Color Blindness

Survey of 75,000 children suggest an increased risk of ADHD among children with vision problems that are not correctable with glasses or contacts, such as color blindness or lazy eye, relative to other children. #ADHD #Autism #Depression #Amblyopiaworld

Part 1 of 2 Whenever the media reports that a Navy member ended his own life after being abused by his peers or superiors, I think about Sylvester Stallone’s 1982 film First Blood. The movie’s most striking scene, for me, has always been the moment a deputy tells Sheriff Will Teasle that John Rambo broke custody and clobbered half of the Sheriff’s station because two of the other deputies were riding Rambo hard. Teasle replies that if a prisoner thinks he’s being mistreated, the prisoner comes to him, and he kicks the deputy’s ass if need be.

The Sheriff’s chest puffing bravado fills me with equal parts exasperation and amusement. At what point between being beaten, choked, sprayed down with a fire hose and threatened with a straight razor would Rambo have understood that reporting his mistreatment to the Sheriff was an option? What could the deputies have said? “While we choke the life out of you and ignore the violent flashbacks that razor seems to be provoking, we want you to know that the Sheriff has a zero tolerance policy toward inmate abuse. If at any time you feel mistreated, simply let one of us know and we will relay your concerns to the Sheriff. When it is convenient. For us.” Whatever the Sheriff’s good intentions may have been, many of his deputies didn’t care about Rambo’s well-being. For whatever reason, they shared this trait with many of my superiors when I was in the Navy. My superiors’ mistreatment of me eroded my confidence that they would help me if I needed it, and that in turn made it difficult for me to obtain psychiatric care when I needed it.

Teasle’s deputies might justify their treatment of Rambo by pointing out that he was uncooperative while he was in custody. In a similar vein, my superiors would say that I was a screw-up who was, frankly, too stupid to be in the service. My situation can be best explained by imagining a toll road leading to a part of town where red cars are stolen more often than cars of other colors. Accordingly, the toll is higher for red cars to offset the extra police and resources needed to combat those thefts. But the system is undermined by a toll booth operator who doesn’t charge the extra toll to the red cars because he is color blind and to him, every car is the same shade of gray. His superiors scream at him and call him stupid, and his fellow toll booth workers shun him because his screw-ups mean that the toll revenue is never high enough to merit the workers receiving a bonus. His bosses insist that they will stop humiliating him when he stops lying about never seeing a red car. His coworkers want him gone but can’t fire him themselves, so they play cruel jokes on him. The cruelty is pointless, because he can’t quit, much as he would like to. For his part, he is constantly hurt and confused. He would certainly charge the red cars the proper toll if he ever sees any. He has never seen any.

I dealt with my own peculiar sort of color blindness throughout my time in the Navy. Nothing I did was right and I could never see what I was doing wrong, no matter how often my superiors pointed out my stupidity or how loudly they did it. My existence was constant humiliation and a growing, numbing depression. It seemed that while people who gave orders were obliged to threaten and deride, few of them felt obliged to listen to or understand the perspective of an eighteen year old kid who was struggling to understand a draconian world in which the rules were screamed at loud volumes but otherwise poorly explained. .

The erosion of my ability to trust my superiors began in boot camp. My company commanders molded my view that my superiors weren’t there to supervise and guide, but to humiliate and punish. It amuses me now to recall the literature the Navy sent to parents explaining the role of the recruit company commander. These individuals, two per company, were selected from the Navy’s best to shape the next generation of sailors. In doing so, they were “formal, yet friendly, so that the recruit would not have to hesitate to go to them for help with their personal problems.” If they were supposed to present themselves as resources a recruit could turn to, they failed. When I became suicidal it never occurred to me to ask either of them for help. Everything they shouted at me contained a veiled threat, if not outright hostility. I didn’t feel safe when they were around. Since talking to them wasn’t an option, I asked the recruit who liaised with the chaplain’s office what it would take to see the chaplain.I am not religious, but was desperate. “You have to talk to the company commanders first,” he said, and with those words all hope of getting help vanished. To ask them for help would have invited the same derision that my incompetence had already provoked.

