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John
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@themightyjohn
Multiple Sclerosis Connections 1d
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Ask an MS Expert: Progressive MS (en Espanol), Thursday, 7/16/26 at 12–12:30 p.m. ET

Spanish-language program on PP MS and its management, with neurologist Vanessa Marín Collazo, MD, of Mayo Clinic Hospital in Jacksonville, FL.

Prerecorded. Links: tinyurl.com/dn8sr82t

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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Group Leader
John
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@themightyjohn
Multiple Sclerosis Connections 3d
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Actor and caregiver Gary Sinise on difficult times, suffering, strength and hope.

Had the pleasure to see his Lt. Dan Band play a twilight gig for thousands of veterans yesterday. Famous for "CSI New York" and Lt. Dan in "Forrest Gump," Sinise was caregiver for both his wife and son going through cancer at the same time. Mac Sinise passed away in 2024 at 33 years old.

Gary Sinise reads Romans 5:3-5. www.youtube.com/shorts/YCbL-WlOM9M

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Gary Sinise reading the Scriptures Romans5:3-5

Romans 5:3-5 (ESV)“More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character p...
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Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 5d
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"I built robot legs for my dad. He has a disease called MS. [I’m] giving him the ultimate wheelchair with legs. Now we can go anywhere! Love you dad."

Mark's Walking Wheelchair: Inventor Jake Laser mounted a wheelchair on a walking robot for his father, engineering prof. and former marathoner Mark Laser. At first I smelled BS, but take a look — it's amazing!

Insta: www.instagram.com/reel/DaWlHUYIJfS

Full story YouTube:

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

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Mighty Leader
sparklywartanks
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@sparklywartanks
POTS Warriors 6d
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What has your POTS diagnosis journey been like?

Living with POTS (Postural Orthostatic Tachycardia Syndrome) can affect every aspect of life. Symptoms often fluctuate, can be unpredictable, and often requires seeing multiple doctors and specialists before receiving an accurate diagnosis.

What was your diagnosis journey like? What led you to seek an official diagnosis? What obstacles did you encounter along the way? How long did it take to receive a diagnosis?

Feel free to share your story in the comments below. ⤵️

#PosturalOrthostaticTachycardiaSyndrome #ChronicIllness #Spoonie #COVID19 #autoimmune #ChronicPain #ChronicFatigueSyndrome #Migraine #Fibromyalgia

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Group Leader
John
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@themightyjohn
Multiple Sclerosis Connections 1w
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Pelvic floor rehabilitation for MS (video link below) — 2 PTs/experts offer solutions & info on bladder, bowel issues.

When new to MS, I went heavy on meds to fight urgency & stay working, but no info about Kegels, etc. Eventually turned my bladder to a Triscuit & went to ER with +103° temp. Checked out a month later, permanently in a scooter. Wish I'd known more about pelvic floor exercise, etc.

www.youtube.com/watch

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

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John
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@themightyjohn
Multiple Sclerosis Connections 1w
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Some mornings, my wife wakes up w extended bouts of dizziness. She's also my caregiver, so those days become "bed days" as we focus on her well-being.

Because "MS care" = "family care," and vice versa. This Thurday's "Ask an MS Expert" is about managing MS when both spouse AND carepartner need health supports.

Join Kathleen Silva, who shares her similar experience of caring for her husband, Rick, who lives with MS, while she faces cancer. Learn what it means to manage care together and how additional support can help ensure that everyone involved is supported.

Ask an MS Expert: "Managing MS as a Team." Thur., 7/2/26 @ 12–12:30 p.m. ET. tinyurl.com/3cmb9bwp

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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mangomeow
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@mangomeow
ChronicIllness 1w

Living with chronic illnesses

This is how I have been feeling about having multiple chronic illnesses.

Life goes on, just without you being able to enjoy it. You watch people live without the burden of an illness. You watch them have big goals, go to a party, study, have fun or just simply take a walk. You see them complain about things like traffic, a bad night of sleep or an argument they had, and all you can think of is "I wish, I had these problems" because their bad day is a perfect day for me.

I wish one day I can wake up to a "bad day" of an average person.

#ChronicIllness #MentalHealth #Depression #autoimmune #Lupus

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Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1w
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Group Leader
John
 • 
@themightyjohn
Multiple Sclerosis Connections 1w
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One good thing is we've got UFOs and aliens on the case vs. MS too. So that's cool.

Earthlings + Martians > #MultipleSclerosis.

** Note: Some info on this graphic is wrong. Little green men, people.

#MultipleSclerosis #MightyTogether #Caregiving #ChronicIllness #newlydiagnosed #autoimmune #Disability

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Mangomeow
 • 
@mangomeow
Lupus 2w

I am in so much pain

How do I deal being in so much physical pain? I cannot take ibuprofen because of my kidney, my chest and joint pain are killing me. I have autoimmune but my doctor is not caring enough to give me a proper care, I had to fight in the first place to get a diagnosis.

I feel like my life is a russian doll of pain and suffering, being trapped in a crappy country (Iran), being trapped with unsupportive toxic parents and having no friends, being trapped with this failing body,and being trapped in my mind with mental illness.

What do you guys do when everything is falling apart? How can I find hope?

#Lupus #Depression #autoimmune #Pain #Anxiety #help #Undiagnosed

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