Polycystic Ovary Syndrome (PCOS)

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Polycystic Ovary Syndrome (PCOS)
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  • About Polycystic Ovary Syndrome (PCOS)
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    What's New in Polycystic Ovary Syndrome (PCOS)
    Community Voices

    Ovary Removal

    <p>Ovary Removal</p>
    2 people are talking about this
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    Discontinued Tampons

    <p>Discontinued Tampons</p>
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    Recently diagnosed grade 2 Diostolic Dysfunction and scared

    I went to ER recently and after a ton of testing I was told my heart was slightly to mildly enlarged and that the echo showed that my heart struggles to relax. The Emergency department didn’t make it seem like a big deal, in fact they didn’t even tell me the name of the heart issue. I looked at my medical records and saw stage 2 diostolic dysfunction and haven’t stopped panicking since. My X-ray looked good except the slight heart enlargement, it said no sign of heart failure, the troponin was elevated then lowered then elevated again and stayed steady on the 4th one. They didn’t do any cath test or stress test. They only did ekg which was normal, holier monitor for 12hrs which was normal, CT and chest X-ray. I am 34 and over 400lbs. I have been working on weight loss a lot lately and I never knew there was a issue with my heart. I had palpatations off and on for years and had a full cardio work up in 2017 and in 2020 and everything was normal. I have sleep apnea but I use CPAP, I have hypothyroidism but I use Levothyroxine. I know my colesterol was high in the past but it hadn’t been tested since 2020. I have occasional bouts of hypertension but it’s usually at the doctor and normally it’s between 116/80 to 130/80. The BP was really high at the hospital. I’m also pre diabetic and have PCOS. I’m not a big fan of taking meds and would love to be able to treat this holistic. I’m really scared I’ve been given a death sentence. I’ve been eating heart healthy since I left the hospital 4 days ago but I did a drastic dip in calories out of anxiety. #dostolic Dysfunction stage 2

    4 people are talking about this
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    Community Voices


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    Join us in our new Mighty group… Infertility In Focus!

    <p>Join us in our new Mighty group… <a href="https://themighty.com/topic/infertility/?label=Infertility" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce8c00553f33fe994f9b" data-name="Infertility" title="Infertility" target="_blank">Infertility</a> In Focus!</p>
    1 person is talking about this
    Community Voices

    advice on healthily loosing weight with an ED, HEDS, PCOS, Depression etc. ??

    I am currently quite overweight and I want to get into better shape and loose weight for myself and was told to by my doctors. but that seems almost impossible with all of my illnesses. First of all I have an Eating disorder (not specified, more binge eating) which makes food and body image very complicated and then I have PCOS, hashimoto’s and hypothyroidism which is already hard to loose weight with on top of hypermobile EDS which makes getting active and moving physically very hard and painful and to top it off low energy and motivation with depression. I’m trying to do this to just slightly feel better but I don’t exactly how. How do you stay in shape with these kinds of setbacks? i’m open to any advice! Thank you <3 #BingeEatingDisorder #PolycysticOvarySyndrome #HypothyroidismUnderactiveThyroidDisease #HashimotosThyroiditis #HEDS #hypermobileehlers-DanlosSyndrome(hEDS) #EhlersDanlosSociety #EhlersDanlosSyndrome #Depression

    35 people are talking about this
    Community Voices

    Breaking free


    I wanted to share with everyone my journey through breaking free from my attachment issues, anxiety and toxic environment.

    A little back story: My name is Sally, I am 28 years old diagnosed with Rheumatoid Arthritis, anxiety,depression,PCOS and binge eating disorder. My life was semi on hold for 6 years now because of all my illnesses. I had anxiety for as long as I remember I think from the time that my father passed away when I was 5 years old. My mother also suffers from all the diagnoses I have which made it hard for her to care for my emotional needs.

    My family is very toxic, since I was young I was made fun of how I look and how I weight. No one really cared about me when I was sick too which made me unaware about my health and made me accept a lot of pain that could have been taken care of if I listened to the signals my body gave me. I actually gave up on living and was living like a zombie until now.

    A year ago I met my boyfriend, a guy from South-Korea who has treated me with care and love for this whole year and made me realize how easy it was for my family to help me get out of this emotional pain. If there was just a part of the support my boyfriend gave me from them maybe I wouldnt have suffered this much.

    My mother is very protective and controlling. I never could make choices in my life, I also never slept over at someone or travelled with friends or alone.

    But I too was overly attached to my emotionally unavailable mother always begging to be loved. But when time went by I noticed that I was stuck while everyone was going forward. My brother who is 5 years younger than me got married which kind off pulled a plug in me.

    I am so happy for him but I also felt a big embarrassment and disappointment in myself and all the things my mother and stepdad said came in to mind.

