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    Zero Love & Belonging for me & now my body is continually rejecting me with new diseases too. Pain vs Suffering

    This is my “BEAUTIFUL FAMILY”; My daughter-38 and older husband and his son to the left. To the right, my Diamond, her daughter, then new daughter in law and son (20). I should say my grandchildren, right. When? I had to begin going behind her back to see my Diamond when she is with her father. Then severe Long CoVid caused Dysautonomia, a big car accident where I got off pretty well- except my vision was damaged even more and Dysautonomia made even worse. I fainted every day for awhile. The 20yr old harmed me last & most 2 weeks after his 18th birthday, just a few days before mine. His mother hugged and consoled me. Made him move out. She didn’t come right back as promised. She went tanning for 4 days on a boat with an ex & still blames me 100%— again!
    That beautiful young man I have always loved like my own was raised to hate me once his mom became jealous. He is gone now too. First he cleverly acted to cause me to be deleted from THE family holiday celebration.

    My daughter sent me this photo after Thanksgiving. I had to call truce due to a tragedy in a woman’s life. Still, she avoided me entire month to avoid a conversation about Thanksgiving. She made herself Matron of the family. I am the ONLY adult my age (58) or older who’s child didn’t do something for them to honor them for the holiday.

    It does not occur to her that all I can see is everyone’s joy as long as I am absent. My mom disowned me for being disabled years and years ago, and my sister left drugs finally to take my place with Mom. She even removed every single picture out of the picture albums shoved them in an empty kids chalk plastic container and gave them to my daughter who left them with her ex. He dumped them on my front porch. Imagine that mind bend!! That was who my holiday anchor was until I was disabled and she uninvited me year after year and then nothing.
    Before or maybe not long after the incident with my grandson I directly asked my daughter, “Do I have love and belonging with you?” Her, “What do you mean!!??” I just repeated it palms up. Her, “I don’t know what to say. This feels like some kind of trick.” she said suspiciously. I was aghast. I was on the verge of tears and turning around, “No Blank. It is just that. I want to know if I have love and belonging with you.” And she answered me plainly. “Then No. You don’t.” This has come up and she has never changed it. I suppose I have a relationship because of my Diamond girl and maybe because she reaches out to me and says she loves me because I’m always here for her. Nope. Codependency left the building couple years ago. I have even had her on no contact for my sanity and lost the girl.

    My depression is so deep I can barely take a breath right now. I want to be loved and to know belonging before I die.
    I wake in #Pain everyday. My fourth CoVid caused my #longcovid to go Primal on me. BA.5 is not like the rest, honest. I finally turned to my alternative Dr herbal Chinese Medicine. I have a Master’s in Nursing and know know know that Western medicine might be covered but is also prescribing black label medications for chronic pain without the deep discussion patients deserve. My own mother in law suffered a stroke as a result of this. They added a black box label, but who explains that it even tells people? See-I’m so #angry . So I gotta pay $$$ out of Disability and $$ monthly for livability. From disability have a tea special made for me 3 times a day that controls my chronic pain enough to move in the house and such. It’s great. Still NO ONE understands that #ChronicPain or weakness, or just can’t either. Major #Depression is when I start to cry. Severe Depression is when I stop crying. Sometimes I start thinking and sometimes I stop. It is much scarier if I start. Pain is tolerable, #suffering is not, and #chronicsuffering is the most brutal of all.
    This Grief I bear, of having NEVER had #belonging once I was also #Abandoned by my poor child that I gave all my limited resources to, I died inside. I substantially failed and raised a daughter who is compassion and empathy challenged. I don’t remember being taught to call my grandparents. I didn’t teach my daughter to. My mom is brutal. Oddly, my daughter repeats her and has barely known her?
    My last straw today is a roommate who played the second mom, daughter who loves you, won’t abandon you card. I didn’t buy it. It’s talk. But I thought she could at least be a civil roommate. She walks in and out of the place without a word. Just jumps on that ABANDONED button as hard as she can! Profanity to the Nines! #Profanity #CPTSD #PTSD #ChronicDepression #Anxiety #SocialAnxiety #AgoraphobiaWithoutHistoryOfPanicDisorder #Grief #longcovid #disposable

    I tried. I don’t have words for what’s happening inside me. This is like Anticipatory grief of a hospice patient you know is gonna pass but we keep holding on and loving them just the same. It all makes the body even harder to manage. Thank you, whoever you are.

