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    Community Voices

    Join us in our new Mighty group… Infertility In Focus!

    <p>Join us in our new Mighty group… <a href="" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce8c00553f33fe994f9b" data-name="Infertility" title="Infertility" target="_blank">Infertility</a> In Focus!</p>
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    Community Voices

    how the Duggar trial affected me so profoundly

    Part 1 of 2 The Duggar trial and the plethora of information to be found has proved to be an obsession for me. As a survivor of CSA and rape, I have read, watched and listened to anything and everything about the trial, verdict and the aftermath. Somehow I thought watching him be convicted and incarcerated would bring me some kind of “closure”. It didn’t. The person who abused me as a small child was technically a child as well.  I told a social worker at school when I was nine. He was not yet eighteen, but close, He was convicted as a minor and sent to a “boys home” for psychiatric treatment for a year or so. He was allowed to finish High school. He was gifted with a college education. He was able to marry a woman with small children and was later allowed to foster and adopt vulnerable children from foster care. He is a “pillar” of his business community and his so-called christian community. He is also a child molester. He violated my body and soul in terrible ways. I was a very small child. I was clearly and firmly prepubescent and he was not. He is a bad person who did terrible things and has been rewarded and given everything by society. I got nothing, except a lifetime of PTSD and #Infertility. “Justice” was served I guess. My suffering and the execution of my childhood mean nothing. The enormous economic, psychological, relational and physical toll I have been forced to endure and suffer are inconsequential and meaningless. I’m guess i’m just being dramatic and “jumping on the metoo bandwagon”as far as most are concerned. All the opportunities that were destroyed and stolen by him don’t matter and I should “stop playing the victim”.

    Society at large refuses to care or recognize the damage done by those who delight in the soul murder of children. They blame survivors, young and old, and demonize us for having any reaction except silence or capitulation to their feelings and their imagined narratives about us and our #Abuse. They demand we never show the negative repercussions we live with, every single day. They demand to know why we “let it happen” and didn’t go to police and subject ourselves and families to the injustice of the system. They call us “bad witnesses” and feel sorry for and make excuses for our violators. They demand we navigate society “normally” while never providing any real help to us. They blame us for failing to engage fully in life , for being unable to recognise or trust in opportunities presented, for becoming addicts or mentally ill and call us weak or lazy for it. They can’t even handle hearing the details of what was done to us but we are weak for being unable to be “normal” while we had to live it. Those horrific things Josh Duggar had on his computer are the things he did or wanted to do to small children. These things are the things real people do to real children, every day, and record it for posterity. Children who are abused have to live with all of it in their memories, brains and bodies, every single moment they continue to breath. This is reality. We don’t get to close our minds or ears to the horror, and neither should society.

    People who perpetrate, fund or enable #Abuse, like Josh Duggar and his community who enabled him, need to be held accountable. All of them. The lifelong treatment required for victims to thrive must be fully funded and made available. Society must truly denounce and stop enabling the rape of children by meeting out real justice and funding the real and proven (not some undereducated, unlicensed non #Trauma informed “spiritual counseling”) #Trauma therapy and lifelong support all sexual #Trauma survivors need and deserve. Perpetrators and the people who purchase, possess or even look at this material should receive long prison sentences and mandatory lifetime sex offender registration and treatment. They should earn their freedom only when their victims no longer suffer from negative repercussions and they have taken full and honest accountability for every single act and offense they committed against their victims and society.  They must be held to account every time a survivor of their willful and purposeful soul murder has a #MentalHealth setback or physical issue caused by their choices. They should NEVER be allowed to live with or adopt any children, ever. Maybe then we can stop them. Maybe then fewer children will be permanently scarred by this #Abuse. Maybe then children could be saved and maybe then, survivors w

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    Community Voices

    What they don't tell you in Sex-Ed..

