Hi, I am Shalvee Kasture, a student who has been advocating for Lipedema. For the last few years, I have been learning more and more about lipedema and doing my best to support women who have had the disease. As someone who is at risk for this disease, I want to support the community as best as possible and learn more about this condition. I would love to chat about my nonprofit or hear about every one's experience with chronic illness.
1 reaction Hi, my name is Meloncita041511. I'm here because over the past 10 years I have been suffering of chronic pain related to my back, lipedema, chronic arthritis and recently over the past month I have been experiencing an overall sun burned sensation throughout my whole body. It is accompanied by pins and needles sensation to both my hands and feet that my anxiety triggers. My doctor is unable to tell me what is wrong with me. I researched signs of flared skin and tingling of hands and feet and found this site. Reading the symptoms others experience with the flare up of their fibromyalgia I believe what I have is fibromyalgia. How do I get my doctor to recognize this. He states my symptoms stem are related to problems with my spine as I have a lot going on with misalignments, spurs, and so on, but I strongly believe my symptoms are from fibromyalgia.
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Hi, my name is Kazmiki. I've been diagnosed with stage 4 Lipoedema and secondary Lymphoedema and I am neurodivergent and struggling with daily pain and reduced mobility and body dismorphia. I also care for people with mental illness and other chronic conditions.
3 reactions Hi, my name is rachelmiranda. I'm here because I live with Ehlers-Danlos Syndrome, Lipedema, and Interstitial Lung Disease. I am looking for resources, support, and community about living with chronic illness--and looking for a partner while living with these things. I'm also a creative writer, always looking for new pathways to write about this life.
#MightyTogether #PTSD #Grief #EhlersDanlosSyndrome
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Hi, my name is ME55. I'm here because lipedema has taken over my life, sparked a bad case of lymphedema, and left me surprised, angry, frustrated, embarrassed...you name it. I want to benefit from others' knowledge to make the best of this mostly untreatable condition.
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Hi, my name is shadow611. I've been diagnosed with hEDS and Lipedema
#MightyTogether #Anxiety #Depression #Migraine #AutismSpectrumDisorder #Grief
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When I started this #Lipedema and #fat shameing group, I envisioned an environment where those of us living with disfiguring and uncomfortable blobs of fat we can't get rid of, could talk. Though I'm certain I'm not the only person, particularly among women, dealing with this kind of disfigurement, that appears to be the case on this particular site. So, let's let this one lie fallow for awhile. Blessings
Not many people probably think that tampons have anything to do with accessibility but they do. I have been using the same brand fr 30yrs U by Kotex Security. This brand is the only kind that fits my body my hands can grip it with one hand, not 2, and insert almost flawless. Unfortunately they discontinued them. I bleed monthly and go through a box or 2 depending on if I’m having a heavy flow, I never know when this will be. I have to always wear heavy absorbing just in case. But now I’m supposed to rely on other brands that I’ve tried that I can’t even use one handed. Did this company not take into account that they run the market for heavy flow hygiene products? Those with endometriosis or pcos or have hormone fluctuations will now have to rely on inferior products, that aren’t as accessible. I started a petition if you can please sign and share chng.it/L9NvTVjgqr #Endometriosis #PolycysticOvarySyndrome #hormoneimbalance #Lipedema #Accessibility #ThyroidDisease
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