Psoriasis

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Today

Today was good so far.
I had an appointment with my dermatologist this morning. I have a Pilar cyst on my head. They took one look at my face and scalp and were like ok cyst bad But! You have a really bad flare up of your Seb derm and just looking at it, it's bad enough that I think it might be psoriasis. It's a very severe case and it looks very painful.
We talked about the cyst and she said I have to schedule a surgery appointment for removal/biopsy. So I did that. It's gonna be the 26th.
In just under an hour I have my telehealth appointment with my neurosurgeon's nurse to discuss surgery. I'm very nervous. I mean she's got the MRI and the report. So this should be a very good appointment.
My pain earlier today was at Zed which is cuz I ate a Norco and an Ubrelvy at 9am. Unfortunately it came back and now my head is spinning. My lumbar feels like I got kicked.

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What's the most challenging part about living with an autoimmune condition?

Living with an autoimmune condition is complex, involving fluctuating and unpredictable symptoms, as well as adjusting various parts of your life to accommodate your health needs—or even getting a proper diagnosis and treatment.

What's the most challenging part about your condition?

📖 Want to read more on what Mighties have shared? Check out this story here: What Others Often Don't Understand About Autoimmune Diseases

#AutoimmuneDisease #ChronicIllness #ChronicPain #MentalHealth #CheckInWithMe #Disability #RareDisease #ChronicFatigue #Migraine #Insomnia #Fibromyalgia #HashimotosThyroiditis #GravesDisease #RheumatoidArthritis #Lupus #MultipleSclerosis #Type1Diabetes #Psoriasis #SjogrensSyndrome

What Others Often Don't Understand About Autoimmune Diseases

"Believe me when I say I would rather not be ill at all."
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Can anyone else relate?

Hey everyone!
This is my first post, I just joined today.
I am reaching out for support as I am feeling very alone in my chronic illness. I have been diagnosed with 15 chronic illnesses; 5 of which are autoimmune diseases. In my journey, I do not feel as though anyone can relate to my experience and people get overwhelmed when I talk about it. I see people’s eye get big and they get uncomfortable or just try to fix my “problems”.
I do not know anyone who has been through what I am going through, or if they are it is not at the extent that I am.
Does anyone have suggestions for this or can anyone help with some support on the matter? I have been feeling very lonely as a result.
Thank you all. ❤️ #ChronicIllness #IntracranialHypertension #exhausted #Loneliness #RheumatoidArthritis #AntiphospholipidSyndrome #Endometriosis #Adenomyosis #PolycysticOvarySyndrome #AlopeciaAreata #Psoriasis #Fibromyalgia #Lupus

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I'm new here!

Hi, my name is April. I'm here because navigating the intersection of chronic illness and complex trauma is not something anyone should do alone.

After suffering for many years, I've finally started getting answers about my physical health—I was diagnosed with psoriasis a year ago and psoriatic arthritis a few weeks ago. I'll be starting new a medication soon, and I'm hopeful for some relief.

Managing these physical diagnoses can be overwhelming, especially as a CSA and SA survivor also living with grief, PTSD, AuDHD, and many more ABCs! As an expressive arts facilitator, I've found that storytelling is my safest way to process it all.

I'm working on a series of short stories based on my lived experiences with childhood trauma. The first piece, A Childhood Secret: The Piano Lesson, was written under the pseudonym Michaela Parker—a protective mask I needed at the time. It's currently out, and readers have called it "a beautiful testimony."

Finding spaces that understand the combined physical and emotional toll this takes is so important. I look forward to connecting with you!

#MightyTogether #PsoriaticArthritis #PTSDSupportAndRecovery #PTSD

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Still spinning in control, but it’s rough..

Here it is early in the morning and I am thinking about stress, and stress triggering my immune diseases. I went to my dentist today and I asked about what the effects of micro plastics, specifically my year plus of wearing Invisalign braces, what effect that has on my auto immune system. “There aren’t any studies, so who knows,” was her response..Meanwhile, I keep thinking about triggers for autoimmune diseases, in my hyperactive autoimmune system. I think I should see an immunologist, to at least get a better understanding of it all..Also, should I be on an immunosuppressant since I have a sixth autoimmune disease diagnosis?! I’m also asking for some sound advice, from The Mighty collective. This is really bothering me..It’s making me sad and depressed. I keep thinking about my immune system attacking my body. It’s not suppose to work that hyper-vigilantly. #AutoimmuneDiseases #HashimotosThyroiditis #LichenSclerosus #Psoriasis #PsoriaticArthritis #Diabetes #lichenplanopilris #Depression

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Most common user reactionsMost common user reactionsMost common user reactions 5 reactions • 2 comments