Erythromelalgia

Hi, my name is ImaginativeOwl671. I'm here because I have been looking at the signs and symptoms of Erythromelalgia and I think I have found what has been my problem for years now. Anyone else here suffer with this?

#MightyTogether

Hi! I am 18, and I have had ME/CFS for 3 years, and Erythromelagia for 1/2? years. I very much suspect hEDS or HSD, as I have a lot of symptoms consistent with connective tissue stuff. My skin is quite stretchy, the skin above my eyelids is quite thin you can see all the veins, I have subluxations, I often can’t get my joints to “sit right” and I have all sorts of “party tricks” with hypermobile knees, shoulders, fingers, wrists, ankles, toes, and my neck range of motion is so insane it looks (AND FEELS) like it’s gonna fall off my shoulders (is that craniocevical instability? Who knows!). There is also, naturally, the fact I’m in fluctuating levels of pain every minute of every day, plus orthostatic intolerance :) My joints have deteriorated in the last couple years, with the subluxations being new. So my question is basically is this smth I should go to the doctor with and be like I think I have this, or am I going to look silly. You guys probably know more about this than my doctors anyway haha. If im gonna be medically gaslit I want to at least be confident I’m right! Thoughts are appreciated on this- Tysm!

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Erythromelalgia #EhlersDanlosSyndrome

Tired all the time nothing works have no energy hard to do anything even basic. Beyond the pain it's biggest issue prevent me from living. What do I do??#Erythromelalgia #Anxiety #chronic illness

I have ME/CFS, erythromelalgia, and what I strongly suspect is hEDS. With that being said, my knees, mostly the right one, subluxate almost daily, and even when it doesn’t come out I sometimes have to “crack it” for lack of better word, in which I straighten my knee as much as it’ll go and it clicks and feels better, for it to feel right. Often when having my legs bent (I.e. sitting on my knees) is when it subluxates. My question is how rare are knee subluxations actually? When I look it up it only shows patella (kneecaps) subluxations and said that real knee ones are quite rare. I’m uncertain because my kneecap looks normal when I know my knee is out partially. To click it back in, I have to straighten it for it to pop back in, and sometimes push it back and like hyperextend it to get it back in fully.

My question is how do I know if it’s my kneecap or my knee, and does anyone have advice on how I can keep it in the freaking socket. Thank you!! 🫶🫶🫶
#Hypermobility #EhlersDanlosSyndrome #MyalgicEncephalomyelitis #Erythromelalgia

Had a breakdown took it out on everyone there so much pressure I'm overwhelmed. How do you deal??? 😱🤯😫😳🤐😬😶. #Erythromelalgia #Anxiety #Depression

Ever since this happened even with a diagnosis I can't move forward and I can't ever go back to the way it was. I'm trapped stuck. #Erythromelalgia #chronic illness #Anxiety #Depression