brain fog

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Mighty Leader

Nina

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@sparklywartanks

CheckInWithMe 4w

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Story of the Week: What do you want others to know about living with chronic pain?

Living with chronic pain affects every aspect of life, including sleep, physical activity, relationships, social interactions, work, focus, and mental health.

What has your experience with chronic pain been like? What do you wish others understood?

📖 Need some insight on the topic? Check out our story of the week here:
7 Things Healthy People Need to Know to Understand the 'Pain...

#CheckInWithMe #Fibromyalgia #ChronicPain #ChronicIllness #RareDisease #Spoonie #BrainFog #MentalHealth #Migraine #Anxiety #Depression #ChronicFatigue #MastCellActivationDisorder #Lupus #Cancer #RheumatoidArthritis #ComplexRegionalPainSyndrome #MultipleSclerosis #Endometriosis

7 Things Healthy People Need to Know to Understand the 'Pain Experience'

"Chronic pain changes everything in life, most entirely invisible to outsiders."

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FibroMomma

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@redheadedwarrior

ChronicFatigue 11mo

Hitting a wall.

How many of you have had to quit school due to chronic health problems?

WARNING ⚠️ the rest of this post is lengthy!!!

I have been working on my bachelors in community health through online courses (one class at a time) for the past seven years. A few months prior to beginning my degree program I was diagnosed with fibromyalgia following a car wreck that required a neck fusion surgery. From there my chronic illness diagnoses have continued to accumulate. I now have chronic migraine, endometriosis, interstitial cystitis, chronic fatigue, degenerative disc disease, tinnitus, IBS, C-PTSD, and a long list of food and environmental allergies. I have 2 sons and 2 daughters. My youngest son (15yr) has serious ADHD. Both of my daughters (21yr & 20yr) have long lists of chronic health conditions. They live with me and probably will for their whole lives due to the impact of the disability that their issues cause. Neither girl can drive either. The oldest has Asperger’s, fibromyalgia, Ehlers Danlos, ADHD, C-PTSD, severe anxiety, depression, Eosinophilic Esophagitis, IBS, mild Ulcerative Colitis, numerous food allergies and possible Borderline Personality Disorder. The youngest has Chronic Fatigue Syndrome, Dysautonomia, C-PTSD, depression, anxiety, disordered eating, restless legs, Eosinophilic Esophagitis, constant skin picking, and numerous food allergies. All three of us girls and my youngest boy has severe sleeping problems. Me and both my girls have applied for and been turned down for disability. Up until 2022 I had been a stay-at-home, homeschooling mom. At the beginning of 2022 me and my 2 girls and youngest son ( oldest son is in college and pretty much living on his own) loaded up and left my narcissistic abusive husband of 16 yrs. and began to start over in a tiny apartment in a small town with me re-entering the work force and starting a full time job in retail and officially divorcing him at the end of that year. My youngest daughter has since tried to commit suicide twice and my oldest has had several mental breaks that were extremely hard to deal with. Throughout the whole time I have continued with my school classes. Determined to finish what I started. However, my health has continued to decline from all my illnesses and the stress of my life and it is taking a toll on my cognitive abilities. I took a 8 month break from my classes but have started back recently and I’m struggling to keep up with the assignments and not learning as I know I should be. I only have 6 classes left, that will take me the next year to complete due to the schedule I’m following, but my body, mind and finances seem to be making it extremely hard for me to keep going. I’m really considering quitting, but feel like I would be a real failure if I didn’t finish it.
If you read all this……Thank you! 🙂 #ChronicFatigue
#Fibromyalgia
# Migraine
#IBS
#InterstitialCystitis
#ChronicPain
#EhlersDanlos
#c -PTSD
#Autism
#Anxiety
#Depression
##BrainFog

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sleeplesswarrior

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@sleeplesswarrior

fibroflare 1y

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Sending Gentle Hugs 🤗💜🦄

It’s been so long since I’ve written, but it feels like home right now. 😊

Anywho, a #fibroflare appeared out of nowhere yesterday and today it’s been #BrainFog city 🤭.
I decided to love myself more and after a whirlwind morning I’m
Sending myself and all #Spoonies this.
Live long and prosper. 🖖

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MightyTogether 1y

I'm new here!

Hi, my name is BeautifulPain. I'm here because I have Neuromyeltis Optica (NMOSD) Family of Multiple Sclerosis & MOG, I was misdiagnosed so many times and for a long time with Fibromyalgia, for almost 8+/- years my Neurologist said, I have lesions behind my left eye on my brain, neck and spinal cord, It's a rare Disease its affects your whole nervous system & I am in Chronic Pain everyday (It drives me insane) affects my sight and my mobility, I have brain fogg & fatigue every day, I have flare ups and bad days and relapses that cause then new lesions but I cope I have to, I still work as a Hairstylist full time, and I have a 2 year old and a wife, would be great if we can create more awareness for Neuromyeltis Optica, I receive IV treatments and my chronic medication, anyone out there with Neuromyelitis Optica?

