IgA Nephropathy

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IgA Nephropathy
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    I’m new here!

    Hi, my name is schultra. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #Depression #IgANephropathy #ChronicKidneyDisease #transplant

    3 comments
    Post

    What should I do next?

    I am 26 years old and I have had chronic pain all of my life. They said it was carpal tunnel and tendonitis when I was in middle school. I have also had issues with migraines, diagnosed celiac, and IGA nephropathy. Recently my joint pains have been affecting my mobility. I had some positive test results for ana and inflammation in April. I recently went to MUSC and they said my recent set of blood work is completely normal other than ana of 1:80. What do I do with normal blood work but constant pain?

    Post

    The good thing that is happening.

    Several weeks ago, I started a free trial of the NOOM app. Like a lot of people with fibromyalgia and autoimmune diseases, I have gained over 100 pounds over the last 20 years. This past year, I gained almost 40 pounds while on massive steroid treatments for my IgA Nephropathy. I have been struggling to breathe and even had to go on oxygen. I lost 20 pounds on my own, then lost another 5 with help from the app. The weight loss is very slow, but it is staying off. I feel a lot better. Because of that, I am motivated to keep going. It is very hard, but feeling better makes all of the difference in the world. So, that is my good thing!
    #CheckInWithMe

    Post

    Has anyone in this group ever participated in a clinical trial? #ClinicalTrial

    #IgANephropathy

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