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Pain has caught up with me.... #ChronicPain #Fibromyalgia #IIH

All my housework yesterday has made me flare today. I hate these conditons. I just wish i could live a normal life. #FedUpWithHavingtoExplain #fedup


How do you deal with a boss who has not responded to you keeping them in the loop on your illness? #FunctionalNeurologicalDisorder #ChronicPain

I have kept my boss updated with everything that has been happening with me since I have been in the hospital and since I’ve been out. I work in Homecare, take care of others. I got out of the hospital on Tuesday afternoon. I was in there because I started having symptoms of a stroke, speech and balance off. Thankfully scans show no hemorrhage. They still discharged me with TIA but also with Conversion Disorder (that’s another story)
I was scheduled to work with a client 45-60 minutes away on this coming Sunday. I had been in email contact with them since I’ve been out. I have received no response, none. I went out for the first time since the hospital to go to the store with my mom who was visiting and helping me out. I’m walking with a walker, I thought I was stronger to be able to take care of my client, but I did not have the strength to get through most of the store.
I called my work and they switched off the phones due to the holiday. I had to call off for Sunday and Monday.
I still stutter a lot but I’m hoping that I will be able to get off the walker soon.
My main question is what do you do when it seems like your boss is ignoring you. I’m so fed up with them that I’m wanting to quit.
If I don’t hear from them on Monday, I will be calling her supervisor and fill her in on this. It’s been one week since I’ve had any contact with them. #FedUpWithHavingtoExplain #ChronicIllness


Does anyone else feel like they have to wear a sign that says "Immune compromised" when you go to the store for the elderly/immune compromised hours?

I feel like I need an ID card or a lanyard that says I have RA and Fibromyalgia and I take an immune suppressant. The glares of the store employees with that "sure you do" look is awful. I feel like I have to explain myself every time I walk in. #RheumatoidArthritis #Fibromyalgia #FedUpWithHavingtoExplain