Pediatric Pancreatic Cancer
I am here for my son Max.
Max is an intelligent mature, amazing little man who was diagnosed with pancreatic cancer in December 2022.
He came to me with concerns of the whites of his eyes starting to yellow. He was a jaundiced.
He was taken to the emergency room, and there were thoughts. He had hepatitis or mono, and really a wide range of things.
Less than a week later at a follow up appointment with the pediatrician, we were informed he was having organ failure, mainly his liver, and we were rushed to University of Missouri hospital.
A few days later, they’ve started using the word cancer, and he was then diagnosed with a primary neoplasm of the pancreatic head.
This never happens. His situation is so rare that there is no protocol for any treatment. There are no protocols for symptoms or anything that he’s going through whatsoever at all.
He was due to have a Whipple procedure done which at the very last minute was decided against by his medical team, due to inflammation of the portal vein from a previous endoscopic ultrasound and biopsy.
He is now receiving treatment of chemotherapy drugs, which he has had one treatment he started this week.