Hey all. I have been diagnosed with cardiomyopathy and heart failure. I already had SVT and afib. We have been trying to get meds right, of course in addition to lifestyle. Has anyone taken Entresto? Thanks in advance for the help!
#heart failure #Cardiomyopathy #chronicallyillandstrong #chronicillnesswarrior #patientpatient #heartpatient
So my mom doesn't get the world of chronic illness. Which is so odd because my dad is chronically ill and has been for sometime, and her sister's have some pretty tough health issues as well and have also suffered for a while. I thought she'd get it as I've gotten worse but she is not as supportive as I thought, nor does she get it or even try to sometimes. Today is a red day for me, and she calls for our daily chat. I'm not saying much and finally she says "well what is wrong with you???" I try to explain I'm in excruciating pain and exhausted and that will take the life out of you. I also told her that my vocal cord issues were acting up as well. She says well okay. We hang up and I text her that I won't apologize for how I feel butbut if Iwas short you know why. This is my reality. You can't pray it away or any of that. Just pray my strength for this journey. She says okay. I get so frustrated with her because it has been 5 years now. I try to educate her and she is so resistant but wonders why I'm tired and cranky all the time. Well ma'am if you took time to really listen learn, maybe I'd be less frustrated and you could be more sympathetic. I will say, she is better than she was this time last year. But as for full on understanding, she has a long way to go. Maybe we will get there. I can dream right??? #chronicallyillandstrong #endowarrior #heartpatient #Migraines #patientpatient
So I received a response today in discussing #ChronicIllness and it went to the effect of you will never have good days. And that kind of offput me. When I was diagnosed with #Endometriosis 5 years ago and realized my new normal, I adjusted what was a good day, a fair day, and rest day and just a really bad day. I came to terms with redefining what my life looked like. which I knew was important if I was going to ever function. As years have gone by, I have had to adjust more because of more diagnoses and restrictions. However, I always knew deep down inside that I still had purpose and a great life to lead, it just looks different than what may be considered good or normal to others. I have been in support groups where the tone is negative, and because of many experiences, I learned that that doesn't help me thrive. And I think that is what we sometimes forget as warriors, we are still human and we can still thrive. Yes, life is different but you can adapt as much as you can. I am not sunshine and rose petals every day, but I realize one thing: I am a thriver and my experiences have led my walk and that we are responsible for how we adapt and how we react to our new lives. As I say all the time, I am chronically ill, not dead. #chronicallyillandstrong #chronicillnesswarrior #patientpatient #heartpatient #endowarrior #autoimmunelife
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