    Part 1 of 2 Throughout my school years I attended many #sexedclasses they all covered different aspects however all had a very common theme in them which was “If you have #Sex without protection you WILL get pregnant” they went into great details about safe sex and how to practice it, they even spoke about options if you were to fall pregnant, and the help and support out there.I’m 25yrs old and I have carried those lessons around with me in my head for years but not because what I learned from them but because of what they were lacking, you see the word #Infertility never came up in those lessons, what it was or why it happened, never mind support for it. Instead I learned the word as I watched my older siblings battle against it as #Infertilitycame banging on their doors yet I was still absolutely clueless on the full meaning until it came banging on mine last year.Since then I’ve been on this journey that I was not prepared for, I’m in a rollercoaster that has sharp bends and big loops yet my seatbelt does not do up instead I’m having to hold on as tight as I can and try to grab supplies to fix my belt just as I’m collecting knowledge about this unknown subject a subject that I should of been taught on.What to do when you want to start a family yet your haunted with negatives every month?How to accurately track your ovulation days and how many days your cycles are?What to do if your not in a #Relationships but you want to become a Mummy? And the stigma around it?Information about sperm donorsInformation about IVFThe anger and grief you go through everyday and how it comes in waves and some of the waves can knock you down for what seems like weeks..How to deal with the overwhelming guilt you feel when you feel such pain when a family member or friend announces they are expectingConstant Dr appointments and the tests with the exact same responses “try to loose weight” “your time will come” “your still young you got time”Feeling such a type of broody that it actually hurtsMy life has become a draw full of pre-pregnancy supplants, ovulation tests, pregnancy tests, ovulation/period tracking tools, donor information, tables and charts and notes and Dr letters. I’m having to learn about all about this while living through it however I know exactly how to put a condom on and the different types of contraceptions there are and my rights if I wanted to terminated so why didn’t I know anything about #Infertility, how didn’t I know that #Infertility affects 84% of couples and half of women, how didn’t I know that there are so many different types of #Infertility ranging from just taking a long time to get pregnant to illnesses such as #PolycysticOvarySyndrome, how didn’t I know that the fact that I didn’t start my period till I was 18 could have something to do with my now issues to conceive, how didn’t I know that sometimes I won’t get a period but not because I’m pregnant but because my hormone levels can’t regulate, how didn’t I know that at just 25yrs old I would be experiencing isolating nightmare.I think that’s the main thing people forget to tell you about the trying to conceive journey is how #lonely it is, I struggle to connect with my peers because of how cut of this journey has made me, I feel like I’m in a prison where #Infertility are the bars while I’m looking through watching my friends and family live their lives, lives without negative tests, appointments, draw fulls of supplants and failed tests, baby clothes that stay in the closet for what may even be forever and there is nothing they or anyone can say to make this better.I wish they would of mentioned this all in sex ed, honestly that could of put people off the idea of reproducing all together because I wouldn’t wish this journey on anyone but at least I would of been prepared and that I wouldn’t have to be battling blind through this beast. #Infertility and trying to conceive needs to be spoken about more and it needs to be a conversation that is had at schools that

    Community Voices

    What they don't tell you in Sex-Ed..

    <p>What they don't tell you in Sex-Ed..</p>
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    Community Voices

    Not a teenage, skinny white girl

    “Wait? Are you going to eat that? You’ll gain weight!” “Congratulations, you’ve lost weight – now lose some more and then you’ll be happy”. These are some thoughts, people with #AnorexiaNervosa may experience, and I wanted to help spread awareness of the topic. I have suffered from an #EatingDisordersanorexia, and It’s the eating disorder I feel most able to talk about. However, we mustn’t forget that despite anorexia being the most publicized, it’s by no means the only eating disorder, or necessarily the most dangerous, and all eating disorders are serious and require help and intervention, and only 10% of diagnosed eating disorders are Anorexia Nervosa.

    When you think of anorexia, what do you think of? A skinny girl? Someone on a diet that’s gone too far. Someone who wants attention. Let me tell you this. Anorexia is rarely any of these. It’s not the often depicted skinny, teenage white girl who has ultimate self-control, anorexia is overweight people of color, middle-aged men, healthy-weight women, and takes in every shape and form- it’s a state of mind, not a look. The media often glamourises anorexia, making it seem like ‘the perfect diet’, bombarding our social media feed with ‘how to lose a stone in a day’ or people showing off their perfect breakfast, of a glass of lemon water with a side of air captioning it ‘big breakfast today!’

    This is not anorexia, anorexia is hell. I’ve missed many social occasions and I’ve broken trust, and that doesn’t even begin to describe the impact of anorexia on my life. Nothing, absolutely nothing is glamorous about that. I’ve had doctors tell me I was just killing myself, meanwhile, I was thinking about how I could get away with skipping my next meal.

