newlydiagnosed

To Gina Schuh, 40, a Mesa, Arizona real estate investor and a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. “I think [the costumes] are my claim to fame."

Many of us who use mobility aids have struggled at times with others’ staring. There’s something joyous then about costuming you and your cane/chair together and encouraging even more staring but on your terms. This is me. This is my chair/cane. Also, my costume’s better than yours.

Check out the hilarious pics in the article and comments.

They Came from Planet Wheelchair! How Costuming Your Wheelch...

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Some really valuable MS life-skills. Things like self-advocacy and "staying active" took me years to learn.

www.healthcentral.com/condition/multiple-sclerosis/tips-for-...

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“When I run, I feel like I’m taking control - not just of the pain, but of the condition itself," says 26yo Tom Means. He won the Saxon Shore Half Marathon in one hour, 33 minutes and eight seconds.

"Running is one of the only things that eases the heaviness in my legs," he says. He also experiences numbness, brain fog and slurred speech. To help control these symptoms, Tom gets Ocrevus treatments.

He ran in honor of his sister and father, who also have MS. His famous run raised money for his sister's treatment center.

"I firmly believe that exercise and nutrition are some of the biggest factors in living with MS," he says. "It's a small part you can play in your own MS journey that could make a massive difference in the long run."

A #MultipleSclerosis dx does not mean your life is over. Ironically, it often makes you even stronger.

Man, 26, diagnosed with incurable illness breaks Guinness World Record

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To attract our clicks, Internet writers want to reduce things into small, simple lists: the five things you need to do, the seven things behind such-and-such, the one ingredient that will supercharge your this-and-that. This article was on a very professional- and expensive-looking website. It was a blog, but the hosting website made it look very important. The author had zero credentials. He could be a person with MS, or a doctor, or a freelance writer trying to rake in a few bucks — we just don't know.

I hate articles like this because they reduce complicated conditions and situations into Lego blocks. Especially with MS, where even researchers are coming to understand the complex disease in almost spectrum-type terms, it's dumb and destructive to pigeonhole millions of people with only a few outcomes. Someone newly diagnosed could read this article and its conclusions, and think, 'What's the point in trying?'

End of Thursday rant. Also, get offa my lawn! Ha ha

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“Even though I’m doing really well, fatigue is really, really hard for me,” says the actress, who has been living with multiple sclerosis since 2018. Scout helps her get up, and then stretching and coffee help her ease into the day.

What's your morning routine, Mighties?

Selma Blair: A Day in My Life with Multiple Sclerosis

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I feel good after I write one of my reps. It was empowering rather than being passive and stewing over things.

Has anybody else interacted with their representatives? I'd love to hear your stories.

nmss.quorum.us/campaign/143536

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Keep being mighty — for yourself and for others. This weekend would have been Reeve's been 73rd birthday.

Sorry I haven't been around this week, buds: lots of work lately and limited energy.

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it isn’t permanent and it will eventually pass."

"Above all, I’ve realized it’s important to be kind to yourself and give yourself grace to handle the challenges you face." — Nicole Pedra, 37, diagnosed with #MultipleSclerosis at age 10

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