Progressive Supranuclear Palsy

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Progressive Supranuclear Palsy
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    I am a 54 year old woman with multiple issues going on in her life. I fight depression and anxiety everyday like many of you. I also have ADD, dyslexia, executive functioning/working memory problems, and language disabilities.
    I also have hormonal issues and other medical diagnoses that all mesh together to make physical/mental therapies and diagnoses difficult. I am currently living with my aging parents. My 82 yr. old mother is fighting a Parkinson’s related disease called PSP (Progressive Supranuclear Palsy) which is a more aggressive form (most people live up to 6-7 years after onset). She is at midpoint now requiring 24 hour by 7 support. I have had questions surrounding my career choice of which I now have a Masters degree in the field.
    Now with COVID my life is like a 1000 piece puzzle. I never know what to work on or call my diagnoses because the doctors don’t always know either but they all agree there is something there. I put this out there to:
    1. Knowledge is power. You can’t fix what you don’t know.
    2. To empower myself in sharing.
    3. To help people in my age group with conversations and attention.
    4.to get information from others.
    5. To help professionals hear about real situations to find real solutions.
    6. To help non-believers, believe.

    Silencers make the situation of many worse not better.

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    Do you have PSP or know someone who does? We need your help!

    PSP friends - this is a rare one and I've had a request to ask others to chime in if you have this or think you do so that more can connect on this disease.

    Progressive supranuclear palsy is a rare brain disorder that affects movement, balance, speech, swallowing, vision, mood, behavior and thinking.

    Basically, the nerve cells are damaged in the brain. It sounds simliar to parkinsons in some ways, but of course, not the same.

    There is no effective treatment for this, and only symptom management.

    👉Do you have any suggestions on how to handle this?!

    In the functional medicine realm, since this targets the nerves within the brain, it seems as though these may be worth looking into with a doctor who practices functional medicine.

    1. Chelation IVs - many people, especially baby boomer generation have heavy metal toxicity. This can be confirmed through doctor's who practice functional medicine. They'll request a test that tests for Mercury, cadmium, copper, and 10 others via a hair sample. Chelation is when the substance in the IVs attract metals stored in your body and pull it out from your blood, fat cells, and hiding in your organs.

    2. Medical marijuana - this is known to help many neurological based diseases like MS, Parkinson's and so forth. Getting the right strain and dose takes time. In our body, we have an endocannabinoid system, how well it works depends on what many factors. The cannabinoids which are THC, CBD, CBN(etc), are what our body recognizes via the endocannabinoid system.

    3. Lions mane mushrooms (high quality supplement only. These mushrooms are in capsules. Mushroom wisdom is an awesome company, expensive, but worth it!

    4.. Low Dose Naltrexone - check out www.lowdosenaltrexone.org for more information!

    #Disability
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    #ParkinsonsDisease
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