I'm not difficult just passionate about my health
My last ER visit inspired this blog. It is interesting to me how advocating and educating yourself on your illness, considers you to be a difficult patient. I have come to realize that doctors are intimidated by a patient like me that don't just sit around and "woe is me" mentality. I don't just rely on their expertise nor do I always take their advice so then I'm combative, not cooperative and difficult patient. No one deserves to feel that way. I would think a doctor would be ecstatic that you are doing your own homework and research on how you can live a peaceful life at least, but no... I get the "I know too much" or "why are you here if you know what to do" it makes someone like me not want to go to the hospital. I've told my husband several times don't take me unless I have stopped breathing at this point. Why keep going through the humiliation?! It doesn't just happen to the chronically illness community, it happens big time to POC. I can't keep being quiet about it. I know my purpose is to advocate not just for the sick but all people and women. POC and women I see are mainly affecting by this so when will this end?! Any doctors that are reading this blog post right now, please don't think we are trying to tell you your job. We know our bodies more than anything and because of my awareness doesn't mean I should be treated inhumanely at times. Taking an oath also mean respecting your fellow man no matter race, creed and or religion, so please honor the oath. Keep fighting!! You matter!!
Ana 🦓💪🏾💖♿ #EhlersDanlosSyndrome #Dystonia #lifeonwheels #LifeofanEDSerwomanofcolor #Advocacy #RareDiseases #EDSAwareness #Depression #Anxiety #fightforyourrightswhenyouhavethefighttodoso