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Swallowing and speech problems are common with MS — How to manage them?

Swallowing is something that's so automatic, we take it for granted. Until something changes. Dr. Marissa Barrera joins me to discuss common MS-related speech & swallowing issues -- and what you can do to improve them.


#SwallowingProblems #speech #MightyTogether #MultipleSclerosis #Disability #ChronicIllness #newlydiagnosed #Caregiving #Fatigue

Jon Strum on X

https://t.co/b4RCjfDnuY Swallowing is something that's so automatic, we take it for granted. Until something changes. Dr. Marissa Barrera joins me to discuss common MS-related speech & swallowing issues -- and what you can do to improve them. On RealTalk MS #MultipleSclerosis
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How do you say no to your little nieces, nephews and children?

I’m currently a first time aunt (although my sister is 21 weeks pregnant right now) to an absolutely gorgeous and clever little boy named Oskar. He’s 22months old, and I absolutely love playing with him. I chase him, I crawl towards him on my hands and knees. I play rough with him (he loves this), and I tickle him until he’s belly laughing.

He is truly the light of my life - since he was born I’ve refused to self harm and I’ve really started taking better care of myself. But sometimes when we’re playing, I start to get pain or get really exhausted and I have to tell him no and sit down for a bit. But then he comes over, grabs my hands and tries to pull me up and make me follow him.

It really breaks my heart because I know he doesn’t really understand and he thinks he’s done something wrong. How do YOU communicate that you need a break? Is there a way to do it so he understands? He can get quite upset. Aside from his dad, I’m the only person that really plays with him and makes him laugh.

Any and all advice would be greatly appreciated!

#chronicillnesswarrior #ChronicPain #POTS #EDS #NAFLD #BPD #LiverDisease #Jointpain #Diabetes #InterstitialCystitis #Migraines #Depression #Fatigue #Children #Advice

32 reactions 9 comments

Depression post covid #Fatigue

I haven't been feeling my best, covid can make me very depressed not having as much fitness as I used to can really put me down

5 reactions 2 comments

Emotionally and physically copping.

#Fatigue #Pain #Depression #Anxiety #invisible #MentalHealth

The mental pain of neurological illness is exhaustive and physically draining leading to chronic fatigue and putting your body in a safe mode to where it can do nothing but shut down to survive.

This pain is so severe and happens so fast there is no time to prepare for it or explain it to anyone on time for help.

Your body goes into full panic mode, looking for an outlet to get relief from all the chaos it is experiencing.

The problem is all the signals are being interrupted, stopped and or blocked from helping because they need healthy nerves to do so.

The nerves they are trying to use are severely damaged, partially working, crossed over and doing something opposite of what your brain thinks they should be doing, or some are just completely burnt out and doing nothing.

An example would be trying to use a phone's land line and the lines are crossed, the number you are calling for help is correct, but you are getting a stranger on the other end who has no clue who you are or what to do for you.

Or calling that same number for crucial help but all you keep getting is a busy signal because the other line is off the hook for whatever reason.

All this frenzy from broken nerves and painful muscle spasms sends your anxiety to a new high and causes a bird's nest of new worries and thoughts.

Now your body is exhausted (to say the least.) Your fatigue is a flashing red light, a warning that your body is overloaded with pain and at its breaking point.

Chronic fatigue sets in and shuts you down, it does not matter where you are or what you were doing you shut down.

Your body cannot move one more inch or blink an eye at that. You cannot speak or think of a word, and you are deaf to your surroundings, not hearing a word or feeling a thing.

The fatigue has put you in a deep sleep to rebuild some strength and energy while protecting you and saving your life.

Although no one wants fatigue it is really like your body's own saving grace protecting you from more severe brain damage and or physical damage.


A grumbling

My symptoms have been relentless for the last 2mos. #Fatigue to the point of feeling like I’m weak and dragging myself around, My baseline #ChronicPain has been worse too (from a 3/4 to 6/7 on the chronic pain scale). Before, I could usually do light to moderate activity without needing too much recovery time and now just grocery shopping seems to put me up for days. I’m not outside and or in the heat much so I’m not sure it’s the weather but I guess it does seem to coencide. Whatever the reason, it’s incredibly frustrating and I hope this isn’t a new normal. #EDS #POTS

9 reactions 7 comments
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Talk About It Tuesday: Diabetes & Fatigue

Has anyone else noticed a change in their fatigue levels after getting their blood sugar numbers in range?

Share in the comments below 👇🏾

#Diabetes #DiabetesType1 #DiabetesType2 #Diabetestype3 #lada #mody #GestationalDiabetes #prediabetes #JuvenileDiabetesType1 #Lifestyle #Fatigue #Health #CheckInWithMe #Support #SupportGroups #MightyTogether

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I have no energy

Husband and I are having some family issues and it's caused a huge depressive episode for me and I just can't seem to pull myself out of it. It's an ongoing issue that doesn't look like it's going to be resolved anytime soon. I've dealth with depression on and off since my teens, so this is nothing new. I just haven't felt this low in years. I have absolutely zero energy and feel like I'm being physically weighed down which is making it feel worse. I tried to clean today and only swept and cleaned my windowsill. Husband and I always walk our dog in the morning and I asked him to come on another short one this afternoon. I managed it but I'm irritable and feel so low. Anyway I guess I'm just upset with how much I'm not doing. #Depression #Anxiety #ObsessiveCompulsiveDisorder #Cleaning #Fatigue

6 reactions 4 comments