"Caregiver Panel: Bridging the Gap" shows many kinds of caregivers telling their powerful stories. From the United Spinal Care Working Group, a great monthly club for support, resources and advocacy. vimeo.com/1158497418
#caregiving #MultipleSclerosis #MightyTogether #ChronicIllness #newlydiagnosed #autoimmune #Disability
Learn valuable ways to bridge language & cultural barriers. Strengthen communications between you and doctors. Make the most informed decision, by making the best TEAM together = you + your providers. With neurologist Dr. Luis G. Manrique-Trujillo. Program originally aired 3/21/24.
www.nationalmssociety.org/how-you-can-help/get-involved/cale...
#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability
Requested by a new member.
www.nationalmssociety.org/for-professionals/for-healthcare-p...
#PediatricMS #POMS #MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability
Made quadriplegic after a motorbike accident, Jaimen's family encouraged him to try the drone that he was thinking about. At the nearby seacoast, he began capturing photos and videos of jumping, playing dolphins, and whales with their calves. Now he works with Netflix and PBS.
Want an instant pickmeup? Check out his Instagram: www.instagram.com/jaimenhudson
#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability
Connect and learn with others who are new to multiple sclerosis and navigating their own journeys. This program offers info on MS and its symptoms, and advice on how to manage your case. Talk to attendees, ask questions of a health care professional and a volunteer who is living with MS, and share your own experiences.
Also find the New to MS Resource Guide on the same page, with info from the program. Note: This program repeats on the second Thursday of every month.
Sign up at www.nationalmssociety.org/Symptoms-Diagnosis/Newly-Diagnosed/New-to-MS
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability
I honestly had no idea what I was getting into. We sold out at 1,000 tickets," said.Sexton, diagnosed with MS in 2013. She started MuSic Movement in 2024 as an event those living with autoimmune disease can enjoy while raising money for the MS Society and for those with MS in need. Today, Sexton is rocking out again. ...
Throughout Sexton’s [own] health battle, music has been a source of comfort, and it quickly became the perfect centerpiece for her fundraiser. “I was thinking, what can we do that can be more inclusive for everybody? ... That’s when I thought of music,” she said. ...
Through her nonprofit, Sexton helps provide funds for those in need. “There might be someone who needs a leg drop device that their insurance doesn’t cover. I want the MuSic Movement to be somewhere that they can turn to for assistance,” she said. ...
“I have connected with so many people. I have had people reach out when they are going through hard times. It’s really nice to be able to talk to people who literally understand what you are going through,” she said.
Excerpts from "How A South Side Woman Built A ‘MuSic Movement’ To Raise Money For Multiple Sclerosis Awareness" by Blockclub Chicago's Jim Lynch.
How A South Side Woman Built A 'MuSic Movement' To Raise Mon...
#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability
Where I'm from, Cubs fans fly their W flags after a win. Today MS Activists are flying the W after a bipartisan group of congressmen passed the Multiple Sclerosis Research Program (MSRP). MSRP especially benefits vets with MS, and fell victim to last year's budget cutting. But MS Activists refused to be silent and explained to their reps how important the program is. Federal MS research is restored!
Learning and speaking up feels so empowering. If you want to learn more about what’s happening on Capitol Hill and how you can share your story, join us on Feb. 9 at 1 p.m. ET for “Your Stories, Your Power: New Opportunities and Tools to Help You Make a Difference!” Register at nmss.quorum.us/event/30882
#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability #Activism
12-12:30 p.m. ET -- Vision symptoms are the first sign of multiple sclerosis. Learn strategies to navigate these challenges and get guidance for managing and optimizing visual well-being from Dr. Shiv Saidha, professor of neurology at Johns Hopkins Hospital. Program originally aired 3-7-24.
www.nationalmssociety.org/how-you-can-help/get-involved/cale...
#MultipleSclerosis #MightyTogether #ChronicIllness #Caregiving #newlydiagnosed #autoimmune #Disability