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"Halloween is for everybody.”

To Gina Schuh, 40, a Mesa, Arizona real estate investor and a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. “I think [the costumes] are my claim to fame."

Many of us who use mobility aids have struggled at times with others’ staring. There’s something joyous then about costuming you and your cane/chair together and encouraging even more staring but on your terms. This is me. This is my chair/cane. Also, my costume’s better than yours.

Check out the hilarious pics in the article and comments.

They Came from Planet Wheelchair! How Costuming Your Wheelch...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

They Came from Planet Wheelchair! How Costuming Your Wheelchair Adds to the Halloween Fun

Making costumes that work with a wheelchair takes creativity and commitment, but for those who go all in at Halloween, the experience also offers something unexpected: empowerment.
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"The point is: stop measuring your worth by what you used to do. Fatigue management isn't about hustling harder — it's about surviving smarter.

"Some days you'll feel semi-functional, and other days you'll be a human houseplant. Either way, you're doing just fine. Be gentle on yourself.:

I didn't even read this entire article yet, but that bit above is right on. We are on a marathon, not a sprint. Symptom management is not precise, but we learn as we go on.

Sorry that work has kept me away a lot lately, but I'll be back soon. Have a good weekend, all.

Sick and Tired of Being Sick and Tired: MS Fatigue

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Sick and Tired of Being Sick and Tired: MS Fatigue

MS fatigue isn’t “just being tired.” It’s neurological chaos that drains your battery faster than caffeine can load it. Spoiler: naps don’t fix this.
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This is one I'd share with my 'younger self' (and he probably wouldn't read it)

Some really valuable MS life-skills. Things like self-advocacy and "staying active" took me years to learn.

www.healthcentral.com/condition/multiple-sclerosis/tips-for-...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Dover UK man with MS sets world record for the half-marathon

“When I run, I feel like I’m taking control - not just of the pain, but of the condition itself," says 26yo Tom Means. He won the Saxon Shore Half Marathon in one hour, 33 minutes and eight seconds.

"Running is one of the only things that eases the heaviness in my legs," he says. He also experiences numbness, brain fog and slurred speech. To help control these symptoms, Tom gets Ocrevus treatments.

He ran in honor of his sister and father, who also have MS. His famous run raised money for his sister's treatment center.

"I firmly believe that exercise and nutrition are some of the biggest factors in living with MS," he says. "It's a small part you can play in your own MS journey that could make a massive difference in the long run."

A #MultipleSclerosis dx does not mean your life is over. Ironically, it often makes you even stronger.

Man, 26, diagnosed with incurable illness breaks Guinness World Record

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Man, 26, diagnosed with incurable illness breaks Guinness World Record

A man with multiple sclerosis (MS) has been awarded a Guinness World Record - and now has his sights set on the next Paralympics.
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Rant: I just browsing an article about a so-called four stages of MS, and it was such cookie-cutter Internet garbage. Very offensive.

To attract our clicks, Internet writers want to reduce things into small, simple lists: the five things you need to do, the seven things behind such-and-such, the one ingredient that will supercharge your this-and-that. This article was on a very professional- and expensive-looking website. It was a blog, but the hosting website made it look very important. The author had zero credentials. He could be a person with MS, or a doctor, or a freelance writer trying to rake in a few bucks — we just don't know.

I hate articles like this because they reduce complicated conditions and situations into Lego blocks. Especially with MS, where even researchers are coming to understand the complex disease in almost spectrum-type terms, it's dumb and destructive to pigeonhole millions of people with only a few outcomes. Someone newly diagnosed could read this article and its conclusions, and think, 'What's the point in trying?'

End of Thursday rant. Also, get offa my lawn! Ha ha

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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Selma Blair is a big fan of hitting the snooze button. If only her therapy dog, Scout, an English red fox Labrador, would let her stay in bed.

“Even though I’m doing really well, fatigue is really, really hard for me,” says the actress, who has been living with multiple sclerosis since 2018. Scout helps her get up, and then stretching and coffee help her ease into the day.

What's your morning routine, Mighties?

Selma Blair: A Day in My Life with Multiple Sclerosis

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Selma Blair: A Day in My Life with Multiple Sclerosis

Actress Selma Blair talks through the daily rituals—dropping her son off at school, going horseback riding—that help her stay healthy.
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Put your voice out there for your well-being & others' — Become an MS Activist

I feel good after I write one of my reps. It was empowering rather than being passive and stewing over things.

Has anybody else interacted with their representatives? I'd love to hear your stories.

nmss.quorum.us/campaign/143536

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Contact Congress Today!

Support Medical Research Funding and Access to Healthcare
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“Don’t be afraid and never give up. Never underestimate the difference you can make.” - Christopher Reeve

Keep being mighty — for yourself and for others. This weekend would have been Reeve's been 73rd birthday.

Sorry I haven't been around this week, buds: lots of work lately and limited energy.

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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We Are in the World Is Sylvia Longmire? Wheeling around the world

Sylvia Longmire uses a wheelchair due to #MultipleSclerosis, and tirelessly travels around the globe, showing us wonderful places to go and how best to do so.

She's an author and former Defense Department analyst. But she is best known for spinning around the world to famous international destinations or to a charming small town not far away from you — always with recommendations for a good bite to eat, an interesting place to see (she's an art-museum docent herself), and are those "accessible" accommodations really is useful as advertised?

Badass Solo Traveller Sylvia Longmire Isn't Letting MS Slow ...

#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

Badass Solo Traveller Sylvia Longmire Isn't Letting MS Slow Down Her Travels

Having been to over 60 countries, disability advocate Sylvia Longmire shows other women that travelling with MS is possible and enjoyable.
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"I’ve also learned that change is inevitable. Even when I’m having a really bad flare or feeling weighed down by depression, I remind myself that

it isn’t permanent and it will eventually pass."

"Above all, I’ve realized it’s important to be kind to yourself and give yourself grace to handle the challenges you face." — Nicole Pedra, 37, diagnosed with #MultipleSclerosis at age 10

#MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

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