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    I'm new here!

    Hi, my name is 77764. I'm here because i have RSD since work injury in 1988 my dr abandoned me over opiod epedemic in 2016 my bp hit 315/129 gave me a stroke & heart attack i suffer tremedously since why?

    #MightyTogether #Anxiety #Depression

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    We are in need of a new co-leader for our group. Please see info below. We need someone to encourage, empower, support & be there for other members!

    We are currently looking for a new Co-Leader for the Multiple Health Challenges group. We have grown quite a bit and just passed 1,500 members. In the past co-leaders have been golden, really helpful for me when I got sick or burnt out and had to step away for a few days. I am looking for someone to welcome new members, comment or respond to most posts or other comments, make new posts to the group every once and a while, and preferably someone who has physical and emotional health challenges so they can best relate to and understand where other members are coming from when they post or comment.

    It is important for the group to have two distinctly different voices to support people because people might relate more to one of us. What is a really good situation is if we both respond to the same posts, welcome new members from different perspectives and provide voices for people that are accessible and relatable. There is a commitment needed that you monitor activities on the group regularly and can respond pretty quickly.

    Offering your own posts provides more content for the group…and when posts pose a question they keep things moving forward. I can assist and support by offering to look at your new posts for feedback and editing before you post if you would like it, comment on your posts to get the responses going to best support your efforts, help finding memes or images, and support you if we are dealing with someone struggling …. Like sounding suicidal or being manic…and I will check in to make sure you are happy and comfortable!

    I look at potential leaders' history of posts and/or comments that have helped and supported others in the past. Willingness to be honest and open about your own health challenges is crucial to best support people. A co-leader works together with me for some new posts and drafting new questions and is concerned about the well being of all members and can empathize with their paths.

    You will get access to the Community Leaders group and your name will have a “Group Leader” tab next to it up top on your comments and responses so I think people pay attention especially to your activity and wisdom shared from personal experience. Would you consider joining me on this journey? Let’s have a DM chat to discuss this! Thanks for considering taking on this role!

    #Depression #Anxiety #MentalHealth #ChronicPain #Chronicpainwarrior #Disability #BipolarDisorder #BipolarDepression #Bipolar2Disorder #Bipolar1Disorder
    #Stigma #ObsessiveCompulsiveDisorder #ADHD #Autism #Dementia #Addiction #AddictionRecovery #Cancer #TraumaticBrainInjury #BrainInjury #LossOfAParent #Grief #SuicideSurvivors #ChronicFatigueSyndrome #DistractMe #HIVAIDS #longtermsurvivor #ChronicIllness #ChronicPain #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deafness #neckpain #BackPain #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorders #Headache #Stroke #help #BorderlinePersonalityDisorder #Fibromyalgia #Disability #thankful #grateful #EatingDisorders #CocaineDependence #drugaddict #alcoholic #PTSD #EmotionalHealth #physicalhealth PainAcceptance #Acceptance #relief #Selflove #MightyMinute #MentalHealthHero #TheMighty #RareDisease #MightyTogether

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    What tips do you have for enjoying the outdoors with chronic illness?

    Living with a chronic illness or disability doesn’t mean you can’t go outside to explore or have adventures, but planning and preparing is key (and something not a lot of non-disabled people even realize).

    What are some tips and tricks that help you prepare for outside activities?

