Familial Dysautonomia

Today I’m feeling gratitude for water, the source of life that composes 60 percent of my body. Life can only survive in a very narrow range of temperature. Water is essential to sustaining that temperature range inside each one of us and within the world around us. In fact, every biochemical reaction that occurs within [...]

“I should come over and talk about the test results in person,” our son’s pediatrician said over the phone that Sunday night in January, almost exactly six years ago. I knew what his words meant, and I collapsed on the stairs in my parents’ house, where my son and I were staying for the weekend [...]