Got my diagnosis today
There is a certain, tiny part of me rejoicing that I finally have an official dx. It was the same small feeling of relief & joy when my kids got their diagnoses. Like, “ok, finally. It is real.” Then there is a part of me saying, “more? Really?”
We adopted 2 kids(not related) from Russian orphanages in October 2004. I knew our 2 year old daughter had fetal alcohol syndrome. She was only 15.5 pounds & 27” tall! Our 8 month old son was 18 pounds & 24”! He was a slug but quickly learned to crawl, then walk, then spin & head bang. He has autism. Our daughter went to kindergarten in 12 month clothes, taken in so they fit! Other Dax’s are PTSD, ADHD, anxiety, depression, etc, etc. They are now teens, good teens with only small rebellion times!
I had brain surgery in March 2009 to remove a slow growing, benign inner ear tumor. I am single sided deaf. My “good” ear is losing hearing. It is now at moderate-severe loss. Brain surgery also left me very unsteady, I feel like I walk on jello on good days.
Now I have dx’s of fibromyalgia, acoustic neuroma, chronic fatigue, sad (single sided deaf), vertigo, visual auras.
#ssd #Singlesideddeaf #Fibromyalgia #Multiplediagnoses #Pain #newdiagnosis #CFS #Todaywasagoodday