    🗺️ Need a few others? Check out Amy Denton-Luke’s new Mighty story here: 5 Tips for Exploring the Outdoors With Chronic Illness

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

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    Stroke to Delanie Stephenson

    25 years ago had left frontal lobe and Pons stroke. 2 hrs from home. Spent week in Saginaw hospital. During stroke had out of body experience. Weird. Survived minor effects. Happy Birthday . 65yrs/25 years old 10-18-52. Still xicking and ornery as ever . Delanie's story causes memories. Thanks delanie.

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    Vestibular Therapy for Vertigo imbalance due to a Stroke

    I took several tumbles on cement stairs over a four month period.  After the first fall at my physician’s office,  I thought I just tripped. When I fell on the back steps at home,, I started to wonder if there was something wrong with me. I began to have dizzy spells many months prior to my accidents.  I would wake up with the room spinning, or it would occur suddenly. Then my balance was off sometimes when I was home, and I’d bump into walls as if I were drunk.

    I had an appointment with my neurologist’s PA , and she ordered several tests to determine why I’ve been having  these issues. Once the results were in, I was given the diagnosis of peripheral vestibulopathy and central involvement. This is defined as”the perception of the brain and the information apparatus which sends details to it is faulty”. The PA prescribed vestibular therapy (aka balance rehabilitation) for me at home for eight weeks. This exercise-based regiment is designed to promote vestibular adaptation and substitution.

    One of the things that A. mentioned to me was that I’d have to use a walker or cane for the rest of my life. Since my symptoms were always unpredictable, utilizing these would prevent me from injuring myself again. I wasn’t happy about it at first. Eventually, I came to realize that my poor husband needed a break from doing first aid and rushing me to the ER.

    I was fortunate to have an excellent rehab therapist who was very well versed in this area. S. took the time to explain what the goals of VRT

    (vestibular rehabilitation therapy) were:

    1) to enhance gaze stability

    2) to enhance postural stability

    3) to improve vertigo

    4) to improve daily activities

    When he’d  explain each exercise and demonstrate how it was done,  I’d say something funny about it. For instance, he’d state,   “walk toe to to toe five times back and forth”.  I’d say, “Oh, you mean  “the am I drunk test.” He’d  say,”Stand on one leg for as long as you can”, and I’d say, “You mean act like a flamingo”.  This went back and forth for several minutes to where we couldn’t stop laughing.  I just had to lighten things up otherwise I’d take myself too seriously.  Recovery time for this sort of problem can take anywhere from weeks, months, to years. This is why it’s so important to continue on even after the therapy sessions have ended.

    I still have vertigo at times but at least there’s a way it can be treated.  Plus, with the assistance of my walker or cane, it allows me to take steps safely.  I wish I would have known sooner that problems can still occur  years later after having a #Stroke. Oh well. Better late than never.

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    An old newbie

    I did not know I was PSTD, depressed (that I did figured), ect until I had my strokes. Some doctors said I can only expect X amount speech or lucky if I can walk with a cane and others. Try not anyone to limit you but I pushed myself too much for several years, I am stubborn, but I am better of realizing my limitations and work smarter.

    Everyone is different, stroke "victims", I do not know why I went to my home after 2.0.0.5 months but that was not an option 2 weeks before. I did not need a walker, I had a cane for 9 months. I know I am fortunate but it is also putting in the work and there is times I am so down and can not figure out how to pull up.

    Things, thoughts, stressing, strengths, ect for me are all, not at the same time I hope, I realize day is not a paperwork day, try tomorrow or if it is urgent I need help. If I realize I am in a "funk" or my cousin or friends notice, they pull me up or kick my backside. If you want, do what you need, want, try, ask and asking help is strong than you think.

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    Hello everyone, I am new here and found my way due to a now chronic pain syndrome I have developed following my stroke six months ago. I have no motivation to get up and face the day with all of these sensations and wondered if anyone would like to share how they cope? Did things get better with time as far as acceptance?
    #ChronicPain

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    I'm new here!

    Hi, my name is Bondyboo154. I'm here because
    I am a 42 year old woman who had a stroke because of my Lupus #MightyTogether #Lupus