fatigue

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    Shine Bright Like a Diamond

    #ChronicFatigue #Fatigue #fibromyalgiafatigue #exhaustion

    So on a personal note we flew high accomplished many things sent love out in many directions only to land on the couch and that’s IT. #crash #Drained #nap

    What IT all means is while we feel like we are getting better trying to do the things we use to do or remembering things that we could have done before diagnosis. We find ourselves in the cycle of #Updays #Downdays .

    This is incredibly frustrating and irritating to say the least. How does one do all the things one is supposed to do when they don’t have enough #Energy and suffer from #ChronicIlless ?

    Like seriously we have to be able to get through a week or two without being completely #overwhelmed .

    Ok like we have taken on some extra #Stress #Work #MentalHealth and sure some #Caregiving . But common like surly we can still get things done. #DoEverything right?…

    Wrong !!!

    This is the reminder that we are in this situation because you didn’t look after yourself #rest #Health #Breakes #timeOff #timeout .

    That’s right super hero you’re going to have to passé a bit better. Not everyday! Not every hour! Not every minute!

    So we are sorry! Please take time to say you are sorry for not looking after You!

    See while you would love to help and save the world… You forgot!

    You have to save you!

    IT is true and the year is ✨2022 IT is true.

    Please 🙏 be kind to you.

    Please 🙏 look after you.

    Please 🙏 take time for you.

    There is only one ☝️ you.

    Someone out there needs this so this is for U

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    An overgeneralization opinion piece

    America needs to take a nap. I'm sure a lot of other places do too, but I really think we're all just sleep deprived... And so hopped up on caffeine we don't realize it (I can't have caffeine, so I actually don't know from experience).

    Personally, I feel exhausted trying to keep up with the world and what I feel is expected of me. Due to medical reasons, I can't have caffeine... "Have pity on me," I say. But the world never sleeps.

    #coffee #Caffeine #caffeinefree #Fatigue #foreverfatigued #Depression

    Photo from one of my walks

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    Fatigue

    Does anyone else get anxious about how tired they *think* they will be after a certain activity?

    #Anxiety #Fatigue #MentalHealth

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    Why Do Our Friends Leave Us?

    I'm sharing a previously posted story written on here from 4 years ago.

    My very last 'surviving' friendship is now also drifting away out of my reach 😔. I hate the loneliness it brings.

    Having one friend made everyone else disappearing more bearable. But how am I to feel now I am alone? no more bestie or 'solid' friendship.

    Was it me? Am I too oppressive? Could I have done more?! - I'll never know.

    To clarify, we had a 10 year friendship and we were each others 'best friend' she is my sons godmother. We were literally thick as thieves - could finish each others sentences, say the same things at the same time. She, my husband and I were the '3 amigos'

    So our situation now is that she, and her new husband have moved to another town nearby. She's made new dear friends there,and has slowly weaned off me.

    The last time she saw me it was for my birthday 2 weeks after it 😓 it felt like she was feeling awkward after a while. After she left, I never received the 'I really enjoyed seeing you 🥰' etc text message we would normally exchange - even though I sent one myself

    What finally made me see it for what it is, is that I was meant to see her tomorrow. We planned this ages ago. But was told yesterday she cannot do the afternoon. Morning only. Then today got a message cancelling entirely

    Once before I got sick there was a time where I was all she had, even when everybody left her due to a trauma she experienced, I supported her through.

    I really thought after years of bullying and never fitting in due to Autism, I had found my 'forever friend' ❤️ for years and years our social media pages were constantly full of pictures of our 'adventures' and tagging each others names on posts. Almost announcing to the world what a close unbreakable friendship we had. It made me feel lucky and special🤦‍♀️ somebody liked me for me! I had never had a friendship this genuine before (i thought) I feel embarrassed to have felt this way now.

    I know people who don't stick around due to illness aren't worth my time. Equally I know people can change and drift apart too, but I thought we were stronger than that?

    But it doesn't change the hurt. Especially as this gradually happened over two years, feeling it slip away. Questioning if it was really happening? Surely not?! Then realising the truth, and the painful feelings of being alone, betrayal, of feeling replaced - as if I were a broken toy.

    I feel very sad really. Especially as I am housebound, and cannot make friends offline.

    Has anybody else been left totally alone other than their spouse/partner?
    (im lucky mine is incredible)

    This epitomises how I feel

    Dear Friends: Please Don't Leave Just Because I Have a Chronic Illness

    #friendships  #ChronicIllness  #Loneliness  #Depression  #UCTD #MentalHealth #Anxiety #Autism #ADHD #ASD #AutoimmuneDisease #alone #CheckInWithMe #Sadness #housebound #Longtermillness #hi #Lupus #MixedConnectiveTissueDisease #Fatigue
    #ChronicFatigue #ME

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    Acupuncture, is it helpful? - Please can you share your experiences? 😊

    Has anyone on here tried acupuncture and found relief from any of the following?:

    fatigue, autoimmune illness, joint or muscular pain, long covid, anxiety or depression?

    Would love to hear about peoples experiences, good or bad!

    I cant make my mind up about trying it! I'm scared incase it causes a flare? or is just plain useless as it is expensive!
    Thanks in advance 😊

    #Acupuncture #Healing #alternativetherapy #Pain #UCTD #Anxiety #Autism #Fatigue #ChronicIllness #ChronicPain #Fatigue #ME #Disability #AutoimmuneDisease

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    Time of the cats on/in the cars

    Hello everybody 🍂
    Autumn is my favourite season however thus year it's so hard to find joy...I've started a 3 months therapy course to fight severe anxiety, hope it will help🌄
    Have a beautiful day, my friends 💛
    #Anxiety #Depression #Fatigue #ChronicIllness #MultipleSclerosis #Fear #FragileBeauty

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    CBD for Fibromyalgia

    Hello, it's been a while. I wanted to ask if anyone here has some experience with CBD for their fibro treatment. Does it actually work?

    I've been considering CBD for a while now, but I'm not sure yet. I know everyone's case is different, but if anyone could share their experience it'll be nice to learn a little bit about it.

    Thank you in advance.#Fibromyalgia #ChronicPain #Fatigue

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    Planting💚🍂🍃🌱

    Today I was at the pond near my grandma's country house. And I brought two baby pine trees which I grew from the seeds at home with me. And I planted them there. Hope they will be ok🌲
    #Depression #Anxiety #Fatigue #ChronicIllness #MultipleSclerosis #greenfriends

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    Autoimmune mess.

    Patient #Fatigue hitting hard. #ChronicPain #autoimmune

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    Disabled or apathetic? MS, PTSD, chronic pain, depression,… really? How do I live this way?

    I wake up every day hoping the #fog will clear but it rarely ever does. It’s like being #underground and seeing the #light and #goals way above but they’re hardly visible. I feel like I’m trying to figure out how to navigate and get up there, over one the #Pain and #Fatigue , and just see the light. Each day seems harder and I am continually being beaten down by societies demands just to stay alive, live, eat, breathe, function and get any type of care. My family has #Abandoned me because, as my sister said. “She just can’t.” My children have not abandoned me but they have their lives and because it’s so hard to travel, or get through each day, seeing them is rare. The bank is trying to take my house, just because they want it and not because I don’t, or can’t pay. I feel numb inside and scared. What happens if…? Do I become another statistic and #Homeless , alone and #suffering and no one cares? I’m not sure that’s depression or reality and reality sucks enough to make you feel depressed. I don’t want anymore “treatment” from anyone and I can’t afford it anyway . I want this to end. I’m PV