    It controls your life. So don’t for one minute think anorexia is self-control. It’s being so out of control that you care more about depriving yourself of food than anything else in the world. I’ve lied to people that were just trying to help and support me in the past, just so I could please an illness that was trying to kill me. What’s so glamorous about that? And I would go to extreme lengths to comply with the illness, to please its demands.

    Not all people with anorexia are emaciated (in fact 97% of those with eating disorders are not underweight). Not all calorie count, excessively exercise, purge, wear baggy clothes or have fear foods. You can have anorexia, and not have/do any of those things. Eating disorders are so individual, and BMI should never determine an eating disorder diagnosis. It’s an eating disorder, not a weight disorder. Someone’s weight says nothing about how much or little they are struggling.

    The reality of anorexia, is hair loss, #Infertility , extreme coldness, #Insomnia , tiredness, and you know what? 1 in 10 die from it. As I said before, what’s glamorous about that? And if someone with anorexia hasn’t been hospitalized, force-fed, impatient etc, they are equally as valid, equally as in need of help. Anorexia can be lonely people on online forums competing to be the illest. Anorexia can be falling so behind in education that you feel you’ll never catch up, anorexia is not dramatic. Anorexia is your life slowly falling apart, piece by piece until you have quite literally lost everything you once had. Anorexia is so many things, but please do not portray it as the skinny white girl in magazines.

    The media doesn’t necessarily cause all eating disorders or is the absolute sole cause of them, but they certainly normalise disordered eating. Why should I care what user2737482 on Instagram is having for dinner? I need to nourish my body, as do you, and that’s that.

    If you take away one thing from this article, let it be that you never know what someone is going through, and don’t make any assumptions about people’s mental state by their appearance, but if we treat each other will compassion and love, we can’t go too far wrong 🙂

    Community Voices

    Prolactin and Antipsychotics

    Little background - I've always had irregular periods but for the past two or three years I've only had like 7 periods, if that. So I finally went to a gyno and they did a blood test of hormones and my prolactin came back super high, which can stop periods and cause infertility. Turns out antipsychotics can cause this, my question is - what's my alternative? I need it but I'm having an adverse reaction.

    Community Voices

    Need someone to talk to…

    <p>Need someone to talk to…</p>
    10 people are talking about this
    Community Voices
    Community Voices

    6 months waiting list for DBT

    My partner and I just moved to a new state and I’ve been really wanting to do DBT. Where we lived before, there wasn’t much to offer there. So moving was great for me in that sense. But nobody can get me in so I’m on a 6 month waiting list. My BPD is getting worse. I’m dealing with infertility at 34 and the depression and the anxiety has spiked worse than it has in years. I was told by a therapist I’m on the low end of the spectrum of BPD. Meaning most my BPD symptoms come out during romantic relationships. So I’ve never been a cutter. But lately, I’ve attempted it. I started with just clawing my wrist to now, I’ve attempted it but haven’t actually done it. I need help and have no one to turn to. Can anyone suggest to me how I can help myself until I can start the DBT therapy. I can’t live like this anymore.

