kallmann

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    A rare condition that is embarrassing to talk about.

    I have Kallmann syndrome, a form of hypogonadotropic hypogonadism which causes puberty to fail, which in turn mean patients are normally infertile.

    It is not a well-known condition and I was dismissed as a "late bloomer" or "late developer" even at the age of 23 after I had left university.

    It is not an easy condition to talk to anybody about, the lack of physical development makes people feel shy and isolated and can have difficulty forming emotional and physical relationships. Even with treatment we still do not go through normal puberty and remain infertile unless we have expensive, difficult to obtain specialist hormone replacement therapy.

    Even when diagnosed it is not an easy condition to talk about amongst friends or family due to the very private nature of the condition. The fact that the condition also causes infertility can increase the need to keep the condition private in some family situations.

    All this makes raising awareness of the condition more difficult. As a patient with the condition, I can see why my fellow patients do not wish to talk about their condition to others and I totally agree with them.

    However, I do like talking about my condition and I refuse to be embarrassed just because I have this condition. I am happy to talk about my condition with anybody to help raise awareness. Early diagnosis and early treatment can be very beneficial.

    #kallmann  
    #puberty  
    #Rare  
    #testosterone

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