Essential Tremor

Join the Conversation on
Essential Tremor
1.2K people
0 stories
149 posts
  • About Essential Tremor
  • Explore Our Newsletters
  • What's New in Essential Tremor
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post
    See full photo

    Concussion, Migraines, major Balance issues, Parkinson’s, tremors, Neuropathy, shoulder/neck pain, back pain, brain fog, poor memory, and no appetite.

    (PART ONE) Please send me prayers, good vibes, healing energy and keep me in your thoughts. It would really be appreciated. It is very hard for me to ask for help…but bedrudgundly I have been parking in handicap parking spaces and recently began using a walker. To be honest I’ve had to! I had four falls at the end of December and I am constantly catching myself from falling over and having to regain my balance and re-direct myself. It is very challenging in my apartment where I have no support and very often find myself leaning against walls and always being very conscious to make slow turns part by part like a clock, and get up from a sitting position very carefully the special way I was taught.

    Just this past February I was diagnosed with Parkinson’s with Essential Tremors and balance problems, and had to stop a med I took before bed for over 10 years that may have been causing it and then without it I didn’t get a good night’s sleep for over a month and woke up 3-4 times every night.

    Two and a half months ago I had a bad fall at my mom’s, scared her half to death and injured my neck and shoulder. I had just started PT for that when I had another big fall … hard, and my head snapped back as I hit the ground. Later that week I was diagnosed with a concussion and I have seen 5 doctors and had about 10 appointments so far since then and been to a concussion clinic. Then I saw another Neurologist and he confirmed what another said…that my symptoms from my concussion likely will last up to 6 months!!! Thankfully it’s already been 6 weeks but there is 4.5 months ahead. But he was optimistic about the progression I’ve had and said I am on the Path to Recovery! But it sure is a rocky path!

    Other symptoms I have had are really bad brain fog and memory issues which have left me having to stop and take a long break to find the right words or even remember where I am in a conversation, and having to look up the spelling or meaning of simple words. These two things are very scary and embarrassing…(please continue to Part Two below)

    #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #Selflove #Selfcare #Concussion #balance #ParkinsonsDisease #EssentialTremor #PTSD #COVID19 #Migraine #MigraineBrainFog #Memory #HIVAIDS #longtermsurvivor #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #TheMighty #MightyMinute #MightyMoment #MightyTogether #DistractMe #IfYouFeelHopeless #Hope #relief #Love #PeripheralNeuropathy

    50 reactions 12 comments
    Post
    See full photo

    I DID IT.

    After 45 years of fibromyalgia, disc disease (leading to 4 spinal fusions), Arthritic changes requiring 12 major surgeries, I have given up Hydrocodone/Vicodin for good.
    I knew that I was addicted when I couldn’t imagine my life without it. My family confronted me about the lack of clarity in my speech. I had absolutely no motivation for anything.
    I feel everything coming back to life! My daughter calls me to “chit chat” again! I had no idea she had been avoiding those calls. My own home is taking shape and getting organized.
    I now treat my pain locally with heat or ice and Tylenol. I’m going to be just fine without narcotics. Has anyone else gone through this awakening?? #Fibromyalgia #Epilepsy #EssentialTremor #PTSD #Anxiety #ChronicDepression #hashimotos #AutoimmuneDisease

    1 reaction 13 comments
    Post

    I'm new here!

    Hi, my name is Cheral. Writer. Artist. Nature Lover. I'm here because I am always looking for relevant engaging community and information about

    #MightyTogether #AtaxiasAndCerebellarOrSpinocerebellarDegeneration #EssentialTremor

    1 comment
    Post
    See full photo

    Dying to be loved.

    Because of my illnesses, I tend to come off as “broken” and “unlovable” to possible partners. I only see myself alone with this mindset. Anyone out there fall in love —post diagnosis?? #chronic depression #Epilepsy #PTSD #religious trauma #EssentialTremor #Arthritis #RapeSurvivors #hashimotos #Fibromyalgia

    5 comments
    Post

    I’m new here!

