Erythromelalgia

I have ME/CFS, erythromelalgia, and what I strongly suspect is hEDS. With that being said, my knees, mostly the right one, subluxate almost daily, and even when it doesn’t come out I sometimes have to “crack it” for lack of better word, in which I straighten my knee as much as it’ll go and it clicks and feels better, for it to feel right. Often when having my legs bent (I.e. sitting on my knees) is when it subluxates. My question is how rare are knee subluxations actually? When I look it up it only shows patella (kneecaps) subluxations and said that real knee ones are quite rare. I’m uncertain because my kneecap looks normal when I know my knee is out partially. To click it back in, I have to straighten it for it to pop back in, and sometimes push it back and like hyperextend it to get it back in fully.

My question is how do I know if it’s my kneecap or my knee, and does anyone have advice on how I can keep it in the freaking socket. Thank you!! 🫶🫶🫶
#Hypermobility #EhlersDanlosSyndrome #MyalgicEncephalomyelitis #Erythromelalgia

Had a breakdown took it out on everyone there so much pressure I'm overwhelmed. How do you deal??? 😱🤯😫😳🤐😬😶. #Erythromelalgia #Anxiety #Depression

Ever since this happened even with a diagnosis I can't move forward and I can't ever go back to the way it was. I'm trapped stuck. #Erythromelalgia #chronic illness #Anxiety #Depression

Hi, my name is CharlotteE534. I want to find new info

#MightyTogether #Erythromelalgia

I have ME/CFS, erythromelagia, and symptoms congruent with POTs that come and go. I understand post exertional malaise, ofc I have had that constantly since getting the disease. However, my body has reached a point where I can get through a day of school or through a really stressful week of finals, and I won’t crash until after the stressor (school or having to do responsibilities etc) is gone. Does anybody know how this happens? Does it have to do with adrenaline or cortisol? Is there any reading I can do into this? Thank you! #ChronicFatigue #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #Erythromelalgia