psoriaticspondylitis

Join the Conversation on
11 people
0 stories
1 post
Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
Newsletters
Don’t miss what’s new on The Mighty. We have over 20 email newsletters to choose from, from mental health to chronic illness.
Browse and Subscribe
What's New in
All
Stories
Posts
Videos
Latest
Trending
Community Voices

New Here & New to PsA & Psoriasis

Hiya! Well, I'm new to this group. I was diagnosed with PsA in January of this year, and have failed the first 2 drugs attempted. Tomorrow I start Tremfya as my 3rd, and likely final chance for treatment.

I'm a bit nervous that I'm going to react like I did to both Orencia and Otezla, and then I'm going to be left with no treatment options for it. It's already been over a decade of them telling me that I had OA, when in reality it has been #psoriaticspondylitis . The damage to my spine/neck/hips already is incredible. I've already been told that I will end up needing at least one hip replacement; they just *hope* I can hold off another 10-20 years (I was maybe 40 when they told me that).

What happens if I don't tolerate this drug? My only other potential option is to use a TNF-alpha inhibitor drug and very closely monitor my #Lupus (it's currently inactive). But there's a LOT at risk there. It's been a very long road with plenty of #negativesideeffects along the way.

#Psoriasis #PsoriaticArthritis #Anxiety #Depression #Stress #Lackofsupport #Nosupportsystem #AutoimmuneDisease #ThanksForListening

4 people are talking about this