#MightyTogether #MultipleSclerosis #createawareness #NeuromyelitisOptica #painwarrior #RareDisease #ChronicFatigue #BrainFog

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Group Leader

Take a Mighty Minute

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@takeamightyminute

Mighty Minute 1y

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What are your earliest memories?

One thing Mighty staffer @xokat has always found fascinating is how early people remember their childhoods and how clear those memories are. As you get older, health conditions can definitely impact your memory — from trauma to depression, TBIs to chronic pain.

How far back in your life can you remember? Is there a particular moment or memory that stands out?

#CheckInWithMe #MightyMinute #MentalHealth #Anxiety #Depression #ChronicPain #Trauma #PTSD #RareDisease #Disability #ChronicIllness #BrainFog

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Group Leader

Moshe Adler

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@moshe222mhc

Multiple Health Challenges 1y

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What are hobbies and healthy activities that have helped your mental health?

Typically when people think of self-care, they think of: getting enough sleep, exercising, eating well, taking a nap, meditating, taking a bath or shower, or even going to a spa. But what if a rock concert is more your speed? Or Rockclimbing? Bowling? Backpacking? Fishing? Gardening? Deep cleaning? We are each our own person. What works for you may not work for others, or vice versa. There is no “right” answer as to what hobbies can and do improve our mental health. By sharing what helps you, hopefully other members will be inspired to explore those or other new activities!

I like listening to or making music on my drum. Recently I’ve found listening to podcasts can be very enthralling…entertaining and even educating! At the beginning of Covid Stay at Home I got some Legos and making things with them was fun and a great distraction…so it was a new creative hobby …and using colored pencils filling in mandalas and tattoo flash in adult coloring books (yes, they have these! They can be quite intricate and challenging …or simple) These were surprisingly therapuetc and calming! I love taking the time to create something, finish it, step back, and see the end result of my efforts. It can make me feel really good…proud, accomplished and empowered!

What have you found works for you?

Here’s a quick check-in for if you’re feeling self-conscious about your preferences…

Q: Does [insert hobby here] help you when you’re down?
A: Yes!

Conclusion: Then you’re doing it right, my friends! I am so glad you have found things that help you. Keep exploring to find new hobbies to expand your possibilities and new ways that you can turn to when you’re down or need a boost!

Please share those hobbies activities below — let’s see who has similar ones, or maybe ideas people haven’t thought about but will help them too!

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #Bipolar1 #Bipolar2 #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #RareDisease #HIVAIDS #PeripheralNeuropathy #BackPain #neckpain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe #mighty #MightyMinute #MightyQuestions #BrainInjury #Concussion #BrainFog #MemoryLoss

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Mighty Leader

Nina

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@sparklywartanks

Fibromyalgia 1y

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What has your experience with treatment for fibromyalgia been like?

Fibromyalgia treatment types and experiences can vary from person to person. You may have tried (or are currently on) over the counter medication like acetaminophen or prescription medication like gabapentin or Cymbalta. Or perhaps you are currently trying (or have tried) physical or occupational therapy.

What treatment experiences did you have that did not meet your expectations? In what ways, if any, have you been pleasantly surprised? Share in the comments below. ⬇️

#Fibromyalgia #ChronicPain #ChronicIllness #Spoonie #BrainFog #MentalHealth #Migraine #Anxiety #Depression #ChronicFatigue

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Tropicmanic

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@tropicmanic

Painsomnia 1y

Painsomnia strikes

It’s 6am ish where I live and been taking meds for pain and insomnia but nothing is working. I’m in agony. I’m really exhausted but my back muscles wouldn’t stop aching and spasming. Anyone out there? Idk what else to do. This happens all too often and i feel defeated. #Painsomnia #Insomnia #fibroflare #BrainFog #ChronicFatigue #Pain #MyalgicEncephalomyelitis

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Mighty Leader

Nina

•

@sparklywartanks

Fibromyalgia 1y

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What was the defining moment or incident that made you seek treatment for fibromyalgia?

Living with a health condition can be frustrating and unpredictable, even on the "good" days. When the "bad" days become more frequent — or even unbearable — and you struggle to get out of bed, are forced to cancel plans, or miss work, you might decide that you need a little extra support.

What made you seek treatment, either for the first time or after a length of time without it? Share your defining moment (or symptoms) in the comments below.

#Fibromyalgia #ChronicPain #ChronicIllness #Spoonie #BrainFog #MentalHealth #Migraine #Anxiety #Depression #ChronicFatigue