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Liz's Bladder Cancer Story: Misdiagnosed at the Emergency Room

By Editorial Team

3 min read

Last updated: June 2020

The Editorial Team at bladdercancer.net is highlighting people in the bladder cancer community. We talked to Liz who shares how she was diagnosed with bladder cancer.

Liz looks at the camera

Liz's bladder cancer story

At around age 38, I gradually began experiencing urinary issues – urgency, increased frequency, nocturnal accidents and bladder spasms.

I presented to a local emergency room several times as I was without insurance at the time and I did not have an established PCP to go to. I was brushed off with very little testing as “Oh, you just have a UTI or bladder infection. Here’s some meds. Come back if it doesn’t go away.”

Read the rest at bladdercancer.net/living/misdiagnosis-emergency-room

#BladderCancer #Misdiagnosis #healthcarefail #healthunion #bladdercancerdotnet


Find out about bladder cancer including symptoms, diagnosis, treatment, patient stories, support, and more from a bladder cancer community perspective.

How do I talk to my Dr?

So I think I may have eds as it explains a lot of my unexplained symptoms and even some things that I've noticed my whole life but didn't know were indicators of eds.
I'm worried my Dr will dismiss my concerns because I have other health conditions triggered (at least that's how it seems) by a car accident--how do I get them to take me seriously?
Here's the things I've noticed:
1. Based on the information I can find I definitely have hypermobile joints.
2. I have always bruised easily and have so many bruises constantly that I never know where they're all from.
3. I have soft skin and have often been told I look a lot younger than I am.
4. I have multiple times where I have been told I have micro tears in muscles or tendons (in my shoulder and foot most recently).
5. And finally, I feel like this is what's missing and why I have felt unsatisfied with the other diagnoses that I have because they haven't ever explained all my symptoms the way I think eds would.

#EhlersDanlosSyndrome #Misdiagnosis #ChronicPain

24 reactions 22 comments

Misdiagnosis? #PosturalOrthostaticTachycardiaSyndrome #AnorexiaNervosa #ChronicPain #Misdiagnosis #Undiagnosed #teenager

I was recently diagnosed with POTS, after a lot of appointments, but something doesn’t feel right to me. My main symptom is pain in my legs and arms, a lot of the dizziness and lightheadedness doesn’t seem to apply to me. I also feel like my previous history with anorexia shadowed my doctors diagnosis… I trust her, and I know she is very educated. However, my gut is saying it’s something else. Does anyone have any advice? I’m also willing to talk more about my symptoms if anyone has an idea that might not be POTS…

1 reaction 2 comments
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Wellness Wednesday: Latent Autoimmune Diabetes In Adults (LADA)

For this Wellness Wednesday, I want to share my story about Latent Autoimmune Diabetes in Adults (LADA).

LADA is a slow form of type 1 diabetes that occurs after the age of 30. It is often misdiagnosed as type 2 diabetes.

It took me almost three years to receive a correct diagnosis.

Contact your healthcare professional immediately if you don't see results from managing your diabetes, your blood sugar levels are creeping up without making any changes to your current diabetes management plan or your symptoms and risk factors are consistent with LADA.

LADA: When It’s More Than Just Type 2 Diabetes


❓ Have you been tested for LADA?

Share your thoughts and experiences in the comments 👇🏾

#Diabetes #DiabetesType1 #DiabetesType2 #prediabetes #GestationalDiabetes #lada #ChronicIllness #AutoimmuneDisease #HealthCare #Misdiagnosis #Support #SupportGroups #MightyTogether

LADA: When It's More Than Type 2 Diabetes

Hear a patient leader's story with misdiagnosis & latent autoimmune diabetes in adults (LADA).
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Ever Been Misdiagnosed? #Misdiagnosis #medicalgaslighting #StiffPersonSyndrome #CommonVariableImmuneDeficiency

Just curious, have you ever been misdiagnosed?

If so, how did that label effect how you were treated by medical professionals?

Did it have any long term consequences such as difficulty obtaining disability?

Considering writing a short story on the negative impacts of being misdiagnosed. My experience led to years of delayed necessary treatments, medical gaslighting, and Inability to obtain disability.


Assumptions and mistakes in reviews and assessments

Every time I have a diagnostic assessment or a review they type up a summary of what was talked about, how my mood seemed, what I was wearing all objective versus subjective opinions. i.e. Mood: subjectively depressed, objective mood a bit anxious and low. What I never understand is why it's always the objective (psychiatrist's) view which is taken as how I am when they have just spent 1 hour with me out of the days/weeks and months I've spent LIVING the mood and that I've been there before many times and know that mood too well.
Small errors in reviews over years totally create a picture of what could be an entirely different person...I told one doctor that I'd managed to get a job but had been sacked within weeks for being unreliable (a common problem with lots of physical AND mental health issues). The summary said " C said she had recently been offered a job but had turned it down"
Every subsequent review or assessment is based upon the "experts" previous summary and even the last example about the job shows how these mistakes can alter the perception of someone. Losing a job because your health let you down AGAIN and leaves you feeling hopeless that you'll never be able. Being offered a job (especially as it was in a sector I loved) and turning it down isn't even trying and on paper or makes it seem that there's no point in psychiatric help as I'm not helping myself.
I'm still struggling for a diagnosis 6 or 7 years after first referral to the mental health team because of all these conflicting and incorrect reports.
All I really want is for them to stop batting 2 diagnoses back and forth and concentrate on the symptoms because over time left untreated these symptoms are becoming/ have become much more severe.
I don't know how it works in the US (I know there's lots of people from the US on this site) but here in the UK it's hard to even get to see a shrink and if you do you don't get to choose who or someone who specialises in your particular needs. You certainly don't get to challenge them or call them on mistakes made in what is your official mental health history and what medications are prescribed from and diagnoses formed.
If I visited a podiatrist (foot specialist) and they diagnosed laryngitis it'd be about the same in physical health
Does anyone else feel this helpless and misunderstood? In a previous post someone mentioned having to become your own doctor.. it's so true I have had to study almost enough to ACTUALLY be a shrink 🤔 I wish everyone a speedy arrival at a correct diagnosis from someone who listens and then the best treatment for YOU and your symptoms ❤️ #Misdiagnosis #reviews #incorrectasessment #symptoms


Has anyone else out there gone through the being misdiagnosed with bipolar as a teenager?

I’ve read this was a big issue in the late 90s through the mid 2000s. Possibly still is but that it exploded at that time—childhood diagnoses of bipolar disorder. Am I the only one who has gone through this? I’m curious about others stories. Did this happen to others? What was their experience like? Did it impact their relationship with their families? Do they feel it still impacts their life today? #EarlyOnsetBipolarDisorder #Misdiagnosis #MedicalTrauma