    14 people are talking about this
    Monika Sudakov

    The 5 Best Period Tracking Apps for People With Endometriosis

    Full disclosure: I haven’t had a period in 10 years since I had a hysterectomy. Back then I tracked my period and symptoms the old-fashioned way, with a calendar and a pen. Obviously, technology has monumentally shifted the ways in which we can do things like track our periods and this has some plusses and minuses. I was curious to see what was out there and to find out which apps were worth investigating if you are trying to track your period. I discovered some fascinating things. First, almost all the period tracking apps in existence are geared toward fertility and pregnancy. There’s nothing wrong with that, however, my focus was on finding apps that were uniquely well suited to tracking the symptoms and irregularity of periods that are common with those who have endometriosis. It is through this lens that I took a deep dive into the world of period tracking apps. My methodology was meticulous. I downloaded the top 10 apps available and then established accounts on every single one. For the ones that had both paid and free options, I explored both to assess what you could get with the free versions versus the paid versions. For paid apps, I set up free trials so that I could investigate every aspect of the app. After spending hours going through the usability, efficacy, reviews, and cost/benefit analysis of each app, I have narrowed things down to the top five apps that I think offer the best features for someone using them with the intent of managing their endometriosis. 1) Flo Period & Ovulation Tracker This app scores 4.8 Stars with 826K ratings. Developers are very responsive to both positive and negative feedback which makes it a dynamic and more reliable app. It is used by 230M women and co-created with 100+ leading health and medical experts and acclaimed medical institutions. The app is a partner of the United Nations Population Fund in the area of reproductive health and it was voted Best Fertility App in 2020 by Healthline. When you log in it immediately asks if you have irregular periods, whether you have a history of reproductive disorders including endometriosis, whether you have trouble sleeping, whether you have any mental health concerns, sexual activity concerns, fitness goals, or skin condition concerns. Daily information logged includes: sex and sex drive, mood, symptoms including common digestive issues with endometriosis, vaginal discharge, other (travel, stress, disease or injury, alcohol), and a section for personalized notes. Based on your entries, it suggests daily insights with articles that are reviewed by medical professionals, including leaders in the field of sex education like Dr. Emily Nagoski, author of “Come As You Are.” Each insight includes educational information, recommendations for how to address any issues, workout suggestions, dietary advice, and more. While the participation of high-profile educators and medical professionals isn’t in and of itself a guarantee of quality, in this case, it does provide a level of heightened legitimacy that I personally appreciated. It has a reports section offering various analyses including cycle length, period length and intensity, patterns of your body, and a graph of events. It also has the option to create a report for your doctor, which would be very handy for sharing information relevant to the diagnosis of endometriosis. My favorite feature is the “Secret Chats” section. You can search by topics, cater your feed based on interests you have selected including “Endometriosis Support,” and follow individual users based on your preferences. It is a multi-faceted platform that includes information on a wide range of topics relevant not just to reproductive health, but mental health and lifestyle as well. The cost for this app is $7.99 per month or $39.99 per year if you pay in full. The cost was the most common complaint in the reviews, particularly from long-time users who began using the app when it was free. If I were to pay for an app, however, this would be it. I found it to be extremely user-friendly and thorough and it had a lot of added content that would make the cost worth the investment. I’d give this app an A. 2) Eve by Glow — Period Tracker This app scores 4.7 stars with 103K ratings. The biggest complaints about the app were that the free version is very limited, it constantly prompts you to upgrade to premium, and some of the sex information was too graphic. There were also several comments suggesting that the app says it is “inclusive” but that it seems geared toward a very cisgender population in language and content. The app advertises itself as a period tracker and sex app. It offers daily sex quizzes to become a sexpert. This seems to be its unique gimmick. It has a log-in button that says “Get It, Girl” which immediately makes it seem not very gender-inclusive. There are extensive options of data to enter daily including: Did you take your pill? Did you get some? mood, sex drive, symptoms, flow, discharge, anything off down there? exercise, and did you indulge? Each section has a fairly comprehensive list of options, which again makes it not just a good nuanced symptom tracker for reproductive health issues like endometriosis, but actually a comprehensive lifestyle tracker. It has a daily offering of articles to peruse, many of which have topics that seem like they came out of Cosmopolitan magazine like “Blow Job Moves” and “Hotter Sex.” It also has a very active community that you can customize by topic, group, and followers. This section is pretty cool and I could see it being very useful. Anecdotally the Endometriosis Support group has 33,753 members, so that’s encouraging. It also has a section called “Wishlist” where you can request and send gifts to other members: for example, baby supplies for someone who has recently gotten pregnant after infertility issues due to endometriosis. One note of caution: If you have a history of sexual violence and are still actively in trauma recovery, some of the content on this app might be triggering. Additionally, it is not suitable for younger users due to the graphic nature of its sexual content. The basic app is free. Premium membership unlocks comparative insights, premium content, private messaging, custom profile, and premium support. The cost is $29.99 for 3 months, $59.99 per year or $79.99 for lifetime. Considering what you actually get access to with the free version, this app is pretty comprehensive. It’s a little busy, but I could see using the free version of this app personally; therefore, I’d give it a B+. 