Erythromelalgia

Join The Conversation on
Erythromelalgia
1.7K people
0 stories
376 posts
  • About Erythromelalgia
  • Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
    Newsletters
    Don’t miss what’s new on The Mighty. We have over 20 email newsletters to choose from, from mental health to chronic illness.
    Browse and Subscribe
    What's New in Erythromelalgia
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Question

    Is anyone on Gabapentin for EM? The nausea is real. What works for you? I've tried dry toast, crackers, flat soda etc nothing works.

    #Erythromelalgia #Neuropathy #EMWarriors #EM #EMSupport

    Post

    I'm new here!

    Hi, my name is EMishell2022. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether

    #Erythromelalgia

    Post
    See full photo

    They think I'm a hypochondriac

    Yesterday I was having a flare due to stress and because I'd been walking around for awhile trying to get my chores and errands done. Last on my list was Target for pullups for my son. Of course they're at the way back corner and my feet were on fire and swollen. I decided to use a motorized cart this time. The looks I get when I do that make me want to hide. They think I'm faking it or that I'm lazy because of my weight. I want to show them my bright red and swollen feet as though I have to prove I'm sick. The anxiety from worrying about what people think of me is why I don't go anywhere and just shop online normally. If they knew that I feel like I'm on fire and run the risk of falling when my feet go numb would they still stare? Why do I care so much anyway? Having multiple physical and mental health issues is becoming so debilitating for me. I can't stand being in my body. My family thinks I'm a hypochondriac because it seems like there's always something new that's wrong with me, most of which are invisible. Trust me, being sick is the last thing I want. I miss the old days when my body didn't betray me all the time. I'm jealous of the people who can walk through target without worrying about judgemental looks or being in pain. I miss the days when all I'd worry about is spending way too money on stuff I didn't need. #Erythromelalgia

    Post

    I’m new here!

    Hi, my name is mtdeboth. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #Erythromelalgia

    Post
    See full photo

    It’s ok to not be happy with your body. I know sometimes I’m not.

    #Erythromelalgia #EMWarriors

    Post
    See full photo

    RAISING ERYTHROMELALGIA AWARENESS

    Join our global awareness campaign and distribute our free eye-catching flyers. Without awareness nothing will change! DM admin for more information🥵 #EMWarriors #Erythromelalgia

    Post
    See full photo

    Erythromelalgia Warriors' Awareness pack🥵

    Check out our excellent informative awareness packs. DM admin to purchase

    # #EMWarriors #Erythromelalgia

    Post
    See full photo

    Be Gentle With Yourself #BehcetsDisease #Erythromelalgia #RaynaudsPhenomenon #AutoimmuneDisease

    “Be gentle with yourself” is my new motto. I have been battling several autoimmune diseases for over a decade now. I was always the type of person that never stopped moving, always busy. When I started to become really ill six years ago with Behçet’s, my world was turned upside down. I could no longer do all of the things I used to do and started to feel extremely guilty. Daily mundane tasks, like cleaning, became virtually impossible for me to do.
    For years, as my health declined, so did my mental health. I became depressed and I always felt like I was being judged by those around me. Being lazy was not in my nature, but I feared that others would see me as being just that.
    On various occasions, I would push my body too hard and then would make myself sick for days afterwards.
    Eventually, I came to realize that in order to justify my illness, I was making myself sicker.
    Now, I listen to my body. When I am not feeling well, I rest. When my body tells me “no more,” I stop. I have learned that taking care of myself is essential if I want to have any semblance of a life. For those of us who are chronically ill, we have to learn that putting ourselves first is not selfish, but a necessity. So remember: be gentle with yourself and take care of you. You are worth it. ❤️

    Post
    See full photo

    Chronic adventures

    Well, I guess my b12 is super low. Why? I have no good reason. Wait, AND Glossitis!? Just another day in my wacky world of chronic adventures!! Waiting for the last test to come back, so this waiting is done. For now. Yah chronic sh*t! #forreal #ChronicPain #ChronicIllness #Erythromelalgia #RareDisease #Colectomy #neuromodulators #Arthritis #IBS #constipation #Migraine #Disability #MentalHealth #Depression #Anxiety #PeripheralNeuropathy #Undiagnosed #raynauds #Hypertension #GERD #Heartburn #glossitis #Inflammation