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    Jag Mercury
     • 
    @jagmercury
    September 30, 2021
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    Learn to listen to others too #PropionicAcidemia #usa

    💡”Everyone you will ever meet knows something you don’t!”
    ———————————————————
    🙋🏻‍♀️Raise your hand if you are quick to close yourself off from new people in fear of maybe being let down, of being used, of being judged and the list goes on. 🧨Is there a risk in being burnt? Absolutely! I choose to focus on how people can help me grow in order to continue the impact I have to make in the lives of others.
    #Love #TheMighty

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    CMCM
     • 
    @claudiacolin
    December 19, 2020

    Good morning how are you? We are very interested in propionic acidemia disease and have been learning about it, because we have an assignment in our n

    #MightyTogether

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    kids with ronald mcdonald
    kids with ronald mcdonald
    Heather McCarthy
     • 
    Propionic Acidemia
    January 13, 2018

    10 Ways to Give Back to the Medical Community if You Use MLK Day as a Day of Service

    kids with ronald mcdonald
    One of the greatest civil rights leaders, Rev. Dr. Martin Luther King Jr., lived his life serving others. He believed in inclusion for all and made the civil rights movement about universal acceptance. Following his example, millions of Americans use Martin Luther King Jr. Day as a Day of Service. The MLK Day of Service [...]
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    Story
    Heather McCarthy
     • 
    Propionic Acidemia
    July 14, 2017

    What I Learned From Attending a Propionic Acidemia Conference

    I’m sitting in a conference room listening to researchers, doctors, and dietitians challenge each other. They’re questioning each other’s studies, pressing to gain more information, debating on best practices. This would normally sound like a nightmare, but I’m in heaven. As a mom to two children with propionic acidemia, it’s music to my ears to [...]
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    Story
    kids playing doctor with toys
    kids playing doctor with toys
    Heather McCarthy
     • 
    Propionic Acidemia
    March 10, 2017

    7 Pictures Showing How Life Can Be Affected by Propionic Acidemia

    kids playing doctor with toys
    Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients’ lives. Both Maya (age 7) and Christian (age 3) have a rare metabolic condition called propionic acidemia. [...]
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    Story
    woman holding a baby in the rain
    woman holding a baby in the rain
    Heather McCarthy
     • 
    Propionic Acidemia
    February 6, 2017

    A Playlist for Parents of a Child With Propionic Acidemia

    woman holding a baby in the rain
    Our family loves music. Our daily dance parties take place in either the kitchen or basement. My 7-year-old daughter Maya, my 3-year-old son Christian, my husband Rob, and I all take turns choosing a song to play on our Amazon Alexa device. As a mom to two children with special needs, music seems to have [...]
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    Story
    little girl dancing
    little girl dancing
    Heather McCarthy
     • 
    Propionic Acidemia
    February 5, 2017

    A Playlist for Propionic Acidemia Patients

    little girl dancing
    In my last blog post, I shared my playlist of songs for a propionic acidemia parent. I have two children with propionic acidemia who love to have daily dance parties. My 7-year-old daughter Maya not only loves dancing but also singing at the top of her lungs. While Maya loves these songs because she knows [...]
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    Story
    boy playing soccer
    boy playing soccer
    Heather McCarthy
     • 
    Propionic Acidemia
    November 17, 2016

    The Meltdowns You Don't Often Hear About

    boy playing soccer
    When we hear about meltdowns, most people automatically think about a child with autism. We read about sensory meltdowns, the difference between a meltdown and a tantrum, and how people react when seeing a meltdown in public. While meltdowns are common in the autism community, they’re not unique to only those with sensory processing disorders. [...]
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    Story
    Little boy and girl whispers.
    Little boy and girl whispers.
    Heather McCarthy
     • 
    Propionic Acidemia
    November 17, 2016

    How to Help Your Child Navigate an Invisible Condition

    Little boy and girl whispers.
    An invisible disability or a hidden illness is described as one that is not immediately apparent or cannot be seen. We often hear adults talk about their invisible disabilities and the hardship it brings. Invisible illnesses are hard enough to handle as an adult, but what do you do when your child is the one [...]
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    mother and two children walking on woodland path in autumn
    mother and two children walking on woodland path in autumn
    Heather McCarthy
     • 
    General Parenting
    November 10, 2016

    The People I'm Thankful for as a Special Needs Parent

    mother and two children walking on woodland path in autumn
    Thanksgiving is a wonderful time to reflect on all we are grateful for. It’s also an ideal time to give thanks to the people in our lives who truly make a difference. As a mom to two children with special needs, I am constantly saying thank you. Thank you to the pediatricians, doctors and nurses. [...]
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