I'm new here!
Hi, my name is RubyPterodactyl. I'm here because.....
#MightyTogether #Anxiety #Depression #ADHD #AutismSpectrumDisorder #Migraine #EhlersDanlosSyndrome
Hi, my name is RubyPterodactyl. I'm here because.....
#MightyTogether #Anxiety #Depression #ADHD #AutismSpectrumDisorder #Migraine #EhlersDanlosSyndrome
I have been a writer for many years, both as a creative artist and an academic. I know words and have no shortage of them, but I have never considered that my voice as an individual was worth documenting in a journal or any type of blog that involved my personal story (or stories).
I was diagnosed with Young Onset Parkinson’s Disease (YOPD) at 34, about a month before my 35th birthday, after nearly a year of tremendous suffering.
The journey from my PCP being concerned I had MS (which I had little awareness of and was immediately relieved to learn it was Parkinson’s disease, which was one of the few neurological diseases I was aware of) to having each specialist put me into smaller categories that eventually led me to the serious question of YOPD, which was confirmed with the tremendously successful trial of Carbidopa / Levodopa that supported every clinical symptom I had been dealing with for years.
I had no idea so many of the different random health issues I had been suffering were all connected to this singular disease.
Never in my wildest dreams did I imagine I would reach the point in my suffering that I prayed for a Parkinson’s diagnosis if it meant there was some relief to be had. That is the low I hope no one ever has to experience, and if you have, I hope that we can connect- regardless of what trials you face (YOPD or no).
I am here to write, to learn, to grow, to connect, and to hope my voice is not lost on a community of people who might understand, when the body of people I have largely known my entire life are still wrestling too greatly with their own processing of this to handle the gravity of it.
More to come.
#ParkinsonsDisease #MightyTogether #ADHD #Autism #DegenerativeDisease #Grief
Returning to work after his 2021 stroke, James Austin still had to operate the pinball machines at Houston's The Game Preserve arcades. His $35 device lets wheelchair users, hemaplegics, or anyone with trouble standing at the table, play pinball along with everyone else!
Now all 100 machines at The Game Preserves are accessible, and James is selling the device in cities across the country. As a vet, he's trying to get them into VA facilities.
Hear the great story of a creative, generous man. wheelieoutthere.blogspot.com/2026/09/youtube-video-player.html
#stroke #Disability #Wheelchair #MightyTogether #MultipleSclerosis
Hi everyone, I’m Jodie and I’m new to the community. I finally took the leap to make an account because I am feeling incredibly isolated and physically exhausted down to my very bones.To share a bit about my neurotype and background, I am an AuDHD (Autism + ADHD) adult tradesperson. My brain runs on high-intensity logic, deep pattern tracking, and analytical execution, which means I can mask my struggles pretty heavily in the outside world. But behind that mask, I operate under extreme executive function fatigue and live with zero natural interoception.Right now, my body is in an active medical crisis. I am navigating a massive metabolic crash from severe Hashimoto's hypothyroidism (TSH 35.2), along with Fibromyalgia, POTS/dysautonomia, and Idiopathic Hypersomnia. Because of the intense deep sleep drive and nerve tracking, I manage a daily baseline of neurogenic bladder and bowel dysfunction, meaning waking up to heavily saturated overnight briefs is my standard reality. Managing this hidden medical gear and chronic pain while forcing my body through physically punishing manual labor has left my energy reserves completely dry.When I’m offline and resting my body, my personality is rooted in my special interests. I love deep-diving into complex anime lore, analyzing the world-building frameworks of webnovels, and hanging out with my wild co-pilot cat, MustacheCat.I joined The Mighty because I want to find a safe space where I can entirely drop the mask. I hope to connect with other analytical, neurodivergent women and chronic illness warriors who manage similar complex logistical gear with total neutrality and zero judgment. I’d love to meet some people to share comfort, swap tips on daily pacing, and remind each other that we aren't broken. Thanks for welcoming me to the sisterhood.#MightyTogether #newhere #Fibromyalgia #AutismSpectrumDisorder #ADHD #pots #neurogenicbladder #IdiopathicHypersomnia #Dysautonomia #chronicmigraines #Depression #Anxiety #Grief #catsofthemighty
