newlydiagnosed

"You wake up every day and think, ‘Is this the day a relapse is going to happen again?’” says San Diego musician Courtney Casner, who has dealt with her own ups and downs.

Counseling psychology professor Evelyn Hunter, of Auburn University, says, “For folks newer in their MS journey, fear of relapse is among the most significant psychological issues. You don’t know your body, you don’t know what form a relapse would take, you don’t know the long-term effect. …

“Fear of relapse also spikes at big life transitions like parenthood, changing careers or moving. People worry, ‘What if my MS gets in the way?’”

Clear perspectives about relapses and how to minimize that fear so it doesn't paralyze your life: www.nationalmssociety.org/news-and-magazine/momentum-magazin...

Photo by Keith Carlsen. #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

2/27: "Overcoming MS Stigma and Embracing Support"

And on the YouTube page you're sure to find a topic that interests you: tips for air travel with MS, veterans with MS, health coaching for MS, vaccinations and MS, and a long list of others.

www.nationalmssociety.org/Resources-Support/Library-Educatio...

#MSsociety #AskanMSexpert #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Everything you need to know about ADA parking. Download for free, from United Spinal Association, an incredible support org.

Accessible Parking

#ADAparking #AccessibleParking #UnitedSpinal #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

When it's cold like today, there's a spot under my ribs where the itch just won't go away.

Plus with heavy hands it's harder to reach those rascally itches.

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

“They will love you and will figure out how to get close to you.… It’s interesting that even though the attendants feed them, they know I’m their mama."

"I have found that all the pets I’ve had have accommodated me. All my cats have jumped on my lap where I can pet them, and they’ve all slept with me where we can cuddle,” says Lopez, who has #arthrogryposis.

How do your pets accommodate you?

Read about more cool cats, down doggies and righteous reptiles: How to Manage Pets as a Wheelchair User

#multiplesclerosis #Disability #CP #Pets #Wheelchair #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Caregiving

My first MS Specialist had a fantastic nurse who repeated, "Rest, rest, rest. Rest is your control. Rest all you can."

Being a type A person, I asked, "How much rest?"

She repeated, "However much rest you, personally, need. It will change from day to day, but make sure to always have time to rest."

Knowing that the nurse had 30 years' experience working with MSers, I heeded her advice quickly. This continues to make a world of difference in my health-FUL-ness.

— Redditor editproofreadfix, 59F, MS 36 years, on /r/MultipleSclerosis.

Read the supportive responses — www.reddit.com/r/MultipleSclerosis/comments/1103m9j/im_not_e...

#rest #Stress #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Not every trough is the end of the world — but it feels like it. #MightyTogether #MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

#MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

#MultipleSclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

"I visualize that I have a little vial of energy for the day. I use it up pretty quickly, and it takes a long time to recharge."

Besides her sense of humor, she powers up with a medicine that doesn't come in pills or a vial.

"Volunteering has been huge for my mental well-being. Being part of a team, interacting with [others], and problem-solving are all wonderful ways to not only distract myself from this disease, but also learn more about available resources." Pam considers the other volunteers her support group. "They tend to [be] proactive and supportive people."

Want to give volunteering a try? Visit www.nationalmssociety.org/Get-Involved/Volunteer

#chronicillness #autoimmune #newlydiagnosed #Disability #Caregiving