    "No one wants a fat woman" "you are disgusting" "I will only hug you if you lose weight "you cant sit on my bed you might break it"

    My health was never their priority it was always how I looked. I was unhappy and I was sick, I barely ate but my anxiety made me always throw up or binge eat but all that mattered is how I will look at my brothers wedding.

    I decided it was time for me to take distance from them and decided to move to South-Korea for a few months until the wedding to be with my boyfriend. My anxiety was killing but I am managing it by writing here and being aware about my feelings.

    A lot of thoughts in my mind "Your boyfriend will also think you are disgusting" "His parents will hate you because you are sick and fat"

    I felt so sad thinking those things since I was always a person who had a lot of confidence and amazing energy.

    Tomorrow is the day that I will leave for the first time in my life I made a decision on my own and I chose to get out of my comfort zone and tackle my mental illnesses hard to be happy.

    Its been enough. I had enough of hating myself while i have been through so much and still am going through a lot. I had enough of my family treating me this way but me still being so attached to them and being scared to leave the toxic environment.

    Only God knows how sick I feel right now to leave but its my first step to happiness and healing.

    I hope I can share this journey with you guys and people who have some tips and tricks please let me know. The love is needed as I really have no one around me to support me at the moment.

    I am sorry for the stories being so messed up together its because I am writing through my emotions now but I promise I will keep you guys updated and will write in a more understandable way next time.


    #Depression #Healing #Arthritis #BingeEatingDisorder #Anxiety #Toxic #PolycysticOvarySyndrome

    11 people are talking about this
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    Community Voices

    What they don't tell you in Sex-Ed..

    Part 1 of 2 Throughout my school years I attended many #sexedclasses they all covered different aspects however all had a very common theme in them which was “If you have #Sex without protection you WILL get pregnant” they went into great details about safe sex and how to practice it, they even spoke about options if you were to fall pregnant, and the help and support out there.I’m 25yrs old and I have carried those lessons around with me in my head for years but not because what I learned from them but because of what they were lacking, you see the word #Infertility never came up in those lessons, what it was or why it happened, never mind support for it. Instead I learned the word as I watched my older siblings battle against it as #Infertilitycame banging on their doors yet I was still absolutely clueless on the full meaning until it came banging on mine last year.Since then I’ve been on this journey that I was not prepared for, I’m in a rollercoaster that has sharp bends and big loops yet my seatbelt does not do up instead I’m having to hold on as tight as I can and try to grab supplies to fix my belt just as I’m collecting knowledge about this unknown subject a subject that I should of been taught on.What to do when you want to start a family yet your haunted with negatives every month?How to accurately track your ovulation days and how many days your cycles are?What to do if your not in a #Relationships but you want to become a Mummy? And the stigma around it?Information about sperm donorsInformation about IVFThe anger and grief you go through everyday and how it comes in waves and some of the waves can knock you down for what seems like weeks..How to deal with the overwhelming guilt you feel when you feel such pain when a family member or friend announces they are expectingConstant Dr appointments and the tests with the exact same responses “try to loose weight” “your time will come” “your still young you got time”Feeling such a type of broody that it actually hurtsMy life has become a draw full of pre-pregnancy supplants, ovulation tests, pregnancy tests, ovulation/period tracking tools, donor information, tables and charts and notes and Dr letters. I’m having to learn about all about this while living through it however I know exactly how to put a condom on and the different types of contraceptions there are and my rights if I wanted to terminated so why didn’t I know anything about #Infertility, how didn’t I know that #Infertility affects 84% of couples and half of women, how didn’t I know that there are so many different types of #Infertility ranging from just taking a long time to get pregnant to illnesses such as #PolycysticOvarySyndrome, how didn’t I know that the fact that I didn’t start my period till I was 18 could have something to do with my now issues to conceive, how didn’t I know that sometimes I won’t get a period but not because I’m pregnant but because my hormone levels can’t regulate, how didn’t I know that at just 25yrs old I would be experiencing isolating nightmare.I think that’s the main thing people forget to tell you about the trying to conceive journey is how #lonely it is, I struggle to connect with my peers because of how cut of this journey has made me, I feel like I’m in a prison where #Infertility are the bars while I’m looking through watching my friends and family live their lives, lives without negative tests, appointments, draw fulls of supplants and failed tests, baby clothes that stay in the closet for what may even be forever and there is nothing they or anyone can say to make this better.I wish they would of mentioned this all in sex ed, honestly that could of put people off the idea of reproducing all together because I wouldn’t wish this journey on anyone but at least I would of been prepared and that I wouldn’t have to be battling blind through this beast. #Infertility and trying to conceive needs to be spoken about more and it needs to be a conversation that is had at schools that