    Hi, my name is Maddie. I'm here because I have a long list of medical issues and might like to share my story and see if anyone else has had anything I have and see if I can learn more. Beyond what I told The Mighty I have I also have Ataxia, Primary Sclerosing Cholongitis, and Colitis. Specifying the type of Depression I have is Episodic Depression. Also my medication causes insomnia and makes me immunocompromised. I’d really like to know how people deal with and live with an oppressed immune system. I’m currently unemployed because I’m so afr

    #MightyTogether #Anxiety #RheumatoidArthritis #Depression #PureRedCellAplasia #EssentialTremor #SpeechSoundDisorder #crohn'sDisease #MotorDisorders #PanicDisorder #ADHD

    2 comments
    Post

    Reflections on Viewing LIfe through a Skewed Lens

    Part 1 of 2 For 37 years I practiced Podiatry and for 13 years I ran a Foot and Ankle surgical residency. In my early years I had issues with #Anxiety , sleeplessness, and anger. At times I was overconfident, impish, and impulsive. However, my parents never felt it was necessary to have me evaluated by a mental health professional.

    Around my 40th birthday, my wife noticed a bizarre surge of overconfidence in my personality. I was not sleeping very well, and I was talking fast. She insisted that I see a psychiatrist. He thought my “manic” actions were consistent with #BipolarDisorder disease. The medication I was given caused some untoward complications. I found myself pacing and the medication exacerbated an existing skin condition. I became frustrated and stopped taking the medication. I was in denial. But after three weeks or so, the #Mania subsided, but it was followed by two months of severe #Depression . Eventually the depression subsided as well.

    For the next 20 years or so I consulted with psychotherapists and psychiatrists for anxiety and anger issues. When I turned sixty, I developed #EssentialTremor in my hands. Suddenly, I was faced with the reality that I would have to stop practicing medicine. Before I knew it, I was in a deep depression. Large doses of antidepressants threw me into a hypomanic state. Some of the newer generation mood stabilizers where prescribed, but I took I took them inconsistently. I understood that I was having a manic episode, but I did not perceive my actions as unusual. Eventually, I stopped taking the medication all together.

    In the blink of an eye, I bought a BMW, had an earring put in my ear, started smoking marijuana and drinking tequila. While reeling in this hypomanic state I committed domestic violence and was incarcerated for eight months. The judge agreed to release me if I could be transferred to an acceptable mental health facility. I was stable for eight months in jail before I was brought to an inpatient institution. It was nice, with colorful townhouses, a pool, and a ping-pong table. Unlike what I would have expected. I received daily psychotherapy, individually and in groups. There was art and music therapy, yoga, and meditation.

    My medication was carefully titrated with input from the entire team. I was incredibly lucky to have this type of exemplary care. It was all arranged by my amazing wife who clearly understood that I had a mental illness that needed appropriate care. I then spent three months at an outpatient center. I liked the camaraderie I had with the other patients. We shopped together and had group meals. I was able to come and go as I pleased. My medication was still carefully monitored. I learned to practice Mindfulness and developed patience.

    After 14 months I finally went home. The dogs greeted me as though I had never left. Many of my old friends alienated themselves from me, but others accepted my condition as they would any other illness. Today I liken the aftereffects of a major fire at Yellowstone National Park to improvements in my life situation. When my wife and I took our children to that park many years ago, there had been a devastating fire that left burnt debris all over the ground. But if you took a second look, you could see small, bold green sprouts popping up everywhere. To me they are symbols of new life, new #Relationships , strength, and hope. Through devastation we can endure, grow, and succeed.

    I was stuck, when I got home, and I just did not know what to do next. My wife is not a big advocate of self-pity. She said, “you could learn how to cook and clean.” “You could even take a crack at doing laundry.” “You would even consider making me some homemade soup. I looked at her like she was crazy. You get soup from a can or from a deli. Just before leaving for work one morning, she told me that every soup starts with celery, carrots, and onions. That day I looked up a recipe for split pea soup. I bought organic carrots, celery, and sweet onions. Gave them a good scraping and then a bit of dicing. I sautéed and let them sweat for a while. Then I added some chicken broth and split peas. What do you know, it came out pretty good. In time I bought an immersion blender, so I could give the soup a creamy texture and I also augmented the recipe with spicy chicken sausage. Before long, I was making Lentil, Pasta e Fagioli, and Gumbo. I even learned how to make a Roux.

    The thing about soup is it spends a long-time simmering. I started to use this time to write. I self-published a book about my struggles with mental health. I was invited to lead discussion groups at mental health facilities and started to do th

    Post

    Reflections on Viewing LIfe through a Skewed Lens

    Part 2 of 2 is on a regular basis. For entertainment I attended a storytelling slams. Now that is a lot of fun. I even started participating.

    My wife claims that I rely on planned incompetence to get out of cleaning and doing laundry. She encourages me though, by telling me how sexy I look with a vacuum cleaner in my hand. I still have a fair amount of downtime, but being a good grandpa fills it up. I am no longer unhappy. And it all started with celery carrots and onions.

    2 comments