My port is a pain (literally)
My home health nurse just left after attempting to access my port twice and failing both times. I’ve got to have another nurse come out and try. This is happening every other week. My doctor approved my port for my fluid infusions because I have almost no vein access and it always takes multiple attempts (even with the ultrasound team) to start an IV.
I was really hoping that the port would help prevent multiple sticks.
I’ve heard about products like the “Amanda Stabilizer” from BD that can help prevent multiple stick attempts but I have no idea how to go about getting them. My medical supply company can’t even get me a lower profile Huber needle.
My doctor suggested that I’ll probably eventually have to learn to access my port myself but if multiple medical professionals frequently have issues doing it, I don’t have a lot of faith that I’d be able to do it. #EhlersDanlosSyndrome #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #Port