Ataxias and Cerebellar or Spinocerebellar Degeneration

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Ataxias and Cerebellar or Spinocerebellar Degeneration
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Hi, my name is Cheral. Writer. Artist. Nature Lover. I'm here because I am always looking for relevant engaging community and information about

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Hi, my name is GG15. I’m new to The Mighty and look forward to sharing my story.






I want to be heard as if what I have to say about my back problems is as important as what the care provider, doctor, orthopedic surgeon with a medical degree is saying. Pay attention to what I want to tell you, show you and show an interest in what I want to say about what I know of my condition that you do not know because I am a new patient to you. Ask me if I am in pain and what level is the pain I am having. You did none of this with me.

You had me bend over and touch the floor with my fingertips and asked me to walk back and forth. Then sent me to X-Ray. I was trying to pull up a prior diagnosis on my phone to show you and was having connection issues and you told me to put that thing down (my phone). X-Ray comes back Spinal Stenosis....I already knew that and was trying to tell you that there was much more than that causing problems in my back and spine. You just related everything to the spinal stenosis and ordered an up to date MRI for me. You did ask me if I had considered wearing a brace?? I said no that's not what I need. You replied do you want me to send you to the Neurosurgeon? I said YES! The day before I am to have my MRI at Center for bone and joint surgery, I get a call from the Imaging dept. telling me they do not accept my insurance. Why did your staff not check to make sure my insurance would be accepted where you were sending me for an MRI? So they faxed my PCP all the information and she sent a referral to Good Samaritan Diagnostic imaging for me to get an MRI on Feb. 2nd...I'm waiting for a call that does not come. I call Good Samaritan who says they do not have a referral for me it is now Feb. 8th I call Conviva Health Care Green Acres and told them a referral for me to have an MRI was not found. So lets send it again. I call to see if it has been received.. NOPE. I said I bet they do not have the right FAX# to send it to. BINGO!! Incorrect Fax #. So my first visit with the Center for bone and joint surgery was on Jan.28th I am scheduled for my 2nd appointment and supposed to bring the disk of my MRI results with me to orthopedics at the center for bone and joint surgery today Feb. 10th at 8:30 am. I have not had my MRI yet. I want you to know that I have been and I still am experiencing excruciating unimaginable nerve ending pain which has left me unable to do my daily routine. I have no use of my left arm today and I am left handed. I have had days where I can not squat or sit down to use the toilet without screaming like a banshee. I can't sit or stand at times and the pain shifts from one area to another and at times all over from back to front head to toe unbelievable amounts of pain. I have been to urgent care who treated me as if I was just looking for a pain pill fix. First words out their mouth...we do not give pain medication. I want an anti-inflammatory injection. I do not like pain pills they make me sick. Besides it is mostly bone on bone pain. Not much in the pain med department for that. Let me guess it was because I am a walking billboard of tattoos, lol Next I end up at the emergency room, 2 people in the ER me and another girl who is just waiting for her paperwork so she can leave. Do my vitals and ask what is it you are hoping to get from us today?? I want some kind of relief and not pain pills. 2 1/2 hours later before the nurse practitioner comes out to see me. I am crying and having spasms that cause me to scream out and now there are 6 people in the ER. Anti-Inflammatory shot Muscle relaxer shot and scripts for cyclobenzaprine 10 mg and 600 mg Ibuprofen. It did not work at all. My PCP send in a script for tramadol 50 mg but only 9 pills and 6 cyclobenzaprine 10 mg pills and 400 mg Ibuprofen. Guess what it worked. She only gives me 9 tramadol and 6 muscle relaxers. PEOPLE WHAT IS WRONG WITH YOU??? I have been wanting someone to help me I am in serious pain. I can't function, I am in a helpless situation with excruciating pain. For 13 days as of today I have been crying and screaming in pain. And nobody is listening to me, patient engagement failure, staff failure on Insurance check for MRI center. Staff failure with correct fax number for MRI referral. Because of you and your failures to provide me with the care services I needed and still need but have not been given I have to continue crying and screaming in pain. I graduate in April with a Bachelors of Healthcare Management. Brush up on your skills is what you need to do. Listen to what your patient has to say! It is not okay for me to be in this much pain. Do something about it!