Inappropriate Sinus Tachycardia

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I’m new here!

Hi, my name is Allison. I've been diagnosed with: autism, ADHD, anxiety, depression, OCD, PTSD, eating disorder, ARFID, POTS, inappropriate sinus tachycardia, CRPS/RSD, learning disabilities, ambulatory wheelchair/mobility aid user, etc

#MightyTogether #disabled #actuallyautistic #autistic #Anxiety #Depression #OCD #PTSD #eatingdisorder #eatingdisorderrecovery #arfid #pots #InappropriateSinusTachycardia #dysautonomia #crps #rsd #eds #LearningDisabilities #ambulatorywheelchairuser #ambulatorymobilityaiduser

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38 reactions 19 comments
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A little bit broken

It was time to buy a house. My boyfriend was ready to start looking, possibly find his next home, possibly find a flip, he didn’t know, but the time where he was currently renting was coming to an end.

Within a day of looking, that was it. He’d found one. Stumbled upon it driving around after work and contacted the realtor from his previous home sale to get a tour. (This is a story about experience, I promise. Just bear with me. We’ll get there.)

After the walk through, the excitement was palpable. The plans he laid out were grand, and he had them planned to a T. “This wall will go down, and I’ll put a door there. That will be the laundry, and here will be the guest room….”

Everything looked great on paper, all the ideas drawn in graphite and smudged with the massive rubber eraser on neatly lined grids. I’d even stopped by the hardware store to pick up paint samples just for fun and he had chosen a color scheme. Next thing we knew, he had the inspections lined up, and all.

The day of the inspections was ungodly hot, something obscenely over 100°F, and the AC was broken in the room we all decided to gather in to go over the findings. Why, you ask? Don’t ask me, I have no idea. Probably to make this story more amusing for the retelling down the line….

“The septic’s fine,” one man says. “Absolutely nothing wrong.”

Something settled on my shoulders is lifted with those words.

“There’s no spiders, no beetles, it’s pretty clean overall,” the pest inspector says.

Another weight is lift-

“Except the termites in that wall, that wall, and over there.”

Slam. The weight comes crashing back down.

I turn to my boyfriend, expecting to see the same weight curving his shoulders forward, maybe making his features fall just a little. But instead he just nods and says, “Okay.”

Okay? Okay?

Nothing worrying, no hesitation, just a little nod and an okay?

It didn’t stop there. The roof needed to be replaced. Some siding. Insulation in the attic. The list went on and on, with terms I didn’t fully understand but sounded massive in my mind.

But he didn’t even flinch. Just nodded and gave another, “Okay.”

Okay. Okay. Was that code?!

Was there something I was completely missing or-

The next day the realtor called him with her recommendation on how to go in with an offer. He agreed and sent it in. I was terrified that the sellers would be offended and simply say no and the house, the ideas, all that planning would just be…. gone.

The following day early morning they accepted the offer, no counter.

As I sat there washing my hair later that afternoon it came to me that all those things had to go wrong, in order for the end result to be right….

And how that so often applies to life. (I told you it was about experience.)

How things have to fall a little bit apart in order to come together.

Not one thing in life goes truly to plan. There’s always something, some hiccup that alters the list just a bit.

But I guarantee if you go back and look, sometimes that slight alteration made it fall into place all the more snuggly.

This is something I understand on a very intimate basis.

I suffer from multiple chronic health conditions, many of them “invisible”, but every bit as debilitating.

Every day I have a plan, a road map, if you will, for how I want things to work out, and sometimes before I’m even out of bed, we have a hiccup. Sometimes I make it till after breakfast. Sometimes till evening. But the day would be suspicious if it actually worked correctly.

So often it can get overwhelming and I feel somewhat trapped in my own body, like I’m still that 17 year old dancer who could get up at 8 AM and go until 2 AM, every day with no problem…. But I’m not. I have a body that would riot if I even thought of doing that again, and would make sure I didn’t try again.

And I’ll admit, sometimes I get a little huffy about it.

But then I remember.

Sometimes things have to fall a little bit apart in order to come together.

Including me.

How boring I would be if everything just worked out perfectly.

Let there be hiccups.

Let there be errors.

I’m here for the typos.

The autocorrect, and the messages with *’s after that almost always lead to laughter.

The GPS that doesn’t take you to the right place, or the AI that can’t process that right now.

Wherever the road takes me, and however it decides to tell my story, I’m just going to sit back and enjoy the ride….

And remember…. How things have to fall a little bit apart in order to come together. (See, aren’t you glad you kept reading?)

#MentalHealth #AutonomicDysfunction #ChronicFatigue #ChronicFatigueSyndrome #Dysautonomia #Fibromyalgia #ChronicPain #PolycysticOvarySyndrome #MedianArcuateLigamentSyndrome #nutcrackersyndrome #EhlersDanlosSyndrome #EDS #IrritableBowelSyndromeIBS #Gastroparesis #InappropriateSinusTachycardia #NeurocardiogenicSyncope #POTS

(edited)
6 reactions 1 comment
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I’m new here!

