Obviously, with chronic illnesses, I’ve been feeling pretty shitty...as per usual. It has its intolerable days ( hence my last post) and tolerable... and everything in between. Ever since I was formally diagnosed with fibromyalgia most of my pain has been attributed to that or endometriosis. A whole lot of ‘it is what it is, you’ve tried all treatments- good luck with life.’ Anyone without chronic illness will say ‘try not to dwell.’ Well, try not to let the door hit you on the ass on your way out, thanks. 🙄
Recently, I’ve had new and different symptoms that I finally decided to go to the dr about. Surprisingly, right now I only have a primary care and endo specialist. Anything that might have been Lupus (aside from the butterfly rash and other small rashes) were thought by my primary to be fibro. Now, I was formally diagnosed at the Mayo Clinic with lupus before my teeth issues. I was put on Plaquenil but only noticed my rashes get slightly better. My dentist didn’t think Lupus had much to do with my teeth and dry mouth but with almost all the symptoms of Sjogrens, it is confirmed. Good to know it wasn’t my fault but fuck having another autoimmune diagnosis.
Anyway, dragged my pained ass to the primary only to have him tell me he’s going to try and pull strings to get me into the Layhey Clinic or Mass General ASAP. I’m glad I listened to my body- which is feeling worse than usual..but now I’m scared. The treatments sound miserable, about as miserable as getting my top teeth pulled at 37. To quote Garth Brooks “I’m much too young to feel this damn old.”
Any and all prayers are greatly appreciated.
Much love to you all.