Erythromelalgia

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I survive the day at school, and only start to feel really sick after I get to relax

I have ME/CFS, erythromelagia, and symptoms congruent with POTs that come and go. I understand post exertional malaise, ofc I have had that constantly since getting the disease. However, my body has reached a point where I can get through a day of school or through a really stressful week of finals, and I won’t crash until after the stressor (school or having to do responsibilities etc) is gone. Does anybody know how this happens? Does it have to do with adrenaline or cortisol? Is there any reading I can do into this? Thank you! #ChronicFatigue #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #Erythromelalgia

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DO YOU TAKE ANTIDEPRESSANTS AS PAIN MANAGEMENT?

A recent meta-analysis reveals several antidepressants with statistically and clinically significant positive outcomes for pain relief. Tricyclics and SSRI's, for example, can be very helpful in erythromelalgia. Do any antidepressants help your erythromelalgia? www.medcentral.com/pain/antidepressants-for-pain-management-... #erythromelalgiawarriors #Erythromelalgia #EMWarriors

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GETTING CALLED LUCKY!

Many erythromelalgia sufferers are unable to work. Has anyone been told that they should consider themselves lucky that they don't have to hold a job down? 🙄#EMWarriors #erythromelalgiawarriors #Erythromelalgia

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PAIN , PAIN, GO AWAY!!!!!!

Don't know about you but I don't want to talk or have anyone near me when I start to flare🔥. I just want my cooling fan, wet towel , my numbing cream and to be alone.#EMWarriors #erythromelalgiawarriors #Erythromelalgia

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I’m here to be a support for members

My name is Michael Ann. I have had erythremia going on eight years and I’ve been active in the Erythromelalgia Warriors for most of that time. I am hoping to be a support and answer questions and help you find which you might need to find on the erythromelalgia warrior site . The site has been a godsend for me, I hope it is for you too.

This is a disorder that we will probably live with for a long time but that doesn’t mean it has to stop us from having a good productive happy lives.

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Job hunting with chronic illness.

How do you get a job with chronic illness?? Do you ever feel discriminated against??? Are you honest do you conceal your health issues?? #Erythromelalgia #chronic illness #Anxiety

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