April 17 @7pmEST
How it works:
Introduce us to your furry, feathered & four-footed family members! Join us on video for a fun meet & greet ZOOOM-a-thon. We’ll be sharing tips, tricks and favorite pet products.
Once you’ve registered, be on the look-out for a confirmation email with your Zoom link.
Register today: www.hnf-cure.org/zooom-a-thon
*Special prize for the best dressed pet!
#CMT #CharcotMarieToothDisease #RareDiseases #hnf4cmt #cmtwegotthis
Respiratory weakness is only recently being acknowledged as a symptom of CMT, so there is still a lot that we, as patients, need to learn regarding standard of care so that we (and our loved ones) can be our best advocates. Having CMT doesn’t necessarily put you in the “high risk” category for COVID-19.
On March 20, 2020, HNF teamed up with Dr. John Bach of Rutgers Medical School to answer some of our community’s most vital questions regarding pulmonary health and the specific risks and precautions pertaining to COVID-19 in an online webinar.
Watch the webinar and download the FAQ
www.hnf-cure.org/covid19 #CharcotMarieToothDisease #COVID19 #hnf4cmt #cmtwegotthis
Join us at the Center for Health and Wellbeing Winter Park FL on March 21 2020. Registration is FREE move4cmt.org #CharcotMarieToothDisease #MovementisMedicine #hnf4cmt #cmtwegotthis @AdventHealthOrlando
With this handy dandy Stress Survival Guide from @crazyheadcomics. Our stress manifests in many different ways so making sure your taking care of yourself like your body, mind and soul can help to lower stress when you’re feeling overwhelmed.
#CharcotMarieToothDisease #Stress #Disability #cmtwegotthis #hnf4cmt
Save the Date! HNF has booked Ability360 in Phoenix, AZ for the 2nd Movement is Medicine™ Summit November 13th & 14th, 2020 Hope everyone can join us! Stay tuned for more details in the coming weeks!
Sign up here to make sure you are notified when registration opens!
www.hnf-cure.org/movement-is-medicine-summit-2020
@ability360 #MovementisMedicine #Arizona #abilities360sportsandfitness #charcotmarietoothstrong #cmtwegotthis #hnf #CharcotMarieToothDisease #Charcotmarietooth
Join us for the 2nd annual Movement is Medicine Summit™ on November 13 & 14 2020 in Phoeniz AX @ability360 Sign up here to be notified when registration opens www.hnf-cure.org/movement-is-medicine-summit-2020
#movementismedicine #Arizona #abilities360sportsandfitness #charcotmarietoothstrong #cmtwegotthis #hnf #CharcotMarieToothDisease #Charcotmarietooth #Disability #ChronicIllness
Connect with the CMT support group and discussion community.
www.hnf-cure.org/online-support-community
Tips and tricks for rocking social events, family outings and clever beauty products to make life with CMT a little easier. New section now up on our site!
www.hnf-cure.org/cmt-hacks
#cmthacks #Charcotmarietooth #CharcotMarieToothDisease #cmtwegotthis #handatrophy #muscleweakness #Fatigue #FootDrop
Download the list for free here https : //www.hnf-cure.org/wp-content/uploads/2017/03/HNF-Neurotoxic-List.pdf #hnf4cmt #cmtwegotthis #CharcotMarieToothDisease
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