newlydiagnosed

Create a new post for topic
Join the Conversation on
1.8K people
0 stories
426 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

4/20 for MS & Chronic Illness/Conditions: How has it or CBD helped you?

It helps me sleep, with my kicking, cramping legs, and anxiety.

Dedicated to my dear, late friend Marcia, who got hooked on opioids trying to escape MS-related pain.

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving #Pain

Most common user reactionsMost common user reactions 5 reactions 1 comment
Post
See full photo

Why Friends Abandon You When You’re Sick (And How to Cope)

Chronic illness made me tough. But there's one friend breakup that still messes with my head, 20+ years later.

"Losing friends during illness is a painful and often unexpected experience. When you're struggling with chronic illness, disability, or long-term recovery, the people you once counted on may disappear. But why do friends abandon you when you're sick? Is it discomfort, avoidance, or something deeper?"

Why Friends Abandon You During Illness | Chronic Illness & Friendship

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Why Friends Abandon You During Illness | Chronic Illness & Friendship

Why do friends abandon you when you're sick? Explore the emotional impact of losing friendships during chronic illness and how to cope with abandonment.
Most common user reactions 10 reactions 4 comments
Post
See full photo

Why Friends Abandon You When You’re Sick (And How to Cope)

Chronic illness made me tough. But there's one friend breakup that still messes with my head, 20+ years later.

"Losing friends during illness is a painful and often unexpected experience. When you're struggling with chronic illness, disability, or long-term recovery, the people you once counted on may disappear. But why do friends abandon you when you're sick? Is it discomfort, avoidance, or something deeper?"

Why Friends Abandon You During Illness | Chronic Illness & Friendship

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Why Friends Abandon You During Illness | Chronic Illness & Friendship

Why do friends abandon you when you're sick? Explore the emotional impact of losing friendships during chronic illness and how to cope with abandonment.
Most common user reactionsMost common user reactions 6 reactions
Post
See full photo

“I wake up every day and feel as if I were hit by a bus,” says Rory Kandel, who owns Rory's Bakehouse in Napa, CA, and was diagnosed with MS in 2023.

Rory's sells frozen treats for pickup and ships Giant Chocolate Chip Cookies nationwide. Kandel shared her challenges and her love of baking on Christina Applegate's and Jamie-Lynn Sigler's podcast. Since then, people have been reaching out to her with their own MS stories and she feels “much less alone” in her battle with the disease.

“I had the decision to make whether I was going to hide or be open (about MS),” she said. “I worried about how it was going to affect my business, and all it’s done is create a sense of support I never could have imagined I would have."

Excerpts and story from The Press Democrat (Sonoma), photo Emma K Creative, Local baker appears on celebrity podcast to talk about living with MS

MeSsy podcast with Rory Kandel, podcasts.apple.com/us/podcast/the-beauty-of-the-invisible-di...

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

The Beauty of the Invisible Disease with Rory Kandel

Podcast Episode · MeSsy with Christina Applegate & Jamie Lynn Sigler · 11/05/2024 · 1h 5m
Most common user reactions 8 reactions
Post
See full photo

MS is a disease of uncertainty — and that all starts during diagnosis.

But diagnosis times are generally decreasing and treatments getting more effective.

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Most common user reactionsMost common user reactions 6 reactions
Post
See full photo

We're unlocking some of the mysteries behind MS.

Here's a quick overview video from the MS Society showing some of the questions they're uncovering: Who gets affected by it? Plus ways to manage life with #MultipleSclerosis: probiotics/gut biome, diet, & more.

www.youtube.com/watch

#multiplesclerosis #MightyTogether #ChronicIllness #autoimmune #newlydiagnosed #Disability #Caregiving

Most common user reactions 3 reactions
Post
See full photo

5 Ways To Prevent Falls With MS and Balance Problems

One study of 32 people with #MultipleSclerosis found that the number of falls decreased nearly fourfold after participants performed therapist-led exercise sessions for seven weeks. The hourlong sessions included balance exercises that targeted core stability, multitasking, and sensory strategies. #Disability #newlydiagnosed #chronicillness

www.mymsteam.com/resources/ways-to-prevent-falls-with-ms-and...

5 Ways To Prevent Falls With MS and Balance Problems | MyMSTeam

If you’re living with multiple sclerosis (MS), you may find that sometimes it’s difficult to maintain your balance, causing you to fall down. In fact, more
Most common user reactions 10 reactions
Post
See full photo

MS Gym - Putting some Spring back in your step

This website has been helpful to me for understanding and building back balance and core strength. The guy is either a trainer or therapist who explains physical issues that come up a lot in MS. Then he shows exercises to help those areas, many very simple to do. (Like doing them under a blanket! Which sounds goofy, but those of us with MS are nodding right now at what a good idea it is.)

Sometimes my wife and I watch together. One thing that completely convinced us he knows his stuff was when he did a certain walk to demonstrate one of his points - and she & I looked at one another in disbelief: It was exactly how I used to get around with my cane!

Here's the YouTube channel with a lot of free vids. I'm not a subscriber:

www.youtube.com/c/TheMSGym

#multiplesclerosis #Exercise #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support

The MS Gym

The purpose and goal of this site is to educate the Multiple Sclerosis Community how to exercise safely, correctly, and effectively in order to manage your MS symptoms, teach your brain new ways to move around your damaged nerves, and to slow the progression of MS or rebuild after MS progression has been stopped. YOU can learn how to exercise in a way that re-trains your brain to use alternative neurological pathways to work around the MS damage in your body. You CAN restore your strength, balance, coordination, and mobility. You CAN be free.
Most common user reactionsMost common user reactions 9 reactions 2 comments