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Possible MS....🫣

I was born with CP and have been dealing with that all my life. I recently got the results of an MRI and it showed lesions consistent with MS along with brain damage from CP. I'm waiting for an appointment with a neurologist and likely additional tests. As much as I just want to believe this is a fluke, it fits and even my PCP brought up some of the things that have changed with my health in the last few years.
It's scary and one of the things that concerns me most is the changes in my vision. I've always been very independent, but the idea of losing my vision terrifies me. I don't want to whine but it seems so impossible to carry two diagnoses like CP and MS.
#newdiagnosis #MultipleSclerosis #CerebralPalsy #Depression

10 reactions 3 comments

Any tipps for someone new to this community? #EhlersDanlosSyndrome #newdiagnosis #HSD #Jointpain

Hi guys! I FINALLY was able to see a rheumatologist two days ago. The two doctors were pretty confident, that I have an inherited disease of the connective tissue. The possible diagnosis EDS was mentioned as well. I will now go to a sub-specialist for further evaluations. They said even if I had no inherited disease, my joint pain could be fully explained by my hypermobility. My main problems are: -joint pain in many joints
-Hip pain
-back pain& possibly a slipping vertebrae
-getting blisters very very easily
-my skin tends to „rip off“ very easily e.g. when tying shoes just from the lace
-selective antibody deficiency (according to doctor this could be related)
-other things

Do you have any tips for me? Thanks in advance !

13 reactions 7 comments


I just got diagnosed with BPD not too long ago… not sure how to feel.. how to process it.. how to accept it..

6 reactions 1 comment

New diagnosis

Diagnosed severe ADHD at 31. I’m not sure how to handle this but, looking back, my life is starting to make so much sense. #ADHD #newdiagnosis #imtoooldforthis



I was finally given another label that seems to make more sense for what I'm experiencing. I never felt bipolar really fit me but I knew it was somewhere in that ballpark. I am just so grateful to finally have a name even though it's not official YET since I still need to complete my evaluations #CyclothymicDisorder #newdiagnosis


Adjusting to PTSD diagnosis

2 years ago, when I was 39, during the Kavanaugh hearing, memories of sexual assaults from decades ago came flooding back to me. In therapy, I was diagnosed with C-PTSD, due to consistent emotional neglect throughout my childhood. I’m still adjusting to this diagnosis. I feel isolated and freakish. Tell me—will this feeling good away? Thank you in advance :) #CPTSD #newdiagnosis #Childhoodemotionalneglect


Fear of Diagnosis or lack thereof

I've been dealing with anxiety and depression for a long time. Over the last few months, I've been dealing with some unexplained physical symptoms, and I started seeing a doctor to figure it out. My hands have been constantly swollen, and they get weak and achy with use. I tested negative for RA and the doctor thought that it was just a regular injury that needs to heal since it was brought on by a sports incident. The only problem is it's spread to my feet too and seems to be getting worse, not better. I've been crocheting more lately and had to stop because my hands were getting so swollen and weak, and I had to stop running because my feet couldn't take it. So here I am trying to juggle the anxiety of it all while also trying to control my urge to self-harm through agitation of my injuries. On the one hand, I don't want to risk permanent damage, but on the other hand, I want it to be "serious enough" to warrant a second look by the doctor. On the third hand, I'm just miserable and aggravating its beats cutting myself over the thought of never getting to do anything that I love ever again.

I go back to the doctor in a couple of days to check-in and I'm thinking about the reality of how long these things take to diagnose and sort through a proper treatment plan. I told myself when I first went in that I just needed to tell the doctor what was going on and he would figure it out easy-peasy. I'm struggling to still trust the doctor, but thinking about the long road ahead has got me struggling not to spiral. I have been making some progress with TMS for my depression so it felt like I was finally getting better, and now there is this. I just feel awful about it all.

#Depression #Anxiety #newdiagnosis #ChronicIllness #lost #Doctors


ME newbie

Today after two years trying to find a cause for extreme fatigue cognitive changes, speech,muscle spasms, dysphasia, and occasional inability to walk along w loss of muscle strength and feeling my doc decided this is the diagnosis in the absence of any other diagnosis that can be made. I’m frustrated at no treatment and curious what everyone else has tried?
#MyalgicEncephalomyelitis #newdiagnosis


What's normal? #Fibromyalgia #FamilyAndFriends #ChronicPain

I'm 21 and up until I was 20 I was under the impression that the pain I was experiencing was normal. I honestly though I was being a baby about it and that I wasn't as strong as others. Now that I have a few different diagnoses I have a clearer understanding of how not-normal I am. I'm amazed that people can go through a day and not feel pain, I'm constantly curious about what it would be like and ask questions frequently about their daily lives. I'm getting better about not pushing myself an listening to my body. I still have a long way to go but my family is making it hard. They're constantly comparing me now to how I was when I was killing myself to keep up. They don't what to hear about my pain or my limitations.
That felt really good to get out! #venting #newdiagnosis #getitoffyourchest


Did anyone else have a hard time dealing with being diagnosed with bipolar disorder? #Bipolar2Disorder #BipolarDisorder #newdiagnosis

I was recently diagnosed with Bipolar type 2 and honestly i was a little thrown off. I have dealt with mental health issues for years and i expected my doctor to say i had anxiety and send me on my way with anti- #Anxiety meds. Now i am given a diagnoses that 100% makes sense and i trust their assessment but i wasn't really ready for it. Hopefully this makes sense!