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Are there phrases or terms you wish people wouldn't use when it comes to your illness or condition?

...What do you wish people would say instead?

People often call me "disfigured" because of my facial birthmark. But instead of saying I have a facial "disfigurement," I'd rather people say I have a "facial difference." My face is just a little different than the norm, and that's OK. I'm not disfigured, which has such a negative feeling and connotation behind it.

#RareDisease #ChronicIllness #FacialDifference #MentalHealth #Anxiety #Depression #Education #Birthmark #PortWineStainBirthmark

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How do you handle the rude comments made about your illness, disability, or physical difference?

When people make rude comments about my facial birthmark, I typically respond in kindness. Only a few times have I unleashed the sarcasm, but I constantly think of jokes or sarcastic responses I want to give...but am not brave enough to say in that moment. So often I come home and say, "This is what someone said about my face. This is how I responded, but this is how I *wanted* to respond." Do you feel obligated to be kind when you respond to people, or do you ever have fun with how you reply to the unkind comments? #MentalHealth #Birthmark #PortwineStain #Ableism #ChronicIllness #Disability

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