We're so glad you're here. Scroll down to find some of the Crohn's conversations happening in our community. The more, the merrier—jump in anytime!
1. It’s full of other people with connections to IBD.
2. It’s a safe forum to ask any and all IBD questions.
3. It’s a way to connect with others on the Mighty community.
4. I’m one of the group leaders (living with #UlcerativeColitis ), and I’m pretty cool.
5. We want to normalize talking about poop.
6. We do Q&As with partners like Girls with Guts.
7. It’s a small but “Mighty” community that we want to grow.
8. It’s supportive.
9. Why not?
10. Do it today!
You can search the groups to join. #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #IrritableBowelSyndromeIBS
What is something you wish people knew about living with Crohn's?
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Just spent most of the last 24 hours pouring over unorganized information about something I had zero information on last week. Came to the realization that many of the medical issues I’ve dealt with over the past 30 years can all be attributed to MS except for a torn meniscus. IBS, Kidney Stones are the two symptoms that dominated my medical symptoms in my late 20’s and 30’s. I’ve tried many different diets to attempt to limit my symptoms with nothing actually helping.
Is there a Diet App or program that helps with the MS symptoms? Are there any that are covered by medical insurance?
Thanks for your help.
Rick
I’m a longtime member of the chronic illness crew—been navigating Crohn’s for almost a decade now. On top of that, some of my closest friends deal with things like IBS, food allergies, bloating, etc…. If you’re here, you probably know how much of a struggle it can be to figure out what foods help and what foods hurt.
Recently, I started working on something I hope can make a real difference in our community. I’m building an app to help people like us without just relying on medication, hopefully leading to have fewer bad days and more control over our choices! 💪
But here’s the thing: I don’t want to base it exclusively on my experience or just guess at what other people need, I want this to benefit all of us so would love to know:
What problems do you face when it comes to food and symptoms?
Are you already using any apps to manage your health? If so, which ones? What do you love or hate about them?
What features would make the perfect app for you?
If you could have a dream solution for managing your food triggers and symptoms, what would it look like?
I know this struggle all too well, and I want this app to actually help people - not just be another thing that sits unused on your phone. If you have a minute, I’d love to hear about your experiences. Your input could really help shape this into something that works for all of us. 🙏
Thanks in advance for sharing your thoughts, and sending you all a little extra patience and strength for the journey. 💚
Looking forward to hearing your stories,