IgA Nephropathy

Hi everyone! There is a clinical study for IgAN that is looking to evaluate the study drug, ADX-097 to see if it may lessen symptoms and reduce kidney function loss. The study is currently enrolling patients in the United States. Visit this link app.patientwing.com/campaign/mighty-igan to get more information about the study and submit a short questionnaire to see if you pre-qualify. If you know anyone who may be interested, feel free to share the link with them. #IgANephropathy

Hi, my name is schultra. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether #Depression #IgANephropathy #ChronicKidneyDisease #transplant

I am 26 years old and I have had chronic pain all of my life. They said it was carpal tunnel and tendonitis when I was in middle school. I have also had issues with migraines, diagnosed celiac, and IGA nephropathy. Recently my joint pains have been affecting my mobility. I had some positive test results for ana and inflammation in April. I recently went to MUSC and they said my recent set of blood work is completely normal other than ana of 1:80. What do I do with normal blood work but constant pain?

Several weeks ago, I started a free trial of the NOOM app. Like a lot of people with fibromyalgia and autoimmune diseases, I have gained over 100 pounds over the last 20 years. This past year, I gained almost 40 pounds while on massive steroid treatments for my IgA Nephropathy. I have been struggling to breathe and even had to go on oxygen. I lost 20 pounds on my own, then lost another 5 with help from the app. The weight loss is very slow, but it is staying off. I feel a lot better. Because of that, I am motivated to keep going. It is very hard, but feeling better makes all of the difference in the world. So, that is my good thing!
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#KidneyDisease

#IgANephropathy