Erythromelalgia

Join the Conversation on
Erythromelalgia
1.9K people
0 stories
408 posts
  • About Erythromelalgia
  • Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
  • Explore Our Newsletters
  • What's New in Erythromelalgia
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post
    See full photo

    SMALL FIBER NEUROPATHY RESEARCH🔥

    Intravenous immunoglobulin therapy for small fiber neuropathy: study protocol for a randomized controlled trial (de Greef et al.,2016)

    Small fiber neuropathy is the most common cause of neuropathic pain in peripheral neuropathies, with a minimum prevalence of 53/100,000. Patients experience excruciating pain, and currently available anti-neuropathic and other pain drugs do not relieve the pain substantially. Several open-label studies have suggested an immunological basis in small fiber neuropathy and have reported efficacy of treatment with intravenous immunoglobulin. Therefore, immunological mechanisms conceivably may play a role in small fiber neuropathy. To date, no randomized controlled study with intravenous immunoglobulin in patients with small fiber neuropathy has been performed.

    trialsjournal.biomedcentral.com/articles/10.1186/s13063-016-1450-x

    #EMWarriors #Erythromelalgia #SmallFiberNeuropathy #ChronicPain #SFN

    Post
    See full photo

    Ohhhh, I missed a spot! 🥵 — feeling ill.

    #EMWarriors #Erythromelalgia #ChronicPain

    Post
    See full photo

    www.facebook.com/groups/ErythromelalgiaCommunityChat

    #EMWarriors #Erythromelalgia #ChronicPain

    Post

    Dr blocked for my pain meds #ChronicPain #ChronicIllness #Erythromelalgia #Osteoarthritis #RheumatoidArthritis #Fibromyalgia

    This is a 1st for me. I live in a small town with few primary Drs. My primary recently changed & the quality of my Healthcare is lacking while more health issues are popping up. My local hospital has a group which inc a Dr I went to in the past. 1st one I tried to schedule with refused with no reason so I had an appt with my original Dr that works out of there. Got a call they refuse to see me. Was able to speak with their office Mgr & was told it's due to my pain meds & they consider me new even though in the past I was with him for a few years.

    How, esp in a small town can they deny patients? I am beyond upset as if what I deal with on a daily basis isn't hard enough to deal with. I just want to crawl in a hole.

    Post

    I'm new here!

    Hi, my name is larrymcdunna. I'm here because I have trouble falling asleep with a painful redheel and overall itching...

    #MightyTogether #Erythromelalgia