IgA Nephropathy

Join the Conversation on
IgA Nephropathy
107 people
0 stories
6 posts
  • About IgA Nephropathy
  • Explore Our Newsletters
  • What's New in IgA Nephropathy

    I’m new here!

    Hi, my name is schultra. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #Depression #IgANephropathy #ChronicKidneyDisease #transplant


    What should I do next?

    I am 26 years old and I have had chronic pain all of my life. They said it was carpal tunnel and tendonitis when I was in middle school. I have also had issues with migraines, diagnosed celiac, and IGA nephropathy. Recently my joint pains have been affecting my mobility. I had some positive test results for ana and inflammation in April. I recently went to MUSC and they said my recent set of blood work is completely normal other than ana of 1:80. What do I do with normal blood work but constant pain?


    The good thing that is happening.

    Several weeks ago, I started a free trial of the NOOM app. Like a lot of people with fibromyalgia and autoimmune diseases, I have gained over 100 pounds over the last 20 years. This past year, I gained almost 40 pounds while on massive steroid treatments for my IgA Nephropathy. I have been struggling to breathe and even had to go on oxygen. I lost 20 pounds on my own, then lost another 5 with help from the app. The weight loss is very slow, but it is staying off. I feel a lot better. Because of that, I am motivated to keep going. It is very hard, but feeling better makes all of the difference in the world. So, that is my good thing!


    Has anyone in this group ever participated in a clinical trial? #ClinicalTrial


    1 comment