fightforacure

Today is an important day for so many all around the world. "So many" also includes my twin sister and those of us who support her in her fight with a #RareDisease that causes #ChronicPain .

Today is also about hope.

We have hope that one day medical professionals from all around the world, working together, will find a #Cure for Trigeminal Neuralgia. Until then, we stay mighty, supporting those we love in this fight.

Stay strong, Mighty TN Warriors.

Much love to all TN Warriors and those that support them!💙 #TrigeminalNeuralgia #TN #TrigeminalNeuralgiaType1 #TrigeminalNeuralgiaType2 #RareDisease #ChronicIllness #ChronicPain #fightforacure #tnwarriors

They say put on a happy face
don’t let them see you cry It’s impossible to do it all so why must we even try

Stay positive and upbeat you have to remain strong But why is it that being weak is frowned upon and wrong

My body wants to give up but my heart’s still in the fight No matter what it takes I’m gonna push with all my might

People seem to come and go pretending that they care Grateful for my husband who has and will always be there

I know I am fortunate to have him by my side Sadly for a lot of us nobody holds on for the ride

Why can’t they see we didn’t want it this way
If only we could go back to our healthier days

My body is broken and consumed with pain But I push forward with faith knowing I have so much to gain

God is good He has never let me down
He paid the ultimate price
For me to wear my crown

Because of Him healing will come And because of Him
I will continue to run

#RareDisease #FibrosingMediastinitis #PulmonaryArterialHypertension #ChronicIllness #fightforacure #alwayshavehope