Hi everyone, my name is xJodie94. I finally took the leap to make an account today because I am a 36-year-old AuDHD woman feeling incredibly isolated and exhausted. I’m currently navigating a severe metabolic crash (Hashimoto's TSH 35.2), Fibromyalgia, and Idiopathic Hypersomnia. Because of my severe deep sleep drive, POTS/dysautonomia, and pelvic spasms, I deal with a daily baseline of neurogenic bladder and bowel dysfunction, meaning I wake up to completely saturated overnight briefs most mornings.Trying to manage this hidden medical supplies and chronic pain while working a grueling physical labor job has left my energy reserves completely empty. It is so easy to feel like I’ll never be a "normal" girl under these conditions. I’m looking to connect with other women who manage similar complex neuro-physical conditions and logistical gear with total neutrality, so we can share comfort, tips, and remind each other that we aren't broken. #ChronicFatigue #POTS #NeurogenicBladder #Hypersomnia #Dysautonomia #AutismSpectrumDisorder #ADHD #PTSD #EatingDisorder #Grief #MightyTogether #Migraine #Anxiety #HashimotosThyroiditis #Dyslexia
Hi, my name is stefanpro. I'm here because I'd like to share my experience here
Hi, my name is Fox,I am here as an HSP,but I don't like myself
#MightyTogether
Hi, my name is relentlesstrier. I'm here hoping to find sincere connection and support from people who “get it.” I've been battling mold illness and the systemic consequences I've been sidelined by thanks to my prolonged exposure to hidden mold. I already had autoimmune issues (Hashimoto's Hypothyroidism) prior to my exposure, but managing this degree of complex illness for this long has been exhausting, disheartening, relentless, and isolating beyond my wildest imagination. I am an expressive empath, and hope to not only find connection and community for myself, but to show up for all of you as well. Life has been extra lifey for so long now, finding the strength to remain optimistic and hopeful becomes harder every day. But, I am committed to putting one foot in front of the other. I know storms pass. I'm just holding on for dear life until this one does. It’s my sincere privilege to meet you all and hear your stories. 💓🫂
#MightyTogether #moldillness #HypothyroidismUnderactiveThyroidDisease #ChronicIllness
Hi, my name is theauthorsonali. I'm here because
What No One Warned Me About Infertility: The Depression That Came With It
When people talk about infertility, they talk about the medical parts — the IUIs, the IVF, the endless appointments. What they rarely talk about is what it does to your mind. For me, the hardest part of trying to conceive wasn't any single procedure. It was the quiet depression that settled in somewhere between the hope and the disappointment, and refused to leave.
I was diagnosed with PCOS at seventeen. Years later, when my husband and I started trying for a baby, I thought my science background — I studied bioinformatics — would somehow protect me. I understood the hormones. I could read my own charts. But understanding the biology did nothing to soften the emotional weight of it.
There's a particular grief in infertility that's hard to explain. You grieve something that never existed. Every negative test is a small loss. Every pregnancy announcement is a complicated ache — happy for them, hollowed out at the same time, then guilty for feeling hollow. After repeated failed cycles, an unexpected IVF round, ovarian hyperstimulation, surgery, and a painful tubal pregnancy, I stopped recognizing myself. I withdrew. I smiled through conversations while feeling nothing. I told everyone I was "fine."
If you're in that place right now, here's what I most needed to hear back then: what you're feeling is real, and it is not a weakness. Infertility-related depression is common, and it is valid. You are not being dramatic. You are not ungrateful. You are carrying something heavy, mostly in silence — and that would wear anyone down.
A few things slowly helped me. Naming it mattered: the moment I let myself say "I think I'm depressed" instead of "I'm just tired," I could finally reach for help. Talking to a professional mattered — I wish I'd done it sooner instead of treating therapy as a last resort. And finding other women who had been through it, who didn't offer "just relax and it'll happen," reminded me I wasn't broken or alone.
I started writing, too. At first just for me — a way to make sense of the science and the sorrow living side by side in my body. Eventually it became something I wanted to give away, so the next woman sitting alone in a clinic waiting room might feel a little less alone.
If you're struggling today, be gentle with yourself. Reach out — to a partner, a friend, a counselor, a community. There's no timeline you're failing to meet. You're allowed to grieve, and you're allowed to ask for help.
It does get lighter. Not all at once, and not on any schedule — but the version of you that feels this heavy right now is not the version you'll be forever. You are not alone in this. I promise you that.
Author bio: Sonali Sheetal Appikonda is the author of Turning Fertile*, a memoir about PCOS, infertility, and pregnancy loss. She holds degrees in bioinformatics and computer science.