I say
"I'm hurting & don't have the energy."
They reply
"but you don't look sick.
Could you be more specific?"
"Yes, okay, I can't hold my own weight & collapse."
They say
"but you're not fat,
it must be mental,
seems like you just need to relax"

I hear their judgements,
hear their negative words,
just like their curious minds have rehearsed.
"What's wrong with her?
I don't see her curse,
She seems like she's just making herself worse."

Don't ever tell me I don't look sick,
it hurts so much, cuts too deep...
It's as if you've thrown me in a ditch.
I'm alone, misunderstood & misdiagnosed
They don't see my illness,
no matter how deep it goes.

The reality is they wouldn't be able to deal,
if they ever did see my pain,
because then,
they would know I'd never heal
& they'd finally realise just how
much I really feel.

The worst thing is I do have signs of the physical, but they are on my skin, in my organs & under clothing material.

Now when I hear
"but you don't look sick."
I smile whilst thinking
"It's none of your business,
you insensitive prick."

I hope all of you who deal with this can relate & smile about it.
Don't let it get you down.. talk about it with pride & bring awareness to their closed minds. ❤️🙏🏾

#ChronicPain #fibromaylgia #classicaledsdiagnosis #EDSAwareness #Misdiagnosis #StillUndiagnosed #RareDisease #InvisibleIllness #ChronicFatigueImmuneDeficiencyDisorder #profoundfatigue