Hi, my name is 19nier. I'm here because
I got diagnosed with peripartum cardiomyopathy, I am a month post partum and also recently lost my mother to cancer 2 weeks before my son was born. #MightyTogether #HeartDisease
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A Heart Set Free by Melanie R.
A great winded rhythm underway; prickled readiness underfoot. A mission called into blended shadows- undulate in shades of smoke as hope glimmers.
Drumming a cleared path of yearning webs for justice. Where a brightened light pierced an open door. Candlelit wonders motion the clouded poufs to view a saved heart…set free.
Chosen and preserved.
A living hope guarded in faith.
Examined, mourned, pressed, scarred, shattered,…repaired;
never faltered, never failed.
Search me, Oh Lord, and know my heart.
Lead me through the everlasting way.
I’ve been tested, and tried…know I am true-know my heart. You are my indwelled heart pounding through our shared domain. Monitor my steadfast rhythm and the intricate design of each ticking; of each pulsed beat transformed by this undeniable salvation.
Echoed chambers of my heart.
Centered rhythm deepest part.
Search me, Lord, and see I’m true-
slated clean-each beat for you.
Five waves count each beat’s refrain, monitored life both joy and pain.
Set each P, Q, R, S, T…
My heart declares my love for thee.
And if one day my chambers still,
my heart set free-
fulfilled Your Will.
Psalm 139:23
Search me Oh God, and know my heart.
Matthew 6:21
For where your treasure is, there your heart will be.
Proverbs 3:5
Trust in The Lord with all your heart, and lean not unto thine own understanding.
The Lord searches the heart.
Give God your whole heart. Stay strong Mighty Warriors!
#ChronicIllness #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #Cardiomyopathy #RareDisease #ChronicPain #InsideTheMighty #PrimaryImmunodeficiency #ChronicInflammatoryDemyelinatingPolyneuropathy #RheumatoidArthritis #HypothyroidismUnderactiveThyroidDisease
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Hello. I'm in a weird place. I respond when I can as my phone is on its last legs and my tablet died. I can't replace either at the current time due to present circumstances. This is a problem as my tablet and phone are my only windows to the world. With ESR cardiomyopathy a knee needing replacement and 7 spinal surgeries and dialysis I cant get outside much. This has aggravated my depression and anxiety. Just sitting inside looking at walls and ceiling is making what little life I had unbearable. If you have any unneeded tablets I'd be grateful. So if I don't answer immediately my phone has decided to be on strike that particular day or I'm not feeling well. I hope you are well. Prayers and blessings.
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Hi, my name is mItymeee23. I've been diagnosed with Cardiomyopathy and Polmonary Embolism #MightyTogether
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Hi, my name is MummyTut82. I've been diagnosed with so many illnesses diseases that at age 40 and Mum of 3 darling children, I have lost all quality of life and I'm scared of myself honestly.. For I can't keep just 'existing' like this and I know it is destroying my children's hearts watching me so sick ... it breaks me more every minute coz I honestly believe they shouldn't have to see Mummy this way anymore it isn't fair on them... #icantdothis😮💨 #heartbroken💔 #idontwanttoleavemybabies😪 #itisjustfartoomuchtohandle💔
#MightyTogether #PTSD #Fibromyalgia #Anxiety #Depression #ADHD #OCD #Grief #Leukemia #FunctionalMovementDisorder #DiabetesType2 #Cancer #RheumatoidArthritis #OpticNeuritis #NeurocardiogenicSyncope #DemyelinatingNeuropathies #CeliacDisease #InappropriateSinusTachycardia #congenitalheartdefect/Disease #BirthDefect #IronDeficiencyAnemia #Arthritis #ArteriovenousMalformation #SuicidalThoughts #chronicactiveepstein-BarrVirus #ChronicIllness #polycysticovarysyndrome(PCOS) #Hyperparathyroidism #ThyroidCancer #Cardiomyopathy #CardiovascularDisease #CongenitalVascularCavernousMalformations
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I recently found out that I am four years into remission from non Hodgkins lymphoma. When I heard this news my heart sank. I so much wanted to hear the opposite. I nearly didn't have chemotherapy because of my self loathing and the fact that I have already had cancer, cardiomyopathy and two major suicide attempts and other stuff. Of the few friends I have left hardly any will understand. But I can't imagine continuing in this life for another ten to twenty plus years.
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Hi, my name is billp. I'm here because I've been having a hard time trying to find friends online, especially women interested in dating, because once they discover I'm mildly disabled from peripheral neuropathy and chronic pain managed with pain meds and have been diagnosed with terminal congestive/systolic heart failure with only a couple years to live without a transplant, they don't want anything to do with me.
#MightyTogether #CongenitalHeartDefect /Disease#HeartDisease #Cardiomyopathy
These cats are inseperable and do everything together. The black one has that feline cardiomyopathy and probably won't live for long. It will be sad for little Pickles, the orange cat. He will miss his friend.
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Hi, my name is TeresaEDSLouisiana. I’m new to The Mighty and look forward to sharing my story.
#CongenitalHeartDefect /Disease
So insomnia + painsomnia - sleeping meds - pain meds + an uncomfortable sleeping environment = nightly anxiety attacks induced by pain. I can’t take it anymore, it’s bringing back the #SuicidalIdeation and I’m seriously afraid that I won’t be able to fight it.
I’ve been off all mental health and pain meds since early August. They took me off of everything cold turkey in hospital because of my heart condition, #Cardiomyopathy and a low ejection fraction. Now I’m only allowed acetaminophen for pain but sparingly and Xanex for panic attacks but only if I absolutely have to however I can’t take it when I really need it because I have to take a heart medicine at bedtime and the two can’t mix. I have several #ChronicPain conditions as well as #MajorDepression , #ObsessiveCompulsiveDisorder and #CPTSD as well as #Cancer and my heart condition. It makes it really impossible to be able to look past the intense pain (6-8 during the day and usually a 9-10 at night now). It doesn’t help that my heart medicine flares up my #Asthma and #Anxiety so on top of being in pain I’m wheezing and coughing and freaking out over the wheezing and coughing.
I’m having surgery next week for a port removal and replacement. I know last time the pain was insane and that was on meds and before the horrible neuropathy that chemo gave me. I know if I can’t figure out a way to get more comfortable in bed at night so I can rest then there’s no way I’ll make it through all that.
So what do you do to make yourself as comfortable as possible in bed? What brands of pillows do you recommend? Is there a tea you drink?
I have a cooling memory foam topper on my pillow top mattress. I use Sertra cooling pillows and cooling/moisture wicking sheets (my stupid #Diabetes makes my sugars drop in my sleep and I get soaking wet cold sweats nightly). I also have a wedge pillow I use sometimes for extra support. I’m a side sleeper because of my asthma but the #Fibromyalgia and #Bursitis make that really hard so I have to switch sides constantly because of the pain. Also chronic #sinusitis acting up for the win. Constantly have a #Migraine too.
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