3) Period Tracker Period Calendar This app scores 4.9 stars with 114K ratings. The biggest complaint users had was that there are too many ads. The developer states that the ads are how they keep the app affordable, although the pricing structure is comparable to all of the other apps, so this is a slightly dubious claim. The app is used by 240 million women. Goal options for the app include: track my period, try to conceive, and track my pregnancy. Features include compatibility with Apple Health and Apple Watch and it allows you to export reports to your doctor. The extensive symptom list includes head, body, cervix, fluid, abdomen, and mental health categories. It also has a diary feature. The “Self Care” section has “Soundscapes,” menstrual cramp relief ideas, programs like Kegel exercises, workout plans, facial care suggestions, meditations, stretching regimens, and a breast self-exam section. The holistic approach focus of this app makes it unique and appealing to someone who is trying to tackle all aspects of their reproductive health. It also has a forum where users can post comments and questions and interact with one another, but it isn’t as user-friendly as some of the other apps. Additionally, the app has custom profile options allowing you to select a theme and pet, which is cute for younger users. It’s fairly straightforward to use as far as entering data, but there are some language issues. They actually have a section to suggest errors in translation and recommend changes, so they are aware of the issue. The cost for this app is $9.99 per month or $49.99 per year if you pay in full. For the cost and usability, I’d give this app a B-. 4) Clue Period & Cycle Tracker This app scores 4.8 stars with 319K ratings. It has very easy to access support for issues with the app which is appealing considering that the most common user complaints were that the app crashes frequently, it makes you select period tracking or pregnancy tracking, people have lost their data when the app was updated, and many of the features are only available for premium membership. There is also concern over the developer’s privacy policy. This app was named the Best Fertility App of 2022 by Healthline and the Top Free Period Tracker App by Obstetrics & Gynecology Journal (ACOG). The daily symptom tracking has sections for bleeding, pill, sex, skin, emotions, pain, and weight, but the options for each section were limited to four choices, which isn’t nuanced enough to give meaningful information on possible reproductive issues like endometriosis. The best part of the app is the content section, which has extensive information and articles on a myriad of topics including birth control, fertility, sex, menstruation, issues and conditions (including endometriosis), and LGBTQIA+. It also has an “Ask a Scientist” section which has information on gender & sexuality, the science of sex, understanding fertility, mental health, health disparities, and PMS: fact or fiction. The app itself isn’t as user-friendly as others and the charts are a little convoluted to read. I almost wish you could access the content section without the rest of the app. Its biggest plus is how inclusive it is, making a point to state that the app is for “anyone who menstruates.” The cost for this app is $9.99 per month or $39.99 per year if you pay in full. Membership includes science-based articles, monthly emails with cycle statistics, six upcoming cycle predictions, analysis of your cycle patterns, pregnancy, and postpartum tracking. Basic free membership only includes period predictions and symptom tracking. I’m not sure it would be worth the cost for the paid membership so I give it a C+, but it might be a good option for a very basic free period tracker. 5) My Calendar — Period Tracker This app scores 4.8 stars with 29K ratings. The most common comments were that it’s easy to use and accurate. The daily log includes categories for sexual activity, symptoms, moods, birth control, medicine, temperature, and weight with a healthy list of options for each which makes it a good nuanced app for tracking possible symptoms of endometriosis. It also allows you to set reminders for medication, birth control pills, meditation, and cycle. There are customizable themes and reports that can be generated and forwarded to a medical professional, but not a lot of other bells or whistles. It really is a basic period and pregnancy tracking app. It’s fairly easy to use and not very flashy. The app is free with ads. The cost for this app is $23.99 premium for a year or $69.99 for life. I wouldn’t pay for this app because the paid version doesn’t come with a lot of extras, but would consider the free version for basic period tracking, so I give it a C. So what are my biggest takeaways after investigating period tracking apps? That trying to decide on a period tracking app without having any kind of guidance would be a huge crapshoot. There are so many and they are so diverse in their functionality and efficacy that I would be daunted trying to choose one that fits my needs. Hopefully, my research and notes are useful in helping you select one that will enable you to make more educated decisions about your reproductive health and wellness. A couple of final notes. I want to caution anyone utilizing these apps as a means of tracking ovulation for birth control. None of them can accurately predict that kind of information, so I’d recommend more reliable forms of family planning. Secondly, I happen to be the kind of person who will only use an app if it is extremely intuitive to use and doesn’t bombard me with ads. I lose patience quickly if the data entry process for logging symptoms is too tedious. Others might be more apt to take the time to do so, but I’ve deleted a number of health and wellness apps because I wasn’t willing to spend 15 minutes a day using them. That’s a personal bias of mine that is reflected in my assessment of each of these apps.