Kallmann syndrome / congenital hypogonadotropic hypogonadism (CHH) - when a "late bloomer" does not bloom.
Kallmann syndrome / CHH is a rare hormonal condition that affects puberty. Patients do not start or fully complete puberty.
There are a number of other physical symptoms that are associated with the condition, most notably perhaps, a lack of sense of smell (anosmia) which is the defining symptom of Kallmann syndrome but not found in CHH.
Aside from the physical problems that may arise from having hypogonadism it is the psychological problems that patients face which are often overlooked.
Not having a normal puberty and adolesence, especially in those patients who are diagnosed late can lead to problems in forming emotional and physical relationships. It can be an embarrassing condition to talk about which does not help in social confidence.
Most patients are able to overcome the shyness or lack of confidence but it can take time. Being infertile is also a major problem for some. Even though fertility treatments are available they are not always easy to obtain.