A therapist once asked me what I thought would have happened if I

Hi,
This is my first post, so my intoduction might be kind of long (apologies!). I'm completely overwhelmed with questions, but I'll try and keep them specific for now and go from there.
My introduction:
I'm a 45 year old man. I have not yet been diagnosed with MS (or anything else explaining my condion). I've had unexplained episodes of fatique, muscle weaknes, brain fog, tinnitus/head pressure, and other symptoms over the last 20 or more years. Most were limited to days or weeks. Over the last 8 months or so I've had all those symptoms (more severly) along with many other. Some of these include: worsening of my color blindness (I've had it mildly all my life), loss of coordination, vertigo, "brain zaps" (possibly Lhermitte's sign), 'MS hug' like chest/side/back pain or tightness, muscle and joint pain/stiffness, blured vision, light sensitivity, and others.
After many years of going along with my primary care doctor's belief that I was "in the honeymoon period of my life" physically, so I should focus on my mental health as the most likely cause of my symptoms (as opposed to pursuing physiological explanations or tests), I finally swicthed to someone else (largely on the recommendation of my long time pyschiatrist who believed I had something systemic going on). My new doc ordered blood work and an antibody test which showed a mildly positive ANA with speckled pattern; but further testing and a rheumatology exam ruled out most things in that realm. At that point he ordered a brain MRI which turned up a very obvious parietal cortical lesion (2/8/22). Since then (after an unbelievable amount of greif and self-advocacy) I've had another MRI (with contrast) and and initial neurology exam (at University of Virginia). My radiology reports were extremely limited, and apparently only focused on the one glaring area (which they thought was 'most likely from a small chronic infarct'). I have done thorough reaserch, and consulted with other physicians, and I'm highly confident that particular lesion looks a lot more like a typical demylinating lesion (involving u-fibers, distinct demarcation, ect.), and also that there are other less obvious lesions and signs pointing in the direction of a demylinating condition (most likely MS).
My neurology appointment did not go at all as I had imagined. I was dumbfounded when the neurologist told me he didn't believe my condition was "anything in the neurologic realm," and didn't even order any further tests. Presumably this was because the most acute phase of my symptoms was past by that point, so the neuro exam didn't show anything glaring; aside from a lack of right arm swing and my color blindness being severe. He dismissed the lack of arm swing as 'likley favoring it due to shoulder pain' (which I hadn't had for months); the worsening color blindness as 'a common hereditary trait' (presumably disbelieving that it had drastically changed); and any MRI evidence that could possibly point away from the radiology report out of hand (although I overheard him tell his fellow that the cortical lesion was indistinguishable from an MS lesion, and that maybe I'd 'come back in a couple years with more lesions'). He didn't want to pursure looking further into possible causes for the presumed "old stoke" either, saying it wasnt likely they'd find anything. He offered no explanation for why I might of had a stroke, and no reassurances when I expressed concern about my future risk. I had no signifigant risk factors or history to suggest I had a stroke in any case.
I later learned (online) that he leads a crusade to avoid overdiagnosis of MS at all costs, and is very vocal in his critisism of the 2017 McDonald Criteria, beliving it is too liberal.
I decided to seek a second opinion (at John Hopkins). The first thing they asked for, after I was referred and sent them my chart and images, was spine MRIs. My original neurologist reluctantly ordered them, but stated he will not appeal if my insurance won't cover them. I have them scheduled for May 1st, and assume I'll probably end up paying out of pocket.
I'm terrified of being dismissed again, or having my pysical symptoms writen off as 'most likely just pychological' when I do finally get in to see someone at John Hopkins; especially considering the notes in my chart from my previous primary care doctor and neurologist are so biased in that direction.
So finally to my first question:
Is there anything I should do to prepare? Specifically, is there a second opinion service for evaluating MRIs specifically for MS anyone might recommend? I sent my second set to Docpanel, but it was before I had done my own extensive research, so I wasn't able to ask the right questions or point out my observations. Also, the radiologist reading it wasn't someone specialized in demylinating conditions. It came back very general, brief, and inconclusive as to possible demyelination; but also with notable inconsistencies from my initial reports.
Any other advice is more than welcome of course. Thank you to anyone who took the time to read all that!
-Tom

It’s my first day out of the psych ward after spending five days there and it feels so strange. My boyfriend is treating me with kid gloves, doing everything for me without me asking. If I say I’m thirsty, a glass of water is beside me within 20 seconds, and so on. All I can think about is the hospital. I miss my friends and all of the people there. I miss the routine. I miss sitting at the table in the day room and coloring with people I became closer to in a matter of days than some I’ve known for years. Home isn’t what I pictured it to be when I wanted desperately to leave the hospital. Now I just miss the place I felt trapped in. I think I’m annoying people because I’m either talking too much about all the interesting people I met, or not talking at all because I’m thinking about those people. I have nothing else to offer in conversation right now. I feel like I just got out of jail and don’t know how to act in the real world anymore. I wonder what my friends who are still there are doing. It’s 11:40 so they’re all eating lunch right now; I wonder if angela got tacos again and if she forgot to write down “no tomatoes.” I wonder if the nurse is taking too long to get Jacob his insulin, and if anyone else is speaking up for him now that I’m gone, because he’s too nice and polite to be assertive for himself. I wonder what dope and weird picture he drew today, and who else he had to explain his color blindness to. I wonder if candace and tracee have stopped crying everyday. I miss my little island of misfit toys. No one on the outside understands the way they did. #BorderlinePersonalityDisorder #PsychWard