Hi everyone! I've jumped headfirst into the world of chronic illness thanks to a flare up with my high intensity workout routines suddenly being too much for my body and another following my second Pfizer shot. I was diagnosed with thyroiditis with the exercise intolerance and have gotten my meds sorted for that since, but my fatigue never improved much. I ended up reading about EDS a bit more and realized how much it matched my experiences growing up, but the reason it took so long to look at EDS in depth was because, well, my PCOS and thyroid have me prone to weight gain and my stature is short, short, short. So I never thought it was even an option until I did the research.
My question is, for those of you who received diagnoses, is there anything you feel helped your doctor understand you and take your concerns seriously? I have a doctor I trust but I'm concerned she'll want me to see a specialist (she's internal medicine, MD), and I have had bad luck with referrals most of my life. In particular I've had some really upsetting experiences trying to get my fatigue treated prior to my current doctor, and the thought of being dismissed or insulted by someone who doesn't know me or my medical history again gets under my skin in a way that makes me so anxious. Any advice would be great—and I hope it's okay to post in this group even without an official diagnosis! If not I'll be sure to delete my post.
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