Psoriasis

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I'm new here!

Hi, my name is April. I'm here because navigating the intersection of chronic illness and complex trauma is not something anyone should do alone.

After suffering for many years, I've finally started getting answers about my physical health—I was diagnosed with psoriasis a year ago and psoriatic arthritis a few weeks ago. I'll be starting new a medication soon, and I'm hopeful for some relief.

Managing these physical diagnoses can be overwhelming, especially as a CSA and SA survivor also living with grief, PTSD, AuDHD, and many more ABCs! As an expressive arts facilitator, I've found that storytelling is my safest way to process it all.

I'm working on a series of short stories based on my lived experiences with childhood trauma. The first piece, A Childhood Secret: The Piano Lesson, was written under the pseudonym Michaela Parker—a protective mask I needed at the time. It's currently out, and readers have called it "a beautiful testimony."

Finding spaces that understand the combined physical and emotional toll this takes is so important. I look forward to connecting with you!

#MightyTogether #PsoriaticArthritis #PTSDSupportAndRecovery #PTSD

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Still spinning in control, but it’s rough..

Here it is early in the morning and I am thinking about stress, and stress triggering my immune diseases. I went to my dentist today and I asked about what the effects of micro plastics, specifically my year plus of wearing Invisalign braces, what effect that has on my auto immune system. “There aren’t any studies, so who knows,” was her response..Meanwhile, I keep thinking about triggers for autoimmune diseases, in my hyperactive autoimmune system. I think I should see an immunologist, to at least get a better understanding of it all..Also, should I be on an immunosuppressant since I have a sixth autoimmune disease diagnosis?! I’m also asking for some sound advice, from The Mighty collective. This is really bothering me..It’s making me sad and depressed. I keep thinking about my immune system attacking my body. It’s not suppose to work that hyper-vigilantly. #AutoimmuneDiseases #HashimotosThyroiditis #LichenSclerosus #Psoriasis #PsoriaticArthritis #Diabetes #lichenplanopilris #Depression

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Yet another Autoimmune disease! #litchenplanoplaris #HashimotosThyroiditis #LichenSclerosus #Diabetes #Psoriasis #Arthritis #PTSD

I went to a new Dermotologist yesterday, after waiting five months to get the visit! I thought the skin reaction on my head was due to scalp psoriasis, but because I’m not a doctor I was unsure. It turns out I have another auto immune disorder! A rare type of skin disease (scaring alopecia) known as Lichen planopilaris.
I started crying in the Dermatologist office! Damn stressful. I have several different autoimmune diseases now! Many of them are skin related. I pictured myself bald as a cue ball and I couldn’t help but cry..
The Dermotologist said I’d had it for a while because of the front hairline loss. It’s at the rate of about a 1/4 inch a year! I swear I just noticed the odd patchy redness on my scalp, and scales at the hair follicles back in May.
I thought it was perhaps stress related.? We moved to a new community in 2023, and we were doing so much construction daily on our home.
I also thought of the stress my daughter has created within me, by estranging us three years ago. (She has stage four cancer, so I have no idea.Her cancer is definitely part of her estrangement of me and her dad.)
According to the internet:
“While stress isn't the sole cause of lichen planopilaris (LPP), it is considered a potential trigger which can exasperate the condition..”
It helps me to be able to write about this. I’m trying to clarify my feelings and emotions regarding having yet another autoimmune disease.
I told my husband I felt like my body was eating me from the inside out!

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Restarted Grad School Anndddd My Conditions Are Still Eating Me Up 😭

I restarted grad school for the nth time! I put support in place with my Fibro, FND, anxiety and depression etc. But my body and mind are still going ape sh#% 🙄

It's like my body is settling...Very, very slowly, but my course is sooo fast paced that you need to be on it from the jump.

I just don't know what to do anymore 😞 I actually am enjoying what I'm learning this time, but don't have the energy or decent enough health to manage studying it effectively.

We're only in week 2/3 and I am sooo behind, have only attended ONE class and we have mocks in a couple of weeks 🫠

I just feel like a failure. Like I'm letting down everyone supporting me, while also letting life pass me by.

#Fibromyalgia #FunctionalNeurologicalDisorder #MentalHealth #Insomnia #Anxiety #IrritableBowelSyndromeIBS #ChronicFatigue #ChronicIllness #BackPain #DepressiveDisorders #ChronicPain #Psoriasis

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This week

Monday: no appointments
Tuesday: appointment with my PCP to discuss psoriasis on my face and scalp and ears.
Wednesday: first session of PT. I've got the same girl who i had years ago.
Thursday: no appointments, gonna try to go out for coffee or lunch with Pauley.
Friday: no appointments

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My psoriasis is awful

My scalp is covered in scabs and they're bleeding. It's so itchy and I keep trying to scratch it.
I had a little panic attack today. I didn't rip off my nails, I trimmed them with nail clippers. Just my thumbs and pointer fingers. I feel like I'm asking Pauley for too much help. She hasn't washed the dishes in 4 weeks. Luckily I use paper plates. But we're running out cuz she usually uses regular plates but she doesn't want to have to wash one so she has been using the paper plates.
I can't remember if I ate today. I know, I should know if I did or not. But my back pain is making my head fuzzy. But right now my left knee hurts so much. It's pain from my hip. OMG right after typing that, I shifted my position on the couch and pain shot down my right side. My hips are throbbing. I guess the injections only gave me one month of relief. Dammit.
I'll have to call my pain doctor tomorrow and see what she says about it. I also gotta tell her about the PT that my insurance is forcing me to do. It's so exhausting.
#CheckInWithMe

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What’s a lifestyle change you’ve had to make because of your autoimmune condition?

Having an autoimmune condition can affect your life in many ways due to the unpredictability and fluctuations of symptoms, changes in energy levels, and impacts on your overall health and productivity.

What lifestyle changes have you made because of your health? Why were these changes important to you? How did making them make you feel?

#AutoimmuneDisease #ChronicIllness #ChronicPain #MentalHealth #CheckInWithMe #Disability #RareDisease #ChronicFatigue #Migraine #Insomnia #Fibromyalgia #HashimotosThyroiditis #GravesDisease #RheumatoidArthritis #Lupus #MultipleSclerosis #Type1Diabetes #Psoriasis #SjogrensSyndrome

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