NES

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I’m struggling, I need encouragement

I’ve been losing more friends since my non epileptic seizures started and when I got FND. One of them complained to another friend that I talk too much about my chronic illnesses, doc appts, etc. Why do people not understand this is a major part of my life. I don’t have much of a social life because of my conditions and the little bit I get out is mainly to see doctors now. I feel so unloved and I feel like my seizures was the last straw and people don’t want to deal with a “liability” I feel so lonely. I only have a small handful of friends that still care and take care of me. I’m reaching rock bottom, I don’t know if I can handle another diagnosis. I just wish things were the way they were before all of this. I miss the healthy me. Love y’all keep on going. Keep on fighting. You got this. #FunctionalNeurologicalDisorder #NES #PosturalOrthostaticTachycardiaSyndrome #jackhammer esophagus #gastropathy #Anxiety #Depression #IrritableBowelSyndromeIBS #ChronicMigraineSyndrome #CheerMeOn

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Can’t Stay Asleep; Night Eating Syndrome

It’s been about a decade that I’ve struggled with waking up about every 2 hours during the night which morphed/combined into NES (night eating syndrome). I know, NES kind of sounds like a fake thing, but it isn’t. While I can find lots of journal articles that describe it, I can’t find any treatment or advice to get it to stop. It controls my life, weight and health. I’m constantly exhausted. Falling asleep - no problem. Staying asleep - definitely a problem. #NES #cantstayasleep

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