Traps

#Traps #RareDisorder #autoinflammatory #RareDisease #chronicinflamation

Well that’s a new side affect of #Stress for me my physiotherapist just told me I have overdeveloped #Traps due to Stress 😂

I have noticed there isn’t much awareness for my sons rare disease “TRAPS” I find it easier to advocate for my son for his PID easier. Than I can advocate for him having a genetic rare disease. Many people are not aware of or have never heard of TRAPS. This is including ER doctors and pediatricians and some specialist he sees. I find it a bit frustrating when I have to explain it to them and they leave it up to me to decided how he is to be treated medically.