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BPD then hit with a severe STROKE

Imagine having your #BPD under control having many years of hard work with DBT. You finally you have "built a life with living," practice mindfulness, self-soothe and self-regulate. You have been clean for several years and you find a loving, handsome and exciting partner and travel to another continent with him. Life, at last, feels magical, gratitude is embodied within you and then you suffer a severe #Stroke at the age of 46. It leaves you speechless (aphasia) leaves you visually impaired and your brain is permanently damaged.

I am 2 years and 3 months post-stroke now and finally ready to write about it all, the stroke, the recovery, #Neuroplasticity and healing. Watch out for up-coming articles.

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Title: My Body Became a Cage, but My Spirit Remained Unbroken: How I Beat a Stroke to Save My Family.

Subtitle: I am a mother of five and a survivor of violence. In July 2024, my world was up

Your Author Bio

This will go at the very bottom of the page in italics. It tells the editor and the readers who you are today.

Darlene Moss is a mother, a survivor, and an advocate for healing. Born in Oregon and now living in California, she has navigated the complexities of the CPS system, addiction recovery, and life after a double stroke with a fierce dedication to her five children. Darlene writes to break the silence surrounding domestic violence and neuro-recovery, proving that even the most difficult journeys can lead to a place of peace. She has been clean and sober since June 2024.

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#anticipatorygrief #Grief #Depression #Stress #Anxiety

Care taking my mother for two years and so, ever since she had a stroke and her left leg and hand wouldn't work. Having lost my father(verbally n physically abusive father with whom I couldn't have a good closure, not understanding he was dying) before years ago, the pain of grief feels so scary! Already going through stress and worry about different things of my life, I often wonder if I will be able to handle it. I often distract myself, but today when I saw her pale, helpless face.. something broke inside me thinking about the inevitable. Financial issues hover over this situation, and I, being depressed for a long time, cannot help but feel helpless. I have felt this helplessness before, just last week! last time it stressed me so much! today. sadness! Though, didn't want to stay stuck there. Have been reading a book with tools to manage depression, maybe from there got the inspiration think about what I can do to make things a little better. While caretaking my difficult-to-handle mother, I often feel overwhelmed, frustrated, Irritated and whatnots. It gets too much at times. Today after so many years of not really praying to God, I asked God for some strength to go through it all, and It kinda works as well. While my modern mind doesn't let me believe in what has written in the holy book, I find solace and strength in his name. And while navigating through this difficult time, I am thinking about journalling each and every (even if small) achievement, with the hope that they will keep me going, inspire me, show me I can do it, or maybe even console in times of real grief, mourning and "Did I do my part?" moments.

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Story of the Week: What tips would you share for parenting with a chronic illness?

Parenting is hard work that takes effort, patience, and a lot of energy — and doing it while managing a chronic illness adds an extra layer of challenges that often requires additional compassion and support.

What advice, tips, or encouraging words would you share about parenting with a chronic illness?

📖 Need a Mighty read? Check out today’s Story of the Week for more tips and insight:
4 Guilt-Free Tips for Parenting With a Chronic Illness

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis
#Cancer #Anxiety #PTSD #CheckInWithMe

4 Guilt-Free Tips for Parenting With a Chronic Illness

"Your family isn't going to look like everyone else's and that's OK."
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What Is Speech Therapy?

What Is Speech Therapy?
Speech Therapy is the assessment and treatment of communication and swallowing disorders, performed by a speech-language pathologist through the use of a wide variety of techniques and exercises like communication devices, picture cards, modeling, and play based activities. It helps people of all ages improve their ability to speak, understand language, express themselves, and swallow safely. Last but not least, Speech Therapy can be used to help improve and treat a wide variety of conditions and disorders such as speech language delays, voice disorders, and difficulties resulting from conditions like stroke or traumatic brain injury.

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I'm new here!

Hi, my name is head86. I'm here because I have had 6 episodes of transient expressive aphasia that I believe are caused by migraine, although a number of neurologists are trying to convince me that they are being caused by TIAs. The aphasia symptoms do not last longer than 60 minutes during each episode. I have been trying to find a neurologist that can make a clinical diagnosis in determining whether these episodes are migraine related or symptoms of stroke.

#MightyTogether #Migraine

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Hypogammaglobulinemia #

This is actually Waterlily but no matter what email I sign on with, I can't get to my personal account moniker.

Hypogammaglobulinemia describes low levels of immunoglobulins in your body. Immunoglobulins are antibodies that fight germs like viruses and bacteria that can make you sick. Having low levels may increase your risk of infections and other diseases. Antibiotics, immunoglobulin replacement therapy and stem cell transplant are potential treatments. I get Chemical Asceptic Meningitis whenever I get an IVIG Infusion. I have very low IgG1 and IgA's in my blood. That in turn creates almost untreatable Pneumonia, Bronchiectasis, cancer, and organ failures. There are only two immunologists in Minnesota. Fairview University of Minnesota and Plymouth Minnesota. I got IVIG infusions for years without issue and then one day I started getting Chemical Asceptic Meningitis within a day or two of IVIG administration. After not taking any for 5-6 years, I tried it again. The first infusion went well except for a little headache. The second required emergency hospitalization because it causes the lining on my brain to swell and then I go downhill fast. This information doesn't always make it to the doctor's attending me from the emergency room. I have to wait to talk to the doctors directly and at that point I can barely speak. I can only go to one hospital for that reaction, and there's only a couple doctor's there that know how to treat it. It starts with a lumbar puncture to test the spinal fluid. I think that they test for high white blood cells and other information. So far I've healed with their assistance. One of these times I won't be as lucky. I am off any type of IVIG Infusions now, but I know I will need to get IVIG Infusions again when I get too many infections and, organ failures or cancer. I've also had a hard life from childhood on up. Almost my entire family struggles with mental health issues. My mom had lupus as I do. A Rheumatologist told me it was inherited. I have a daughter with some early symptoms that I've been keeping my eye on. I will help guide whenever I feel I have knowledge that might help. Bless all your hearts through your struggles. I'm currently in the hospital healing from a bilateral L4-5 decompression lumber spine surgery. I have a wonderful care team and my daughter is here when she is able. She's carrying a 4.0 in college and I'm so proud of her. She has 3 types of epilepsy. Finally she found an Epilepsy doctor who knew exactly what medicines she needed to control them. She occasionally has break through mild seizures, but shes finally able to function. She had a stroke last month at 51 years of age and was temporarily paralyzed. Our lives are a journey. That is how we look at ours. It helps immensely. This is an informational post in case someone can use this information. I'm here while recovering from surgery. Feel free to reach out any time. It may take me a little while to reply, but I will do my best. Bless you all on your life journeys. #Hypogammaglobulinemia #Epilepsy #Stroke #Immunedisorders

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Story of the Week: What are your favorite go-to items or products that help you manage your chronic illness?

Managing a chronic illness can be both challenging and costly — from doctor’s visits to treatments, medications, and surgeries. That’s why finding the right products, items, or services that ease uncomfortable symptoms, reduce stress, or bring even a moment of comfort can make such a difference.

What’s been most helpful for you in managing your chronic illness?

Share with us in the comments below!

📚 Looking for recommendations and insights? Check out today’s Story of the Week here: 27 Items People Have Splurged on to Help Them Manage Their C...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

27 Items People Have Splurged on to Help Them Manage Their Chronic Illness

"It gives me a chance to have quality of life." 
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