrome, and most recently I was diagnosed with ME in September last year (not long Covid). So that’s me as a diagnosis. It is not me as a person. I am looking forward to getting to know some of you. Feel free to comment (but please be gentle with me, the newbie). #Disability #PTSD #chronic pain #mental health #Depression

    Post

    Chasing The Art of Acceptance

    CHASING THE ART OF ACCEPTANCE

    Sure-shot dissimilarities were noticed between the last leg of these mega-events where all eyes on Google-earth were glued on fireworks demonstrated by the Big-Boys before ACCEPTING to seal their fate in 2016 vs. in 2020 when voters in the United States (US) got wooed by their 46th Presidential candidate. This article comes in the catalogue of some unpredictable moments with a touch of nostalgia as my fate was also sealed in 2016 when I anticipated to be in the best health-equity but God was using an inevitable ink-color to re-write my story.

    I still remember that evening when this foursome-effect changed it all for me being diagnosed with a rare medical condition, Isaac Syndrome (a diverse disorder as a result of muscular hyperactivity), Membranous Glomerulonephritis (a slowly progressive disease of the kidney), Lymes (a bacterial infection that can be spread to humans by infected ticks) and Glaucoma (an eye conditions that damage the optic nerve often caused by high pressure) and the journey still continues……Easy said than done but only Accepting this hurricane blowing off, my cards-of-health was the only option.

    As I grew up living alone post graduation, I realized that self-responsibility teaches some of the greatest life-lessons, realizing early not to hypnotize life as it takes seconds for the glory of the past to consign into flames of the present. After all the evil-symbolizing tantrums of life, it left me with little but no choice to accommodate and make room for the ”ACCEPTANCE PRESCRIPTION”.

    Initially it was like a grenade launched from a power-packed missile but slowly as time graduated, the ‘A’cceptance of God fishing for something new got evident as differences between the performing spirits of the past vs. demonic losses of the present bought me face-to-face with my reality and the courage to re-work on life.

    Since 2016, a 180 degree shift initiated my unworried world slip into virgin territories when the illegal immigration of health-damage set it’s foot by unleashing the changed format being the new law of life. In a jiffy my health cover seemed insufficient, travelling for leisure appeared farfetched, daily jogs & cycling diverged to weekly walks, consuming carton of medicines was a daily practice, compulsive attendance with doctors than friends was the new normal etc.. At a point in life I was scratching the surface, not peeping inside with the fear of being declared defeated but ‘A’cceptance is all about finding our own Ikigai (Japanese term, the relevance of which exaggerates to its closeness with ‘A’ccepting life situations, focusing on overall up-liftment & wellbeing to contentment).

    All of us have our unique stories:-

    Recently I took the liberty of watching ”The Pursuit of Happiness” a journey of a life-hero being homeless & then a millionaire, ‘A’ccepting failures & living through his personal catastrophe to succeed. The movie has the right ingredients in the light of performance where it took only one conversation to seal Mr. Gardner’s future forever.

    This was one of the epics that inspired my ways to challenge limits & re-discover perceptions whenever the symptom-mystery deepens enacting as a scorpion sting engulfing the relations between my bones & muscles experiencing torn pieces between frequent medicinal changes & technical comfort graph.

    1) For me Acceptance is not merely Parroting the ‘A’ word instead submit to addressing my zeal to recovery where the word zeal denotes happily agreeing to offers made by life

    2) I can feel the difference in attitude since I was touched by the art of ‘A’ as its taught me to handle uncertainties, better

    3) ‘A’ is one of the key therapies that acted like a vastu-tip sublimating my brain-waves towards the truth of the moment becoming another synonym for inner peace

    4) This art tested my tolerance to sail through ‘n’ number of undesired encounters

    5) ‘A’ is very helpful in providing a safety net defeating the intensifying peer group competition

    6) ‘A’ inched me from a black-board to a smart-board with a baseline making necessary timely amendments in my daily routine creating a fight-back aura

    7) ‘A’ is living in the moment instead of planning the future, a step forward surrendering to the omnipotent.

    CRUX :- The emotional quotient needs to be well-balanced while sailing through any crisis, if handled with ‘A’cceptance becomes a positive emotion. During my journey I realized that this art cannot percolate within us until there is a strong reflection of spirituality accompanied with significant essence of faith.

    As only a Golden vessel is equipped to hold Lion’s milk until the pH is altered similarly God chooses his special vessels to handle certain humanitarian crisis and therefore I end by urging my peer-group to create an aura around the art of ‘A’ceeptance as even these hard times of Covid recites the same mantra to the world.

    Though I admit my target & target-points shifted places but the need of the hour is to mute the background music & surrender to these new algorithms, expecting that someday these lost-dark-years would surface back in the form of wisdom. Currently the only thing that echoes my mind is to ACCCEPT the fact that I haven’t come this far for a casual walk.

    I wish to hear from my readers, if I have collided with fatigue by merely Accepting my today ??

    Question

    Neuro-ophthalmogist - which tests he can do for pain in the eyes, blurry vision, tunnel vision? Devics Disease maybe?

    I have problems with spine but I also have a symptoms of multiple sclerosis. It wasn’t confirmed because I don’t have lesions on my brain. Neurosurgeon told me I have strange looking spinal cord but non of doctors told me the details. I ware eyeglasses but in last 2 years my vision gets blurry, I had pain in my right eye, I have tunnel vision. I don’t have glaucoma. My neuro - ophthalmologist will admit me to hospital for several test. Does anyone have any suggestions, personal experience? #VisionLoss #eyehealth #MultipleSclerosis #ChronicPain #PinchedNerve #Disability #DevicsDisease