Hi, my name is Katie. I'm here because i need to have some community support that understands my struggles with chronic illness and being 22 and disabled.

#MightyTogether #PTSD #Anxiety #Depression #ehlers-DanlosSyndrome #complexpost-traumaticStressDisorder #InappropriateSinusTachycardia #Migraine #Gastroparesis #GastroesophagealRefluxDisease

22 reactions 8 comments
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I'm so tired all the time.

I can't ever remember feeling so tired every bone in my body feels like im going to spontaneously fall apart. Its been months and it doesn't seem to be letting up anytime soon. I feel like my limbs has a 10 pound weight attached to them and my head always hurts. I don't know what has caused this or how to help myself feel any better. #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #InappropriateSinusTachycardia

5 reactions 3 comments
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I’m new here!

Hi, my name is Jill. I'm here because I need some help staying positive. A year of no working, thousands in credit card debt, car is only a few miles away from breaking down forever, waiting for my second appeal with disability to happen, all while my friends and family still can’t understand why I’m like this.

#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #Migraine #ADHD #Fibromyalgia #Hypersomnia #OCD #ChronicDailyHeadache #InappropriateSinusTachycardia #PosturalHypotension #DegenerativeDiscDisease

9 reactions 2 comments
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Forgetfulness as a Gift | Tiny Zebra Notes

Let’s hear it for us awesome #neurodivergents who gift ourselves with surprises because we easily forget! That’s one of many upsides of being someone with frontal lobe and executive function deficit disorder and multi factorial
#ADHD (inattentive type), I don’t always remember the productive things I’ve done until I stumble across it later on. It makes the stumbling feel less like a distraction and more of a purposeful discovery. What will you accidentally gift yourself today?
#neurodivergence #Neurodiversity #MentalHealth #executivefunctiondeficitdisorder #PTSD #ObsessiveCompulsiveDisorder #FrontalLobeDeficit #EhlersDanlosSyndrome #InappropriateSinusTachycardia #AutonomicDysfunction #ChronicPain #TinyZebraNotes

13 reactions 1 comment
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I’m new here!

Hi, my name is MummyTut82. I've been diagnosed with so many illnesses diseases that at age 40 and Mum of 3 darling children, I have lost all quality of life and I'm scared of myself honestly.. For I can't keep just 'existing' like this and I know it is destroying my children's hearts watching me so sick ... it breaks me more every minute coz I honestly believe they shouldn't have to see Mummy this way anymore it isn't fair on them... #icantdothis😮‍💨 #heartbroken💔 #idontwanttoleavemybabies😪 #itisjustfartoomuchtohandle💔

#MightyTogether #PTSD #Fibromyalgia #Anxiety #Depression #ADHD #OCD #Grief #Leukemia #FunctionalMovementDisorder #DiabetesType2 #Cancer #RheumatoidArthritis #OpticNeuritis #NeurocardiogenicSyncope #DemyelinatingNeuropathies #CeliacDisease #InappropriateSinusTachycardia #congenitalheartdefect/Disease #BirthDefect #IronDeficiencyAnemia #Arthritis #ArteriovenousMalformation #SuicidalThoughts #chronicactiveepstein-BarrVirus #ChronicIllness #polycysticovarysyndrome(PCOS) #Hyperparathyroidism #ThyroidCancer #Cardiomyopathy #CardiovascularDisease #CongenitalVascularCavernousMalformations

9 reactions 3 comments
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I'm new here!

Hi, my name is Mrshandy0116. I'm here because my husband of 17 years just realized that RA wasn’t just arthritis despite me telling him over and over. Past year I was diagnosed with Inappropriate Sinus Tachycardia (heart rate went over 200 bpm), had abnormal stress test, cardiac catheterization revealed elevated pressure on right side of heart, suffered a terrible fall, became anemic requiring 8 treatments of intravenous iron, underwent upper endoscopy and colonoscopy, gastritis, diagnosed with diverticulitis large and small throughout my large intestine and I’m scheduled for cervical fusions at c5-c6 and c6-c7 in February.

Husband stopped working 11 years ago due to chronic pain secondary to many back surgeries. So with all my health issues I work almost 50 hours per week to support our family with two teenagers still at home. He’s narcissistic (so was my first husband), mentally and verbally abusive to me and our children and could care less about us. Always stressful at home and my work is stressful and demanding (management) but I continue to work everyday while he sits in his recliner watching tv. He calls me lazy and other things because I don’t clean the house like I used to when he had surgery after surgery when the children were toddlers. Not supportive and I’m dreading being off from work to recover from surgery.

I’m happy to be here and sorry for my rant!!

i#MightyTogether #Depression #Migraine #Fibromyalgia #RheumatoidArthritis

13 reactions 3 comments